Neuroendocrine Cancer Foundation
@NCFCancer
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The Neuroendocrine Cancer Foundation (previously known as LACNETS) provides a community of support & education for those with neuroendocrine cancer.
Los Angeles, CA
Joined February 2010
Patients, caregivers, and healthcare professionals — your voice matters. Take part in the Survey of Challenges in Access for Diagnostics and Treatment for NET Patients (SCAN) 2025, available in 15 languages. 🗓️ Don’t miss your chance to make an impact — the survey closes
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If you live in the U.S. and are currently taking Zenpep for EPI, Opinion Health invites you to participate in a research interview*. The purpose is to learn about your experiences, including diagnosis, treatment, and ongoing care. The research will involve you taking part in an
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New Research Update: Promising Results for Alpha Therapy in NETs October 8, 2025 — Sanofi announced that its investigational treatment AlphaMedix™ (²¹²Pb-DOTAMTATE) met all primary goals in a phase 2 clinical trial, showing meaningful benefits for patients with
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🎧 Tune in to watch "Understanding Alpha & The Evolving PRRT Landscape" at 3:30 PM Pacific at https://t.co/5hOTRO0RHf
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☑️Register at https://t.co/5hOTRO0RHf The field of PRRT (Peptide Receptor Radionuclide Therapy) is evolving rapidly, and patients are hearing more about new developments like alpha therapies, the recent NETTER-2 and COMPETE trial results, and other advances. Join medical
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☑️Register for tomorrow's virtual event at https://t.co/3CYNg5HBRv Nutrition can play a key role in living well with neuroendocrine cancer (neuroendocrine tumors or NETs). Join NET dietitian Meghan Laszlo for an informative session on nutrition and diet considerations for people
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Watch @CarcinoidNETs' "The Strength of Support: the Shane and Ilka Peters Story." Watch here: https://t.co/2X1P9HuJPt "In 2020, Ilka had just made her son Shane her healthcare proxy. Admittedly, he wasn't ready for that role, or to even talk about fulfilling its
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"Blossoming", this Summer’s virtual retreat, invited neuroendocrine cancer patients and caregivers to pause, breathe, and appreciate oneself during a challenging diagnosis. In a safe, empathetic space, we combined gentle movement, mindfulness, artistic expression, and heartfelt
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Take some time to enjoy our Summer virtual Wellness Retreat* on Saturday, August 2, 2025, from 8:15 AM to 12:15 PM Pacific Daylight Time. The theme of the retreat is "Blossoming." Living with, or supporting someone living with, cancer can feel limiting and intimidating,
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One of the key aspects of one’s neuroendocrine cancer care is building your medical team, which typically includes a medical oncologist. In this episode, Dr. Sandy Kotiah, a medical oncologist from Mercy Medical Center in Baltimore, explains the role of a medical oncologist. She
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💻 Tune in today at noon Pacific. Patients share their experiences on topics, including decision-making, coping strategies, lessons learned, challenges, and navigating relationships while living with neuroendocrine cancer. Hear about their personal journeys—filled with
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Dusty finds strength through family connection, self-advocacy and learning as much as she can following her diagnosis of #NeuroendocrineTumors (NET). Watch as Dusty shares her experiences and the many sources of hope in her life.
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Join us for an inspiring event where patients open up about their personal journeys living with neuroendocrine cancer. Hear firsthand about: - Decision-making in treatment - Coping strategies & lessons learned - Navigating challenges & relationships - Finding hope & resilience
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It is with deep sadness that we share the passing of Dr. Richard R.P. Warner, who left us on June 15, 2025 in Denver, Colorado at the age of 97. A visionary physician and researcher, Dr. Warner founded the Carcinoid Cancer Foundation in 1968. His tireless work has touched
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Tune in today at 7:30 am Pacific to watch our biggest event of the year: the 2025 Annual Patient Conference. This year, the event features 19 experts! ▶️▶️▶️ Watch at https://t.co/ko95p5uEV5
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The Neuroendocrine Cancer Foundation's virtual annual conference is coming up! ➡️➡️Register now at https://t.co/ko95p5uEV5
@CarcinoidNETs @NANETS1 @HealingNET1 @netcancerday @CureNETs
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Register by May 10th! https://t.co/YYGh2iQDqa Join us in Santa Monica, CA, on May 17th for a patient conference. - Hear four presentations from neuroendocrine cancer experts. - Engage in two Q&A sessions. - Listen to a patient's story. - Learn about liver-directed therapy,
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Thank you @AmanChauhanMD for opening this important study!
If you would like to learn more about our recently launched high-grade neuroendocrine cancer study, please check out the brief primer linked below. Many thanks to @NCFCancer for the opportunity to discuss our study and for curating important clinical trial information on your
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