Awareness
@RuudGrethe
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Raising awareness about PANS - PANDAS - AE - BGE
Joined December 2020
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Bye bye house. We’ve lived here for 7 years, the first 2 were full of beautiful family memories. Then, everything changed in 2020 when my boy got so ill. As you look the top room on the left was his and it was painful clearing out the room and saying goodbye. My memories of his
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A child who stops eating is not being stubborn. Their gut is sending danger signals straight to the brain. When the gut wall inflames, every bite feels unsafe. Parents see refusal. We see a nervous system trapped in survival mode. Reduce the inflammation and the fear
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This #WorldChildrensDay kids with #PansPandasHour are denied the right to equitable health, education + social care. Please consider the plight of kids with immune mediated neuropsych conditions https://t.co/sD3QWt1Ib6
@ChildrensComm @MichaelRosenYes @DrNighatArif @DrNighatArif
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Was #PansPandasHour considered in this and many similar cases? Devastating 😞 #MedicalRuleOut
Schoolgirl Mia Lucas died after being found unresponsive at psychiatric unit, inquest hears https://t.co/mhD4p8YV3g
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#PansPandasHour Most children who present with sudden onset OCD, tics, involuntary movements, rage, personality change, eating restrictions get referred to camhs. However, this is not appropriate when these symptoms are triggered by an infection or virus. #camhs
Today we launched a public consultation to help inform the development of national standards for Child and Adolescent Mental Health Services. Visit https://t.co/qNNtG0VuQS The consultation closes at 5pm on Fri, 28 Nov 2025. #HaveYourSay #MentalHealthMatters
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Seeing endless stories of post-viral, acute-onset neuro and psych symptoms in kids lately. We need to be shouting for children with #PansPandasHour and similar neuro-psych conditions. @MichaelRosenYes @frankcottrell_b @anne_delaney @claudiahammond @PhilipSimeITV @RealDeniseWelch
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What’s one medicine that has saved your life?
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@NatureDocHealth My son with #PansPandas just tested positive for Aliminium (Al), off the charts Barium (Ba), Nickel (Ni), Thallium (TI) and Cesium (Cs). What on earth is happening in this world. 🥲
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#MensHealthAwarenessMonth
#PansPandasHour An infection or inflammation could be at play with mental health symptoms.
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Epstein Barr virus is linked to development of the autoimmune disease lupus in new research
scientificamerican.com
Early findings indicate that Epstein-Barr virus may also cause the autoimmune disease lupus
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Epstein Barr virus is linked to development of the autoimmune disease lupus in new research
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The story of PANDAS Awareness Day began in 2008. That's when 12-year-old Stefanos Mitsogiorgakis faced a sudden nightmare after a strep infection...🧵 #PANDASPANSAwarenessDay
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Also called autoimmune encephalitis in some cases. And as per the excellent book/film called 'Brain on Fire' https://t.co/k63cwRKi9g if you don't test/screen/examine/ask questions, you'll never know.
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Calling all #teachers #educators 🗓️ 24th November is the next date. Learn about how you can support children with #Pans #Pandas
#PansPandasHour
We are here for education professionals supporting children or young people with PANS or PANDAS. Visit our teacher training page to book your place on an upcoming session: https://t.co/xqbe7JR39s
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"She contracted a StrepA infection &her behaviour changed overnight. Lucy became extremely anxious, felt unable to eat & was demonstrating #obsessive & #compulsive #behaviours. She didn't know what was happening or how to cope with the way she was feeling." #PansPandasHour
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