Always getting injured, Anthony Romeo-Adcock thought a bleeding disorder might stop his musical theater dreams. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #genetherapy #healthcare

Tamara Schryver, President of Thrive with PKD discusses her journey with pyruvate kinase deficiency and the importance of guidelines. Available now: https://t.co/sNRpbUqbAC @AgiosPharma #RedBloodCellDisorder #HereditaryDisease

Survey says: complicated grief, wearing multiple hats, lifespan challenges, and being new to the community. Blood Brother Marc Pangilinan tackles these often-raised but rarely discussed topics. https://t.co/wxC4sqll06 #bloodstreammedia #raredisease #bleedingdisorders

Hear firsthand accounts from a PKD patient and caregiver on the challenges and advancements in managing pyruvate kinase deficiency. 🙌💬 New episode out now: https://t.co/hfGRfFkOxu #PKDCommunity #PatientAdvocacy #pkdguidelines @AgiosPharma

In a special three-part Blood Brother Collab, @pjlynch and Marc sit down with blood brothers to talk grief, identity, support, and strength. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #podcast

🚖 “We noticed many sickle cell patients couldn’t make appointments due to lack of transportation—and we knew we had to help.” – Shayan Siddiqui, @MiCaringHeart Hear his story on Cheat Codes: A Sickle Cell Podcast. 🎧 https://t.co/cK4Aot4uJ6 @AgiosPharma

Want to help create a better future for bleeding disorders, do ya?! Learn how to join @hemophiliafed's new initiative, The Voice of the Community. https://t.co/wxC4sqll06 Presenting Sponsor: #Takeda #bloodstreammedia #raredisease #bleedingdisorders #podcast #genetherapy

A continuación, en More Than Rare, tenemos una conversación inspiradora con Agustina Fernández: abogada, defensora y madre de un niño con encefalopatía genética (GRABA1) y epilepsia. https://t.co/0RAFWr5Enf #masqueraras #enfermedadesraras #pacientesraros #raredisease

When Benjamin’s treatment finally aligned, he began to see who he was without the struggle—and his path became clear. https://t.co/wxC4sqll06 Presenting Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease #advocacy #vwd #genetherapy

Gene Therapy scientist Ying Poi Liu shares her excitement about more treatment options for the bleeding disorders community. https://t.co/wxC4sqll06 Presenting Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #raredisease #genetherapy #biotech

From gene therapy milestones to community advocacy, this episode of BloodStream celebrates progress and powerful voices. Listen Now! https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #bleedingdisorders

Lanre Tunji-Ajayi and the Global Action Network for Sickle Cell and Other Inherited Blood Disorders are making moves. https://t.co/wxC4sqll06 Presenting Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease

Elsa Kendall opens up about the struggle of not having control over her body as a woman with a bleeding disorder. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #bleedingdisorders #podcast

🚖 Snow days turned into sickle cell solutions. Shayan Siddiqui’s MiCaringHeart has provided ~500 extra clinic visits a year in Detroit through free rides + tutoring for kids with chronic illness. Hear his story on Cheat Codes!. 🎧 https://t.co/cK4Aot4uJ6 @AgiosPharma

We hear how Voice of the Community is your chance to share your story and help shape what’s next for the bleeding disorders community. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #bleedingdisorders

We talk with The Red Ink Project about rewriting the story for women and girls with bleeding disorders, and with Lanre Tunji-Ajayi about organizing across borders for sickle cell. https://t.co/wxC4sqll06 Sponsor: #Takeda #bloodstreammedia #raredisease #bleedingdisorders #podcast

After my brother passed away, I became committed to helping this community however I could. @hemophiliafed’s Voice of the Community initiative is a chance for all of us to shape the next decade. I’ve signed up for a listening session. Have you? ➡️ https://t.co/1DQuyc9eXQ

“If we don’t know what’s normal, we normalize things that aren’t normal.” Chicken Soup for the Flow is available now (live at #HFM, part 2) FLOW with hosts @geniuspills + Sarah Watson Supported by @TakedaPharma https://t.co/M670tl4MpO

From belly dancing 🪩 to breakthroughs in pain management — the 2022 NASCC meeting set the stage for uniting pediatric & adult providers in sickle cell care. https://t.co/cK4Aot4uJ6 @AgiosPharma

The end goal? Clot formation to prevent bleeds. The new route? Treating bleeds differently—sometimes subtracting instead of adding. https://t.co/iudWJx2gZh Presented by @SanofiUS #bloodstreammedia #raredisease #bleedingdisorders #AskTheExpert #Hemophilia