Pheo Para Alliance
@PheoPara
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Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para
Joined October 2016
Thank you for helping us raise awareness about the rare #NETs disease, #paraganglioma, by sharing Jasmine's story. 📢.#pheo #para.
Every patient story is unique. 🔷Jasmyn from USA: “Most of my doctors had never treated a tumor like this in their careers, over 100 years of collective experience with no knowledge of #paraganglioma.” .☑️Watch her story: ☑️Help HCPs to prepare:
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🗓️Thur-July 31st!.Join #pheo #para #PPL #PHriends from around the 🌎 🌍🌏who can understand what you are going through. Register➡️@RareDiseases @NCFCancer @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @netcancerday @VHLAlliance @AMENDInfoUSA
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After learning more about PPA, JP has generously chosen us as the beneficiary of his Backyard Ultra 2025. 👟Details: *DISCLAIMER: Please consult with your medical team before participating in physical activity.
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RT @Jen71Marchetti: @RareDiseases @PheoPara Thank you for sharing. We recently implanted an early meeting to be more available to those who….
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RT @netcancerday: 👏Thanks to @PheoPara Alliance for providing a recap of the Patient Education Day 2025 at the Society of Nuclear Medicine….
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Such a great opportunity for health care providers to brush up on #NETs disease, including #pheo #para #PPGL! Thanks to #INCA for making this free CME opportunity available. 👏👏👏. @TheAACE @TheAAES @TheEndoSociety @Soc_Endo @aafp @PedsEndoSociety @SocietyGIM @ACPinternists.
The #ThinkNENs Global Education Program for #PrimaryCarePhysicians equips you with everything you need to recognize, diagnose, and support NEN patients in general practice. 📌Get your free CME credit today: #LetsTalkAboutNETs #MedTwitter #MedEd
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RT @isendo: 📣 #SLENDO2025 ABSTRACT SUBMISSIONS DEADLINE EXTENDED 📣. The abstract submissions deadline has been extended until Friday 4 July….
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Your #pheo #para #PPGL #PHriends wish you all the best in your careers & want you to know that we're here for you with lots of patient & clinician resources. Thank you for choosing #endocrinology‼️ 👏🎉.@CUDeptMedicine @LMFendo.
We are extremely proud of our graduating endocrine fellows. They are all off for great adventures in clinical care around Colorado and Washington. Thanks for letting us be part of your journey and you will always be part of our @CUEndocrinology family! .@CUDeptMedicine
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RT @RareDiseases: 🚨 Registration is OPEN for the 2025 #NORD Summit! Join #RareDisease leaders from advocacy, government, academia, and the….
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Speaking of genetics . 🧬🧬🧬.Did you know Up to 40% of #pheo #para #PPGL disease is hereditary? Make your voice known. 📢.
With #IndependenceDay near, exercise your voice! Use ACMG’s interactive State Policy Map to track genetics bills by state or topic. View bill details, sponsors & status - and advocate for responsible #genetics policy:
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Outstanding speaker choices 👏🌟🤩.Your #pheo #para #PPGL #PHriends hope #NETRF has a great #NETs patient/caregiver ed conference. 👉@JaydiDelRivero @helops79 @OncoThor @CureNETs
On July 26, connect with the neuroendocrine cancer community at NETRF’s 2025 Know Your NETs Virtual Patient & Caregiver Conference. Register now: . #NETRF2025 #KnowYourNETs #NeuroendocrineCancer #PatientSupport #CaregiverSupport
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RT @netcancerday: 🔶Dr. Mauro Cives @cives_mauro : “Single-cell and single-nuclei sequencing technologies will help researchers in gaining a….
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Missed our latest education webinar on pediatric #pheo #para #PPGL? Watch the YouTube recording with Drs. Ruth Casey & Christina Pamporaki as they share key insights & discuss the new consensus statement. 👉@PedsEndoSociety
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📢Today! July 1st (5:30pm PT/8:30pm ET).Join us for our monthly online #pheo #para #PPGL support group. Your #PHriends are waiting for you! 🤗.Register 👉@RareDiseases @NCFCancer @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @netcancerday.
🗓️ Tue, July 1st (5:30pm PT/8:30pm ET).Please join us as we share & connect about our #pheo #para #PPGL journey. Led by patients & caregivers, just like you. 🫂❤️.Register 👉 @RareDiseases @NCFCancer @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1
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