@TheRealMcCoy aka Meghan
@RipperMD41
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Following
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Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @[email protected] T2: same as here @rippermd41.bsky.social
NH, USA
Joined October 2016
RT @DefectiveBecca: Brain tumors are the deadliest form of cancer in children. The funding is being shifted to a group that does not spec….
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Now the fun game. Is it bad enough to see my ortho knowing it will definitely make my #MECFS worse? 😑 . I know what he’ll say: “You sure get some strange dislocations, but that’s hypermobility. Keep it immobilized and we’ll see about PT.”. And we all know how well PTs know ME 🙃.
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RT @_diatoma: Any thoughts on why stopping LDN has given some pwME withdrawal symptoms, including akathisia?.I stopped it (titrating down)….
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RT @BatemanHorne: "We miss him every day.” In John’s memory, gifts are matched up to $20k thru Aug 31 to distribute the Clinical Care Guide….
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RT @betsyladyzhets: I'm working on a story about the upcoming RECOVER-TLC trials for @thesicktimes, and would love to hear from more Long C….
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RT @rhirhiarhii: Oh great having to try get a new source of bpc 157 cost almost $300 but I’m literally fuckin dying without it. Now having….
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RT @angryhacademic: Petition (UK 🇬🇧).Fund NHS COVID boosters for Clinically Vulnerable people – keep covid boosters.
petition.parliament.uk
'Protect the NHS' and 'Save Lives' by continuing to fund NHS COVID boosters for Clinically Vulnerable people, including most previously shielded as CEV, rather than limiting them to over-75s, care...
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RT @tmprowell: #MedTwitter clinicians & #LongCovid patient #advocacy, PLEASE share what you have tried to treat long COVID symptoms, whethe….
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RT @tessfalor: 👏. "This study uses a mobile laboratory that is deployed in the homes of seriously ill patients. This is essential for perfo….
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RT @MalnutritionME: This publication describes ME case studies in which nutritional difficulties were left untreated resulting in life-thre….
mdpi.com
Very severe Myalgic Encephalomyelitis (ME), (also known as Chronic Fatigue Syndrome) can lead to problems with nutrition and hydration. The reasons can be an inability to swallow, severe gastrointe...
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Which is why I’m on here. Choosing my least worst activity. When I can’t choose the best activity (lying in the dark, staring at the wall) I try to choose the least worst. #MECFS.
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If you have other diagnoses besides #MECFS is there one that’s particularly bad in combo with ME?. There’s some stiff competition with dysautonomia, MCAS, PsA, but for me I think it’s the autism+adhd. They make it so hard to lie still and do nothing. My brain does not turn off.
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RT @MECFSSD: Big wins for ME/CFS in the Senate’s 2025 appropriations bills - Thank you @Solve_CFS:.* $5.4M for CDC ME/CFS program.* NIH di….
solvecfs.quorum.us
The Senate included critical ME/CFS and Long COVID provisions in its FY26 spending bills—now we need the House to keep them. Call your Representative and urge their support for these life-changing...
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RT @MTW1952: Sometimes, people reach out to others for help. Katiana lives in Greece and created a wish list of things that would make her….
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RT @MarkSZaidEsq: Abbe Lowell and I represent @CDCgov Director Susan Monarez. Contrary to govt statements, Dr. Monarez has neither resigned….
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RT @RorPreston: Does anyone know of any studies/surveys that have asked people what they think their ME was triggered by?. I think this wou….
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