On The Pulse Consultancy
@PulseInSync
Followers
487
Following
4K
Media
90
Statuses
870
Independent strategic consultancy by @TheWoollard partnering with industry and multi-agencies on patient advocacy and policy-related activities in rare disease
Cambridge, England
Joined August 2017
RT @isth: 🩸#WorldHemophiliaDay patient spotlight: @TheWoollard uses his platform to advocate for people living with hemophilia. From raisin….
0
2
0
🧬 𝐍𝐨𝐰 𝐥𝐢𝐯𝐞: 𝐁𝐥𝐨𝐠 𝐨𝐧 𝐚 𝐧𝐞𝐰 𝐞𝐝𝐢𝐭𝐨𝐫𝐢𝐚𝐥 𝐨𝐧 𝐧𝐞𝐰𝐬 𝐦𝐞𝐝𝐢𝐚 & 𝐠𝐞𝐧𝐞 𝐭𝐡𝐞𝐫𝐚𝐩𝐲. @TheWoollard & @SustainableRich explore how news media hype may shape perceptions of gene therapy in haemophilia. 👉 Read: @TARareDisease.
onthepulseconsultancy.com
A new editorial, published in the peer-reviewed open access journal Therapeutic Advances in Rare Disease (TAIRD), examines the potential effects of sensationalised news media coverage on haemophilia...
0
1
2
RT @TheWoollard: 🚨 New publication!. @SustainableRich and I explore how sensationalised news media coverage may shape perceptions of gene t….
journals.sagepub.com
0
7
0
RT @dyskochick: It was definitely epic, I avoided the Hangry thanks to the sweet station and had recorded a fabulous podcast with @TheWooll….
0
2
0
RT @TheWoollard: My experience, learnings and reflections of undertaking the Health Policy MSc at @imperialcollege 👇🏻. Heading into the fin….
0
1
0
RT @Imperial_IGHI: In a new blog post, MSc Health Policy student Laurence Woollard shares his insights into the Master's programme . Read….
0
3
0
RT @BloodStrmMedia: Mild hemophilia truly does matter and we’re with Shellye Horowitz, formally with HFA, to hear about HFA’s Mild Matters….
0
3
0
UPDATE: The survey has been extended by one week and will now close at 5pm on Friday 10th May 2024.
0
0
0
RT @RareBeacon: Take part in a new survey for UK-based rare disease patient groups on gene therapy decision aids!. 📝 Accounting for socioec….
onthepulseconsultancy.com
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their members’ socioeconomic position (SEP) when developing patient education...
0
2
0
RT @SustainableRich: Excited to talk (virtually) at the #WFHcongress2024 with @TheWoollard bringing a sociological perspective to thinking….
0
6
0
RT @CathyAH1980: Great to see @TheWoollard @SustainableRich joining us virtually in a recorded video evaluating reclassifying haemophilia b….
0
3
0
A new #survey has been launched to better understand how UK-based #raredisease patient advocacy groups account for their members’ socioeconomic position when developing decision aids for #genetherapy. See here: @Imperial_IGHI @imperialcollege @HaemoSocUK.
onthepulseconsultancy.com
A new survey has been launched to better understand how rare disease patient advocacy groups (PAGs) in the UK account for their members’ socioeconomic position (SEP) when developing patient education...
1
2
3
RT @TARareDisease: Today is #WorldHemophiliaDay! 🩸. So we wanted to share some of the research we have published in this area!. Improving p….
journals.sagepub.com
Adeno-associated virus-based gene therapy points to a coming transformation in the treatment of people living with haemophilia, promising sustained bleed contro...
0
3
0
RT @wfhemophilia: It's finally arrived: April 17th! Today marks #WorldHemophiliaDay—a day dedicated to celebrating our global community. Fr….
0
28
0
RT @TheWoollard: The UK #raredisease community was out in force yesterday for @RareBeacon’s #RareShowcase23 🦓 Superb talks involving system….
0
3
0
RT @TheWoollard: 📸 at @camraredisease’s #RAREsummit23 today with co-chairs of ‘ATMP Engage’, Finn Willingham (@CGTCatapult) & Nick Meade (@….
0
5
0
A Letter to the Editor co-authored by @SustainableRich, Research Fellow @BSMSMedSchool & @TheWoollard, Director @PulseInSync, has been published in the latest issue of @JTHjournal on the debate around reclassifying #haemophilia. Read more 👉 #hemophilia.
onthepulseconsultancy.com
A Letter to the Editor (LTTE) has been published in the latest issue of the highly-regarded Journal of Thrombosis and Haemostasis (JTH), which draws upon the unique viewpoint of those with lived...
0
3
1
RT @TheWoollard: Delighted to co-author this Letter with @SustainableRich on reclassifying #haemophilia through a lens of lived experience,….
0
4
0
RT @SustainableRich: Recently, Thachil & colleagues published in @JTHjournal arguing for a reclassification of #hemophilia. @ProfMakris & @….
0
4
0
RT @TheWoollard: Celebrated soft launch of @weareMSUK’s ‘Thoughts into Action’ Report in Parliament today. Highlights perceived QoL & inter….
0
3
0