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Nephrotic Syndrome Profile
Nephrotic Syndrome

@NSTrust

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The Nephrotic Syndrome Trust, or NeST, was set up in 2005. Nephrotic Syndrome affects around 10,000 people in the UK.There is currently no known cure.

Joined December 2010
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@NSTrust
Nephrotic Syndrome
1 year
Hi @followers Please kindly register for 'Give as You Live' For every purchase we receive a small donation for Nephrotic Syndrome research! Every penny counts! https://t.co/vc7CPTS6vj Thanks!๐Ÿ™‚ #nephroticsyndrome
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@NSTrust
Nephrotic Syndrome
1 year
Nephrotic Syndrome UK App is now LIVE on Apple and Google Play. For more information click on this link - https://t.co/oZ1faxxtlk ๐Ÿ™‚ #nephrotic syndrome #nephrotic syndrome app
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@NSTrust
Nephrotic Syndrome
1 year
PLEASE JOIN US! National Information Day for those living with Nephrotic Syndrome is taking place on Friday the 26th of April 2024 at the 'Norwegian Church Arts Centre' at Cardiff Bay. Here's the registration link - https://t.co/k70UyPBPmo # nephrotic syndrome ๐Ÿ™‚
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@NSTrust
Nephrotic Syndrome
1 year
Nephrotic Syndrome UK App is now LIVE on Apple and Google Play. For more information on the app click on this link - https://t.co/SdYZJuMppV nephrotic-syndrome-app #nephroticsyndrome #nephroticsyndromeapp ๐Ÿ™‚
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@NSTrust
Nephrotic Syndrome
1 year
Today on โ€˜World Kidney Dayโ€™ letโ€™s celebrate and give thanks for the important research undertaken by the Bristol team of researchers. Amazing progress is being made https://t.co/Th7OG9Skee Thankyou for your donations https://t.co/XZkzflPVXD ๐Ÿฅฐ#nephroticsyndrome #bristolrenal
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@NSTrust
Nephrotic Syndrome
2 years
Hi Everyone, Three places left for the Brighton Marathon to raise funds for Nephrotic Syndrome research? Your charity place is free if you pledge to raise at least ยฃ250 for Nephrotic Syndrome Research. https://t.co/KAGHQBuOge Thankyou!๐Ÿ™‚#nephrotic syndrome
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londonmarathonevents.co.uk
Brighton Marathon Weekend
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@NSTrust
Nephrotic Syndrome
2 years
Please kindly consider giving a monthly donation for Nephrotic Syndrome Research! Several ways to make donations via BACS, Paypal,textgiving via DONATE, or JustGiving -please visit - https://t.co/XZkzflQtNb Thankyou so much most appreciated! Happy New Year!
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@NSTrust
Nephrotic Syndrome
2 years
Hi Everyone, Merry Christmas and a Very Happy New Year to you ALL !!! Thankyou SO much from all of us at NeST & the Bristol Research team for your AMAZING fundraising support over this past year!! Please keep supporting the vital research work in 2024 - https://t.co/XZkzflPVXD
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@NSTrust
Nephrotic Syndrome
2 years
Hi Everyone, Please support our charity as you begin your Christmas shopping online and in-store, which includes gift cards too! Please register for 'Give as You Live' For every purchase we receive a small donation for Nephrotic Syndrome research! Thankyou! Merry Christmas! ๐Ÿ™‚
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@NSTrust
Nephrotic Syndrome
2 years
New molecule to treat nephrotic syndrome discovered by Bristol Renal team. Congratulations from ALL of us! @ https://t.co/lRktJOy6RE Thankyou so much to you all for your amazing research progress! ๐Ÿ™‚ https://t.co/FXFoEdnAyf
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kidney-international.org
Podocin is a key membrane scaffolding protein of the kidney podocyte essential for intact glomerular filtration. Mutations in NPHS2, the podocin-encoding gene, represent the commonest form of...
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@NSTrust
Nephrotic Syndrome
2 years
Join us! We're a very friendly group inclusive of adults as well as parents with children and teenagers. Our page - NeST (Nephrotic Syndrome Trust) ๐Ÿ˜€#nephrotic syndrome https://t.co/4JB8GgwOXx Our charity website page is
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facebook.com
The Nephrotic Syndrome Trust, or NeST, was set up in 2005 by trustee David Yearsley whose son James sufferers from the disease. Nephrotic Syndrome...
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@NSTrust
Nephrotic Syndrome
2 years
Looking for more fundraisers -could you help support our very hardworking and dedicated research team at Bristol University. Help us find new treatments/medicine for all types of Nephrotic Syndrome #nephrotic syndrome Thankyou! Wendy๐Ÿ™‚
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@NSTrust
Nephrotic Syndrome
2 years
'NeST App & Information Day at Evelina Children's Hospital, London' on Saturday the 28th of October 2023. Free Registration -click on the QR code on the poster. Free Lunch and Refreshments. Children welcome! ๐Ÿ™‚#nephrotic syndrome
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@NSTrust
Nephrotic Syndrome
2 years
Mary Holmes and Reggie Saunders are kindly fundraising again for NeST. THANKYOU Z-FEST TEAM!! Fancy dress welcome, FREE ENTRY -See the poster for more details! August Bank Holiday weekend, movie comic cars, loads of superheroes, fairground all weekend, birds of prey, Live Music
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@NSTrust
Nephrotic Syndrome
2 years
Join us - NeST App & Nephrotic Syndrome Information Day at Evelina Children's Hospital, London on Saturday the 28th of October 2023. The Eventbrite page is now open for tickets. Registration is Free! See the poster on the latest news page for more details.#nephrotic syndrome
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@NSTrust
Nephrotic Syndrome
2 years
Thankyou SO much from NeST & the Research Team to Maria Holmes & Reggie Saunders & the Zest Fest Team for organising this event this weekend to raise vital funds for Nephrotic Syndrome Research!!! Have a great weekend!! #nephrotic syndrome #ZFest๐Ÿฅฐ
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@NSTrust
Nephrotic Syndrome
2 years
Z Fest Music Festival- raising vital funds for Nephrotic Syndrome research on Saturday, July 1st, and Sunday 2nd of July in Leeds - for more details see the poster below. Please be there to support NeST! #nephrotic syndrome # Nephrotic Syndrome Trust๐Ÿ˜€
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@NSTrust
Nephrotic Syndrome
2 years
Congratulations to Professors Moin Saleem & Gavin Welsh & Carl May scientists at the Bristol Research #nephrotic syndrome Please support their vital research by fundraising! https://t.co/ofU9zZZfsF wendy@nstrust.co.uk ๐Ÿ™‚ ๐Ÿ“ท๐Ÿ“ท๐Ÿ“ท๐Ÿ“ท
kidney-international.org
About 30% of patients who have a kidney transplant with underlying nephrotic syndrome (NS) experience rapid relapse of disease in their new graft. This is speculated to be due to a host-derived...
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@NSTrust
Nephrotic Syndrome
3 years
โ€œItโ€™s Backโ€ The 2023 March Marathon Complete the marathon distance (26.2 miles) during March by any means walk, run, cycle, swim, or even bounce on that pogo stick and raise money for NeST & receive a medal! To get involved email paul@therevolutionstudio.co.uk and have some fun.
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@NSTrust
Nephrotic Syndrome
3 years
Please join us at our 'National Information Day for those living with Nephrotic Syndrome' on Friday the 14th of April 2023 at the Dorothy Hodgkin Building, Bristol, BS1 3NY (Register in advance!). Please note tickets are limited due to the lab tours). https://t.co/kc3h01cPvA๐Ÿ™‚
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