Morris R1 Crew
@R1_Crew
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Faster & fartherš» Share Your ALS Clinic Experience:https://t.co/C6jj5wYmQb
Joined December 2022
RT @YourALSguide: The Mappers, a group of ALS advocates and GIS professionals, are asking families to review their clinics for the ALS Clinā¦.
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RT @LisaLegacy4ALS: Presenting the ALS Clinic Advisor at the ā¦@iamalsorgā© Summit. Have you shared your clinic experience? .
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To anyone that is headed to DC for the @iamalsorg Flag Event, stop by and say hi! . Special thanks to @LisaLegacy4ALS for representing our team!.
On the way to the @iamalsorg Flag Event and Summit in DC. Look forward to remembering & honoring those weāve lost to #ALS including Lisa Stockman Mauriello, @becky_mourey & @sandymorris333. Thrilled to share the work of @Team_Thriving & The Mappers - the ALS Clinic Advisor.
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There is never a bad time to re-share this video of two very special mama bears, but today is extra special. Happy Motherās Day to all of the mama bears of ALS Land ā¤ļø
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We couldnāt agree more, Glen. You canāt participate in clinical trials if you donāt know about them.
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RT @CathyStandish: Every day, until the very end, Beckyās voice resonated as she fought #ALS. #EndALS #SundayMorning #sundayvibes š§¢ httpā¦.
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The ALS Clinic Advisor is a powerful resource because of YOU!. Your insights help identify best practices that can improve the quality of care for the ALS Community! . To learn more, please visit
als-geospatial-hub-nonprofit.hub.arcgis.com
R1 is a team of ALS warriors who were brought together by Sandy Morris, and are determined to improve patient cae and experiences in the ALS community.
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Today the R1 Crew remembers @becky_mourey . Becky was an incredible advocate, loving wife and mother, and loyal friend to all. She was a valued member of our team and kept us moving forward.
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People in ALS Land are telling us that they want their doctors to help them find information and resources about clinical trials, but many report that they are not getting this info. What has your experience been? Visit to share your clinic experience
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Take a minute to check out the poster, then head to to contribute your ALS clinic insights. Your comments will help improve care and help others find the quality care they deserve!.
als-geospatial-hub-nonprofit.hub.arcgis.com
R1 is a team of ALS warriors who were brought together by Sandy Morris, and are determined to improve patient cae and experiences in the ALS community.
ALS Clinic Advisor Poster.Please fill out the clinic survey.Because we need your experiences to educate clinics on our expectations for care. #ALS #GIS #esri.@R1_Crew @alsadvocacy @farmstronginfo @nadia_sethi
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RT @alsadvocacy: And in the poster hall, Jack explains The Clinic Advisor (think Yelp for clinics) with Jamie from @AmylyxPharma . This isā¦.
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Thank you @alsadvocacy for making sure the R1 Crew was able to share the experience. We appreciate you!. The R1 Crew is excited for the future of the ALS Clinic Advisor and the positive impact it will have in ALSLand.
We had an historic first in poster hall. Poster CMS-10 Clinic Advisor - Author Pat Dolan & the team zoomed to be at the poster. Pat could communicate in the chat via eyegaze. We had fun telling people about the poster and talking to Pat. Yay, @teamthriving #alsmndsymp.
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Thatās a good looking poster with some great information š. Thank you @Team_Thriving @farmstronginfo @alsadvocacy for making this happen!.
Ready for prime time on Thursday at #alsmndsymp . Thank you @Team_Thriving @farmstronginfo @R1_Crew @als . Poster contains insights from PLWALS and caregivers for #ALS Clinics collected thru ALS Clinic Advisor. Have you provided your input?
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If you are in Basel, make sure to check out the poster sessions!.
Look for poster CMS-10 from @Team_Thriving .It has something for PLWALS, & it has a really important something for those involved with ALS clinical care. See data on actual experiences in clinics. You could pay a consultant a fortune, or you could simply come to see the poster.
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RT @alsadvocacy: Dear Noted ALS MND Scientists,.Please stop by the posters done by PLWALS & caregivers at #ALSMNDSYMP.They will take you clā¦.
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RT @Team_Thriving: Made this map and hundreds of others with just my eyes. Thanks to @TeamGleason.#GivingTuesday to .
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RT @farmstronginfo: 97% of respondents would recommend the ALS Clinic Advisor survey to fellow #ALS patients & their caregivers. If you havā¦.
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The ALS Clinic Advisor has gotten rave reviews from the ALS community, but what do clinicians think?
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