RaDaR
@RenalRadar
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The largest rare kidney disease registry in the world. A powerful source of real-world data that can help improve understanding of rare kidney conditions.🧬
England, United Kingdom
Joined March 2016
RaDaR took to the global stage at ASN Kidney Week!🌎🧬 Our data featured in plenaries, posters & late-breaking trials — highlighting RaDaR’s impact on #RareKidneyDisease research. Great to see this recognised internationally, as noted by @DannyGale_1 : https://t.co/gQt8XdUUaY
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🧬Prof @DannyGale_1 highlights how RaDaR is "bridging the gap between real-world data & therapeutic development" in a new paper. 📊 Data has informed: • NICE appraisals • FDA decisions • Clinical trials for IgAN, FSGS, C3G & Alport syndrome 📖Article: https://t.co/lcMsTOcW9U
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📢 New Glomerular Diseases Guideline out now! 🧒 Up-to-date recommendations on diagnosing & treating immune-mediated #GlomerularDisease in children. 💊 Guidance on immunosuppression & supportive care. ✅ Endorsed by @BAPNnephrology 📃: https://t.co/KhP5UpCdEW
#KidneyDisease
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Our Black History Month Webinar is TOMORROW! Who's joining us? @KateBramham, Ms Roseline Agyekum, Mr Steffan Gough plus other expert speakers will be sharing practical insights on inclusive recruitment in health research. 🔗 https://t.co/1Z6ZQCrFcb
#BlackHistoryMonth
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📢 Join us for next week’s webinar: LifeArc–Kidney Research UK Rare Disease Centre & UK Renal Registry: Data updates & opportunities Hear from experts on RaDaR, UKRDC, research journeys & trial-ready data. 🔗 Register: https://t.co/MX3rUWyTMn
#RareDisease #KidneyDisease
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This report highlights why RaDaR matters. Hosted by @UKKidney - RaDaR is the world’s largest rare kidney disease registry & provides the evidence base for research & policy. Continued collaboration is key to strengthening outcomes for people with rare kidney diseases.
Our new report, looking into rare kidney diseases in the UK, has uncovered shocking statistics in diagnosis delays, inconsistent care, and long waits for new treatments, with the impact being more severe for children. Rare kidney diseases include over 150 distinct diseases
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🧬 New @Kidney_Research report reveals the devastating impact of rare kidney diseases in the UK. Children face delays, missed school and long waits for treatment. More 👇 https://t.co/FlF8dLbDRn
#RareKidneyDisease #KidneyResearchUK #PatientVoice #PublicHealth #DialysisCrisis
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📣 Don’t miss our Corporate Day 2025! 🤝 Connect with professionals, trustees & leaders 🎤 Hear from Katie Vinen, Jim Burton & more 📊 Insights on education, sustainability & research (UKRR + @RenalRadar) 🗓️ Register for free now! https://t.co/swCZWbBajL
#KidneyCare
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🗨️ “Until you stand on the same side of the mirror with me, our perspectives would always differ.” – Roseline Agyekum 💻 Join our webinar to explore community-led approaches to inclusive health research. 🔗 Register: https://t.co/Fv8ZG55krL
#CommunityVoices #InclusiveResearch
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🗨️“For #BlackHistoryMonth, we want to introduce culturally intelligent training across RaDaR sites—understanding cultural context is key to trust, engagement & inclusive research.” – @KateBramham Hear more at our webinar 👉 https://t.co/r9rsLUagGu
#InclusiveResearch
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We’re excited to welcome: ✴️Dr Kate Bramham ✴️Ms Roseline Agyekum ✴️Mr Steffan Gough 🤝Kidney Care UK + Africa Advocacy All sharing practical insights on inclusive recruitment in health research. 🔗 Save your spot: https://t.co/1Z6ZQCrFcb
#DiversityMatters #ResearchInclusion
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📢 Webinar Alert 💻LifeArc–KRUK Rare Disease Centre & UK Renal Registry: Data Updates & Opportunities 🗓️ 7 Oct 2025, 16:00–18:00 Highlights: 🔹 Real-time updates 🔹 Research journeys using RaDaR data 🔹 Trial-ready data 🔹 Q&A 🔗 Register Now: https://t.co/dkeh5qx3Kr
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Our Deputy Director @KateBramham joins @bbcsounds #WhatsUpDocs with Chris & Xand van Tulleken, exploring how kidneys work, salt & water intake + why kidney disease disproportionately affects ethnic minorities - including the role of genetics & detection.🧬 https://t.co/PF5MmFvJGs
bbc.co.uk
Drs Chris and Xand van Tulleken discover the magic of the kidneys.
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Keen to make your research recruitment more inclusive? 🌍 Join our free webinar to explore: ✨ Cultural intelligence in practice 🚧 Barriers to participation 💡 Community-led approaches 📄 Accessible patient info 🔗 https://t.co/r9rsLUagGu
#InclusiveResearch #HealthEquity
ukkidney.org
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📢 New Webinar Do you recruit participants to research projects? Want to make your recruitment more inclusive? 👥Learn how to build trust & encourage inclusive participation in UK #HealthResearch. 🔗 Find out more & register: https://t.co/4MYd0NdsfG
#DiversityInResearch
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This PKD Awareness Week we’re proud to mark 25 years of PKD Charity and 15 years of RaDaR! 🧬🔬 Discover why RaDaR matters to every PKD family 👇 https://t.co/pLt28KjrUy
#BePKDAware #PKDAwarenessWeek
@Kidney_Research @UKKidney
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What is RaDaR? Are you registered? 🧵find out more in comments. More info: https://t.co/cJHdm6dhEf
#AlportSyndrome #RaDaR
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🎉Join @NSTrust 20th Birthday Celebration!🎉 Taking place at their research labs in📍Bristol, the day will celebrate the milestone year & the team's research success. 🍽️Lunch & refreshments 👩🔬Hear the latest research updates 🔬Lab tours More info: https://t.co/PzXvUQi5LQ
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Don't miss the Alport Research Hub Symposium co-chaired by RaDaR's @DannyGale_1 Hear updates on the Hub's latest research, data projects & future plans. Open to all, whether you already work in AS or are interested in developing research. Register now:
kidneyresearchuk.org
Register for free to join us for a day of inspiring renal research at our Alport Research Hub Symposium 2025.
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Prof. Daniel Gale enlightens how studying large cohorts allows for deeper understanding and gap closing in rare diseases 🔑 @RenalRadar #PodocyteConference 🐙 @PodocyteIPC @UKKidney @Tobias_B_Huber @KSusztak @JochenReiser @rkramann
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