Tess Falor, Ph.D. | Renegade Research
@tessfalor
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Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Joined January 2021
My favorite word is serendipity. The word does feel whimsical and magical to me ... and the experience of it is so damn fun. I don't think it is pure accident most of the time. (Mindset figure from: https://t.co/NdBawKgYRq)
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This poll thread for healthy people and people with most chronic illness is open for 3 more days. Please share your experience with anesthesia. It is anonymous. If you want to skip a question, for most of them you can just choose See / Show results.
People without ME/CFS (as per CCC) or hypermobile connective tissue issues: Have you had a negative experience with anesthesia / sedation / numbing (including dental) medications? Examples: Unusual HR and/or BP changes, brain fog, nausea, fatigue, waking up, anaphylaxis 2/17
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For all those people who seem to believe that ME/CFS dominates the #LongCovid research world, please actually look at this data ⬇️ ME/CFS barely registers amongst LC research, it’s a blip that’s largely ignored. That’s WHY we advocate for it.
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⁉️📣 Calling those with #LongCOVID, #MECFS, or #POTS who have tried Valtrex – how did it affect your symptoms overall compared to your baseline? If you had improvements or worsening, let us know in the comments how long they lasted. Please share 🙏
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From Grok: @tessfalor's synthesis is insightful and aligns with CDR frameworks but risks overattribution by conflating cellular antiviral induction with plasmatic virome depletion. It represents hypothesis generation rather than settled science—plausible but untested, with
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Everyone’s chasing AI stocks. Meanwhile, every megawatt feeding those GPUs in California has to be covered by a carbon allowance by law. California Carbon Allowances are the quiet “picks & shovels” commodity play on the AI boom.
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I haven't had anybody say no. I was hoping for some no's and explanations why it actually is "surprising" like they said in the new paper, so that I could learn. Please? 😆
Isn't this expected based on the work of @BhupeshPrusty and Bob Naviaux? "In this study, we found that none of 25 patients with ME/CFS had peripheral blood evidence of a fully reactivated HHV-6 or HHV-7 infection, and only 8 of 20 (40%; 95% CI = 0.19–0.64) had evidence of
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Relevant for #LongCovid and #MECFS Vagus nerve in duodenum detects ammonia from amino acids...signals nucleus tractus solitarius to avoid protein. Gut-to-brain signaling restricts post-illness protein appetite, researchers discover
medicalxpress.com
When we get sick, with the flu, say, or pneumonia, there can be a period where the major symptoms of our illness have resolved but we still just don't feel great.
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Isn't this expected based on the work of @BhupeshPrusty and Bob Naviaux? "In this study, we found that none of 25 patients with ME/CFS had peripheral blood evidence of a fully reactivated HHV-6 or HHV-7 infection, and only 8 of 20 (40%; 95% CI = 0.19–0.64) had evidence of
New from Ron Davis team: Virus Genome Sequences in the Blood of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients https://t.co/z3AkNJomLN "Surprisingly, more viruses were found in the healthy controls than in the ME/CFS patients" #MEcfs #CFS
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Thanks @CortJohnson for writing about our GLP-1 Clinician's Roundtable with Dr Kaufman and Dr Dempsey! Here's the recording:
The GLP-1 Agonist Boom in ME/CFS, FM and Long COVID: Insights, Using it, Trials Underway https://t.co/2vrIoFdts0
#LongCOVID, #MECFS, #FM
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We would love to get students involved in our research projects. Who are the researchers or university programs likely to have students (including undergrads) who are interested in ME/CFS and Long COVID?
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This is a thread with 14 polls about responses to anesthesia / sedation / numbing (including dental) in people who have neither ME/CFS meeting Canadian Consensus Criteria (CCC) nor a hypermobile connective tissue disorder/disease/issue. You can have other conditions and
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Volunteers Needed to help run red light therapy research studies for ME/CFS. Be part of a research team *of patients for patients* Orientation: Sat Nov 15 noon ET Can’t make it? Email: contact@renegade-research.org @RenegadeRes @tessfalor @TaraFotiPhD
https://t.co/KCUO3iCL4c
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Hey guys!!!! Let's kick things off with a Giveaway. The winner can pick any piece of apparel in the store. You know how these work. Like, Comment, follow, and quote/retweet. I'll pick a winner next Monday so we got a week to get it around. Good luck! Store link in comments.
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Please register! Would love to see you at the next @RenegadeRes volunteer info session! I began volunteering a few months ago, it’s great if you’re looking for remote and flexible ways to help patient-led research and community care
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
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Here is #TheAnesthesiaQuestion poll again, this time for people with connective tissue issues like weird skin, vein problems, hypermobility issues. If you have neither ME/CFS (Canadian Consensus Criteria) or these issues, there will soon be a 3rd poll for you to join in.
1/16 This is a thread with 14 polls about responses in patients with diagnosed or suspected hypermobile connective tissue issues (e.g. Ehlers-Danlos syndrome (EDS), Hypermobility Spectrum Disorder (HSD), Marfan syndrome, or issues that are likely related to connective tissue,
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New video from Jarred Younger! https://t.co/jcJWlq1AVg Ht @BottsieHicks
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