Brain Inflammation Collaborative
@BrainInflCollab
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We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Joined June 2023
Numerous chronic conditions, such as Long COVID, ME/CSF, and POTS, share common characteristics such as: - neuroinflammation - overlapping immunopathologies - overlapping symptoms & comorbidities - variable responses to medical treatments These conditions are also
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So many of us have asked the same question: Why does what helps one person, not help another? Through the unhide® Platform, we’re finding answers—together. Early results from the What Helped, What Didn’t survey are already highlighting what really works for people with complex,
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No laptop. No coding. Now, Cooper builds sites on his phone. Turn your best idea into a working tool for your business with YouWare.
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Our latest webinar is now LIVE! Learn about the power of our unhide® clinical research application, its current use cases, and our future directions. This open-source patient database can be used by anyone to accelerate clinical studies related to conditions associated with
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This research paper summarizes why the Brain Inflammation Collaborative exists. We are on a mission to create a world where these "invisible" conditions are widely recognized, promptly diagnosed, and effectively treated. Has this happened to you? Let us know by leaving a
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To all the physicians out there, the consequences of writing symptoms off as anxiety or stress can damage your patients' physical and mental health.
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We can't protect the Church without YOU! Our mission in Rome depends on reader support. Help us keep reporting the truth, defending faith, and standing for life!
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Thankfully, some physicians will set their ego aside and listen without judgment.
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Some patients fear they will upset their physician, so they remain silent.
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The lack of an accurate diagnosis can not only cause psychological damage but also physical damage.
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They found that patients who were not believed by their healthcare provider had higher rates of: - anxiety - depression - healthcare distrust
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Meet Razer AIKit: Your open-source launchpad for AI development. Fine-tune and run 280,000+ LLMs locally, scale across GPU clusters, and keep your data private — Available now on GitHub ⚡. Start local. Go cluster.
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The study included 3,396 patients later diagnosed with one or more of the following: Lupus Sjögren’s Vasculitis Systemic sclerosis Inflammatory arthritis Polymyalgia Rheumatica Mixed Connective Tissue Disease Undifferentiated Connective Tissue Disease Other inflammatory rheumatic
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"More than 80% of [systemic autoimmune rheumatic disease] patients reported that having their symptoms dismissed as... psychological, along with comments like 'it's in your head,' harmed their self-worth. For 72%, the experience remained upsetting even decades later." Read more
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A study revealed how psychologically damaging it is to tell a patient that their symptoms are in their head. Here is what they found...🧵
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Ever feel like your brain’s running slowly—words on the tip of your tongue but just out of reach? That may be brain fog. It’s not “in your head”—it’s a symptom. 💭 Join the Brain Fog Study on The unhide® Solve Together Unified Platform to help uncover why it happens.
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Many patients who need mental health care slip through the cracks before receiving the help they need. Researchers from the University of British Columbia and Harvard Medical School analyzed survey data from almost 57,000 people from 21 countries over 19 years. The results were
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The "trifecta" is used by the patient community to describe those with Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos syndrome (EDS), AND postural orthostatic tachycardia syndrome (POTS). The reason for extensive diagnostic overlap among the three syndromes remains unclear.
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Giving Tuesday is tomorrow! Invest in a better future for all who are impacted by brain inflammation. Join us for a free educational webinar tomorrow! Real data. Real stories. Real change. Hear from Dr. Megan Fitzgerald, Dr. Matt Menendez, and CEO Christy Jagdfeld as they reveal
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This week! New data from 3,200+ unhide® participants is here. Join us to see what we’re learning about ME, Long COVID, POTS, Lyme and other complex chronic illnesses. Register now: https://t.co/f3egM9CRj4
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In the grim darkness of the far future, heresies hide everywhere ⛓️ WISHLIST WARHAMMER CRPG ON STEAM
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No study has been able to show that serotonin levels are low in people with depression (1). This means one of two things: 1. Serotonin levels are 'normal' in patients with clinical depression. 2. Current tools lack the sensitivity needed to measure serotonin where it matters
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We may be sitting on a preventable pathway for schizophrenia using a drug that’s been in your bathroom cabinet for decades. Drop a comment and let us know what you think about this study.
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We already screen for prodromal (early warning) signs in youth mental health clinics. Adding low-dose doxycycline as a preventive trial in high-risk teens could change lives.
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If confirmed, this could be a huge breakthrough in psychiatry. A common, generic antibiotic given to at-risk teens could prevent schizophrenia — a devastating illness with no current preventive treatment.
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The coming years will split companies into two groups: those that become AI-native and those left catching up. The innovators who harness AI now will define the winners of tomorrow. Follow me for strategic insights on leading through the AI revolution.
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