St Mark's IBD Patient Panel
@StMarksIBDPP
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Patient forum for individuals with Inflammatory Bowel Disease #crohns #colitis at the UK's National Bowel Hospital, the ground-breaking @StMarksHospital
London, England
Joined October 2015
The 2023 IBD Patient Survey is now open. Have your say and help improve care standards for all 🙏🏼👍🏼🌟.
@StMarksHospital @BowelsOfStMarks @StMarksIBDPP @LNWH_NHS please help to spread the word. We need to hear from as many patients as possible - help us understand the good, and the not so good to ensure our services are meeting the needs of patients.
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St Mark’s are hosting an IBD Open Day and we’re so excited! 🌟🙏🏼. Click on the link below to register! . Excited to see you there ❤️ Come talk to us to find out more about the Patient Panel’s work. To get on our mailing list, email info@stmarksibdpp.org.uk.
This year we are delighted to be hosting an IBD Patient day on Saturday 13th May celebrating World IBD day! This event is in partnership with our amazing clinical colleagues & we would love to see you there. The event is free & registration is now live:
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Look forward to seeing all those who can make tonight’s meeting 👍🏼.If you’d like to join us and don’t have details, please be in touch!
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RT @CrohnsColitisUK: Are you living with active Crohn's Disease? You might be interested in the ADDapt trial. Researchers at King's Colleg….
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Sending love and strength to all the AMAZING nurses at St Mark’s and the LNWH Trust. We’re very lucky to know you and very grateful for your wonderful care 🙏🏼🥰😘.
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RT @LisaYounge2: Meeting your heroes. an amazing evening at the @BowelsOfStMarks Supporters Event listening to these phenomenal people tel….
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So well deserved 🌟🌟🌟 Big congrats!.
Congratulations to our St Mark's Hospital Stoma & Pouch Care Team for winning Highly Commended Association of Stoma Care Nurse (ASCN) UK Stoma Nurse of the Year 2022 Award! #WeAreStMarks @iasupport @colostomyuk @StMarksHospital @PouchRed @StMarksHospital @uoaa @wocnsociety
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RT @StMarksHospital: Join our Stoma & Pouch Care team on social media this Saturday 01/10/2022 to celebrate this year's Ostomy Awareness Da….
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Another chance to help St Marks with their ground-breaking research 💡🩺🤞🏼 .If you can spare 10 mins, please contact Lillian! .Thank you 👍🏼.
📣 Call out to patients to join the Pouch fistula QoL study📝. Please get in touch via Twitter or email Inwh-tr.pavfqol@nhs.net if you can spare 10 minutes to complete an online questionnaire @PouchRed @iasupport @StMarksIBDPP @CrohnsColitisUK @ACPGBI_PLG @pavfcos @philtozer1
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Another opportunity to contribute to IBD research 💡🩺🤞🏼.
✍️Can you help one of our @NCBDresearch research programme partners with a survey ? Whether you have an ileostomy or colostomy, had one or are due to have one , the team @Ostiqueltd would love to hear about your thoughts, experiences & lifestyle.✅
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King’s College are recruiting for a new patient study relating to the effect of certain foods on Crohn’s. If it’s of interest, sign up! 💡🩺🥗💩.
Researchers at King’s College London are looking for people with mildly active Crohn’s Disease to take part in a study researching how diet can be used to manage active flares and reduce gut inflammation. To take part, go to:.
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Some tips from the amazing St Mark’s Stoma and Pouch Care team for navigating this hot weather 🥵💦🙏🏼.
With temperatures set to reach record highs, St Mark's Stoma & Pouch Care team share tips for anyone with a stoma or pouch to help you stay hydrated during the hot weather🌞#WeAreStMarks #stayhydrated💧. @iasupport @StMarksHospital @PouchRed @colostomyuk
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🌟🌟🌟🌟🌟🌟🌟.🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼.🥳🥳🥳🥳🥳🥳🥳 .#THANKYOU.
Massive congratulations to Team IBD and in particular the IBD Biologic Team who went above and beyond last year and thoroughly deserve this recognition! Teamwork makes the dream work eh!! @BowelsOfStMarks @StMarksIBDPP @LNWH_NHS
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Wooohoooo! 🥳.Huge thanks for your invaluable work. We’re so grateful for your passion, dedication and kindness, that helps carry us through stormy waters 🙏🏼🌟.
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Huge congrats to @mlcervantesRN. So well-deserved 🌟🌟🌟.As St Mark’s patients, we’re so grateful for the amazing wraparound care our specialist IBD nurses provide. Thank you 🙏🏼😘.
Congratulations @mlcervantesRN - this years recipient of the Richard Driscoll award for IBD nurse excellence! Judged by peers, it’s an endorsement to be proud of. Congrats also to @joseph_babitha and the rest of #TeamIBD at @StMarksHospital - teamwork at its best! 🎉@LNWH_NHS
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Rest In Peace @bowelbabe. Such gratitude for all you did to raise awareness of bowel cancer and all your legacy will continue to do @bowelbabeF .May your memory be for a blessing 🙏🏼😇. Know the signs:
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Looking forward to tonight’s Panel meeting 😊 For the link, email us at info@stmarksibdpp.org.uk.
Join the IBD Patient Panel for their next meeting: 22/06/22, 6-7.30pm.Topics to be covered include.🔸An update on the move to Central Middlesex.🔸Discussion of a new surgical project .🔸The Patient Carers Participation Group.e: info@stmarksibdpp.org.uk for the link!.#WeAreStMarks
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Excited for next week’s IBD Patient Panel meeting 💡💬. Topics to be covered include:.➡️ An update on the move to Central Middlesex Hospital.➡️ Discussion of a new surgical project .➡️ The Patient Carers Participation Group (PCPG) . Email us for the link: info@stmarksibdpp.org.uk
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A huge shout out to all those impacted by IBD today. We're thinking of you!. #WeAreStMarks #WorldIBDDay #crohns #colitis #complexboweldisease.#invisibleillness.#breakingthesilence
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