"Justine's story reminds us that healing isn't a straight line.". Justine's journey with Graves' disease and TED is a masterclass in persistence, self-advocacy, and hope. #thyroideyedisease #raredisease #bloodstreammedia #podcast

Susan Brooks goes into detail about treatment while living with polycythemia vera (PV) and advocating for her own health. #pvpod #podcast #raredisease #polythycemiavera #bloodcancer #bonemarrow #storiesfromthemarrow

"Even when your case is labeled mild, that doesn't mean it's easy." Hear more about Justine's journey to diagnosis with thyroid eye disease on Through Our Eyes. #thyroideyedisease #raredisease #bloodstreammedia #podcast

"I had a patient happy on the couch… and another who needed transfusions to keep up with life." - Dr. Eduard van Beers explains why transfusion care in PK deficiency must be personal. @AgiosPharma

"Why is no one talking about this?" Host, Andrea Perryman, breaks down her experience with thyroid eye disease and the importance of empowering the TED community through the show. #thyroideyedisease #raredisease #bloodstreammedia #podcast

Susan Brooks tell us about her diagnosis journey with polycythemia vera (PV). There's more story to tell here on The PV Pod. #pvpod #podcast #raredisease #polythycemiavera #bloodcancer #bonemarrow #storiesfromthemarrow

What does progression look like for those living with polycythemia vera (PV)? Hear more from Susan Brooks here on The PV Pod. #pvpod #podcast #raredisease #polythycemiavera #bloodcancer #bonemarrow #storiesfromthemarrow

When the “cure” feels worse than the problem… On this week’s BloodStream, we ask: why use it at all?. Presenting Sponsor: #Takeda.#bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #vwd #genetherapy

Gene therapy has the power to truly change lives, but billions around the world still struggle to access basic healthcare. Presenting Sponsor: #Takeda.It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #podcast

New podcast episode! Dr. Rachael Grace talks with Dr. Eduard van Beers about transfusions, quality of life, and the latest PKD guidelines. Essential listening for the #PKDeficiency community! Listen now at @AgiosPharma

Period Nirvana is an experience for people with periods” - anyone with a period. Their mission? To help people find the right period product - “which in turn helps them find @PeriodNirvana. #howsyourflow #periodpodcast

Friday is here, and BDC is in full swing. If you’re at BDC, don’t forget to stop and say hi to Patrick and Amy!. Presenting Sponsor: #Takeda.#bloodstreammedia #raredisease #bleedingdisorders #podcast

Gene therapy promises hope—but who actually gets it? The latest episode of BloodStream is now available wherever you get your podcasts! . It’s a Whole New World brought to you by @CSLBehring. Presenting Sponsor: #Takeda. #bloodstreammedia #raredisease

Do you ever wonder who’s actually getting gene therapy around the world? So have we! This is a BloodStream episode you don’t want to miss!. Presenting Sponsor: #Takeda.It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease

Kim shares her environmental action motivator: “It was the kids - diapering was a SHOCK.” Kim of @PeriodNirvana doesn't consider herself “very crunchie”, but did consider a “family cloth” - would you?. #howsyourflow #periodpodcast

Indie films aren’t easy — but @RappoportSami is making it happen!. Ready to be part of something powerful? Tune in and see how you can help!. Presenting Sponsor: #Takeda.#bloodstreammedia #raredisease #bleedingdisorders #podcast

On this episode of the PV Pod, hosts Kay and Josh speak with Susan Brooks about her diagnosis journey. #pvpod #podcast #raredisease #polythycemiavera #bloodcancer #bonemarrow #storiesfromthemarrow

What does it take to reclaim your life after two decades of battling an invisible illness? . Listen to episode one of Through Our Eyes with Justine's incredible story now: #thyroideyedisease #raredisease #bloodstreammedia #podcast

Though homeschooled and missing out on sports, @RappoportSami's grandfather found freedom behind a camera lens. Presenting Sponsor: #Takeda.It’s a Whole New World brought to you by CSL Behring. #bloodstreammedia #raredisease #podcast

Coming soon to the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV) with Susan Brooks. #pvpod #podcast #raredisease #polythycemiavera #bloodcancer #bonemarrow #storiesfromthemarrow