Spastic Paraplegia Foundation #hspandpls
@SpasticWorld
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Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS
United States
Joined September 2014
Allison Moore discusses her participation in the 2024 Bio Conference and the CMT Clinical Readiness Summit, emphasizing the collaborative efforts made in addressing challenges faced by patients with #CMT disease and other rare conditions. Watch now:
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SPG4 is a rare neurodegenerative disease that causes muscle stiffness. “We will do anything to get this cure for Jack.“ - Anna Laidlaw Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: https://t.co/fZfgVmO5XB 🎧 #RareDiseases @SpasticWorld @LillyandBlair
umassmed.edu
Jack's story
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WEBINAR "Advanced In Vitro Modeling of Neuromuscular Diseases and Therapeutics." ▶View Now: https://t.co/Qj3vB9OXgc
#CPath #RareDisease #collaboration
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List of Senators to start calling asap. Make your voice loud #FoodBabeArmy
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How Individuals and Organizations Can Support TRxA? Watch! https://t.co/bNEtHLchFP #CPath's TRxA, is an accelerator focused on supporting academic scientists in advancing novel therapeutics from university labs to drug development pipelines.
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Vani Hari aka The Food Babe’s mission has gone viral. She has collected 400,000 signatures demanding Kellogg’s use the same ingredients(no artificial food dyes) in the US that they use in other countries. Kellog’s refusal to meet with her and the 1000 protestors will be the
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That was it. But even if you have hereditary hemochromatosis, you really don't have to worry about iron rich foods and totally avoid them even if you have hereditary hemochromatosis unless you plan on consuming 9 pounds of them. Just balance them out with other micronutrient
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Dive into the world of #drugdevelopment w/ C-Path's #YouTube channel! Subscribe now for access to on-demand content including meetings, webinars, interviews, and more. Stay informed, stay inspired! Subscribe here: https://t.co/7Ho5PB3crm
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Something new is cooking in the kitchen. Sleep is very important. Get your sleep, help your brain replenish.
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How Individuals and Organizations Can Support TRxA? Watch! https://t.co/a2rMJmjZig #CPath's TRxA, is an accelerator focused on supporting academic scientists in advancing novel therapeutics from university labs to drug development pipelines.
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How Individuals and Organizations Can Support TRxA? Watch! https://t.co/ZNo73u3ttW #CPath's TRxA, is an accelerator focused on supporting academic scientists in advancing novel therapeutics from university labs to drug development pipelines.
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Another independent discovery of ATG9A missorting in AP-4 deficiency: https://t.co/pRnb4Tysu4. So pleased to finally see this in print. Congratulations @Davoriii and @JosefKittler. Very important for efforts to cure AP-4-HSP. #CureSPG47
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How Individuals and Organizations Can Support TRxA? Watch! https://t.co/Gz8T0m9oGn #CPath's TRxA, is an accelerator focused on supporting academic scientists in advancing novel therapeutics from university labs to drug development pipelines.
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Interested in #CPath updates? Be sure to subscribe at https://t.co/5MF4QtwOIO For 20 years, C-Path has been providing vital infrastructure to generate a neutral environment for everyone working in drug development to collaborate, not compete. Let's improve lives, together.
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Our Nature genetics paper is out. After 12 months of reviews and many improvements! We identified a common 17bp sequence motif (not just on one haplotype) in front of the FGF14-GAA repeat that fully stabilizes the tandem repeat locus: no intergenerational expansion in thousands
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Nutritional considerations for EVERYONE.
🦽 🥗 Now available! NUTRITION IN ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset ALS/MND, and the myths and benefits of feeding tubes. Watch now: https://t.co/hLuLryzSno
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Yr-End - there is time to still DONATE to the SP-FOUNDATION! SOON we will close out 2023. We need your help to meet our 2023 goals. https://t.co/Zz083i3T5Z
#Fundraise #HSPandPLS #Findacure #releasethecures #SpasticParaplegiaFoundation #SpasticParaplegia #motorneurondiseases
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Very exciting day at the @NIH @NIHClinicalCntr with wonderful collaborators @NIH_NINDS planning the next steps for clinical trials in #raredisease #movementdisorders #neurogenetics. Together we can achieve great things! @SpasticWorld @LillyandBlair @CureSPG50 @DEF_Lab_HMS
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🚨I am looking for a Research Technician to help w/ my human genomics & translational neuroscience research in @LupskiLab. Ideal candidates would be recent college grads looking for a couple years of research experience before med/grad school. Join us!
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