Tess Falor, Ph.D. | Renegade Research
@tessfalor
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Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Joined January 2021
My favorite word is serendipity. The word does feel whimsical and magical to me . and the experience of it is so damn fun. I don't think it is pure accident most of the time. (Mindset figure from:
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I'm curious who else considers these distinct experiences. Do you know what I'm talking about for what I call a "crash" here? . (This time I'm not wondering what words you use. I'm wondering about your experiences, even if you don't use the word "crash" to describe it.).
How I personally use the terms "crash" vs "Post Exertional Malaise (PEM)" in my ME/CFS experience. Apparently I've been using them differently than other people. My "crash" - the key that differentiates an experience that I describe with the word crash is how suddenly it
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RT @mildTin: V cool series of talks on the Itaconate shunt at the Stanford Community Symposium! I don't think these results have been prese….
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RT @IsabelRamirezRD: Join us on Monday sept 8th at 5pm ET for a community space to discuss these terms. Patients driving research!.
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RT @ahandvanish: Please consider adding a report if you haven’t already, or updating your existing one! . This is a great way to formally d….
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RT @RenegadeRes: It's on! . Monday, Sept 8, at 5pm ET. Join @IsabelRamirezRD @tessfalor.@sunsopeningband @Sabrina_Poirier.for a community d….
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It's on! . Monday, Sept 8, at 5pm ET. Join @IsabelRamirezRD @tessfalor.@sunsopeningband @Sabrina_Poirier.for a community discussion about PEM, PENE, PESE, & crashes. (Link to space in next post). Patients, come & share how you use these terms & talk about your lived experience.
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Another topic for the space. PEM (or not) during research studies .
For those of you who have participated in research, have you participated while in PEM (when testing during PEM wasn’t the purpose)? Meaning what is being tested was collected while in PEM. Please comment with additional insights. RT for more responses 🙏🏾.
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RT @sunsopeningband: low sample size, it could be enough participants to influence the results. Why does it matter? Well, cells will extrac….
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RT @IsabelRamirezRD: Very interesting because this can drive communication and research. I use “I’m crashing” for the same way Tess define….
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I'm thinking about hosting an X space about the terminology issues (PEM vs crashes vs PESE vs PENE) with @sunsopeningband and @Sabrina_Poirier. Who wants to join? Who should I invite?.
Question that came up during #MECFS25 that I'm curious to hear from the community about: . Do you use the words PEM and crash interchangeably (as in you use them to describe the same experience) or do you use them to describe different experiences?. @JanetDafoe.
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@sunsopeningband I found your post about PEM vs PESE. Interesting!.
Today’s unpopular opinion is maybe the worst development in Long Covid research has been confusing PESE with PEM. Just because a person may have unusual and disabling symptoms and signs after an exertion (PESE) doesn’t necessarily make it PEM. Please see the ICC-ME for details.
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How I personally use the terms "crash" vs "Post Exertional Malaise (PEM)" in my ME/CFS experience. Apparently I've been using them differently than other people. My "crash" - the key that differentiates an experience that I describe with the word crash is how suddenly it
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It's so fascinating reading all the comments! . Please click the poll and comment, if you haven't already.
Question that came up during #MECFS25 that I'm curious to hear from the community about: . Do you use the words PEM and crash interchangeably (as in you use them to describe the same experience) or do you use them to describe different experiences?. @JanetDafoe.
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RT @JanetDafoe: #MECFS25. So great to have Renegade Research and @tessfalor so well represented here. They are doing great work.
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RT @naval: If your smartest friends start saying crazy things - pay attention. A paradigm shift may be underway.
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RT @IsabelRamirezRD: For those of you who have participated in research, have you participated while in PEM (when testing during PEM wasn’t….
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Question that came up during #MECFS25 that I'm curious to hear from the community about: . Do you use the words PEM and crash interchangeably (as in you use them to describe the same experience) or do you use them to describe different experiences?. @JanetDafoe.
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RT @JanetDafoe: #MECFS25 Here is the agenda for our upcoming Community Symposium on September 5! It will be recorded for those who cannot a….
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RT @metcoalition: We're proud to launch the Coalition for Metabolic Health. With seed funding from @janellison & @DavidBaszucki's $50M comm….
coalitionformetabolichealth.org
WASHINGTON (September 4) – Launched with seed funding from the Baszucki family’s $50 million commitment to improve metabolic health, the
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