RideForRareDiseases
@Ride4RD
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Welcome to Ride for Rare Diseases, the 3,000 cross-country bike ride to raise awareness and support for rare diseases.
Joined June 2018
#TBT to an unforgettable experience speaking at the NORD RARE Summit. Click the link to hear part of my story! https://t.co/lKU8ZOvJZi
#RareDiseases #Nord2018
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Incredibly humbled to be featured as one of four panelists on the “Meet the Next Generation of Patient Advocates” at the 2018 #NORD RARE Summit! #RareDiseases #NORDsummit
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I am SO excited to be speaking at the @RareDiseases Summit in October to help raise awareness of PPP (Primary Periodic Paralysis) and all rare diseases. Comment below if you’ll be there too! #RareDiseases
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WATCH: In the summer after graduating high school, 17-year-old Gabriel Low rode his bike 3,000 miles to raise nearly $10,000 for rare diseases. What an amazing young man! 👏👏👏 To read his full story, click here: https://t.co/wOZmKm4Wxg
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An enormous thank you to the Periodic Paralysis Association for inviting me to speak at their 2018 Conference in #Dublin. I never have felt so educated, inspired, proud, & humbled all at the same time. #RareDiseases
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I’m thrilled to have qualified for @USATriathlon's World Championship next year! If you want to know a little more about my experience racing the USA Triathlon National Championships, here’s my race recap: https://t.co/Micq0jH0V0
#rarediseases #triathlete
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Being in #Dublin for the Periodic Paralysis Association conference was an amazing experience. It was so great to meet others and raise awareness of PPP (Primary Periodic Paralysis)! Thanks so much for having me! #RareDiseases
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On behalf of Ride for Rare Diseases and being a committed partner of Strongbridge Biopharma (my ride sponsor), a big thanks to @Invitae for their $5,000 donation to the Periodic Paralysis Association (PPA)! Who will be the next sponsor!? #rarediseases
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Thrilled to have qualified for @USATriathlon's World Championship next year! This upcoming year will be dedicated to strength training and of course continuing to raise awareness of PPP (Primary Periodic Paralysis). #RareDiseases #triathlete
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So grateful to be able to raise awareness of PPP (Primary Periodic Paralysis) and my ride with @PatientWorthy through this article! #rarediseases
Read how Gabe honors his mother, once a champion mountain biker and now a primary periodic paralysis warrior, by biking across the US for her and for #raredisease patients everywhere. #R4RD #PeriodicParalysis #Collab
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Thanks for sharing my story @PatientWorthy! Together, we WILL make a difference! #RareDiseases
“It was at that moment I realized that this condition was real, and I could no longer pretend it did not affect me.” #R4RD #RareDiseases #Collab @Ride4RD
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Honored to speak at the Periodic Paralysis Association conference in #Dublin, Ireland! You can tune in at approximately 8:45 AM EST tomorrow and listen to some awesome speeches! https://t.co/NN3hbTsWn7
#raredisease #R4RD
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.@RarePOV on our team had the opportunity to hear Gabriel Low & his mom discuss his 3400 mile cross-country bike ride (@Ride4RD) to raise awareness of Primary Periodic Paralysis & #rarediseases. Learn about his incredible journey at https://t.co/js8RyU9s89
#CareAboutRare #R4RD
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Yesterday's visit with my mom to Strongbridge Biopharma, my Ride For Rare Diseases sponsor, was truly educational. I had a wonderful time meeting employees, and seeing their commitment to the PPP (Primary Periodic Paralysis) community. #RareDisease #triathlete
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THANK YOU to everyone who showed their support, from the people at the finish line in #Cleveland to those who tuned into the live-stream. Together, we are raising awareness of PPP (Primary Periodic Paralysis) & all rare diseases. Together, we will make a difference. #RareDisease
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Congratulations Gabe! You did it! Gabe Low just finished a 3,000 mile bike ride (@Ride4RD) to raise awareness for Periodic Paralysis and all #rarediseases. Retweet to congratulate him on this amazing accomplishment!
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My Ride For Rare Diseases was a great opportunity to train for the @USATriathlon while raising awareness of PPP (Primary Periodic Paralysis). Looking forward to taking on Nationals this weekend and continuing to spread my message. #RareDisease #triathlete
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What a great turnout in #Cleveland! Pretty cool that everyone wants to help raise awareness of PPP (Primary Periodic Paralysis)! Watch some highlights from yesterday. #R4RD #RareDisease
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My heart is full. What a wonderful way to end my Ride For Rare Disease. Thanks for all your help raising awareness of PPP, (Primary Periodic Paralysis). I am incredibly grateful! #R4RD #RareDisease
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