
Perlara
@PerlaraPBC
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Following
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Statuses
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https://t.co/fyNyv0FS57 The first biotech public benefit corporation est. 2014. Direct-to-patient and decentralized. Co-owner @epalrestat
Distributed / Slack / Meetups
Joined November 2013
Patients are the true limiting reagent in the crucible of drug development. It's time we recognize this reality, and build a care-to-cure system that rewards patients with both cures and upside
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RT @OnceUponAGene: Do you love the movie - Hackers? .Of course you do. Maybe you'll enjoy this story too. "She Found the Backdoor - One M….
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RT @eperlste: A little girl in Hong Kong with the rare genetic disease PIGN-CDG has been seizure-free for a year while taking ascorbyl palm….
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RT @paulkhls: Anyone who says DeSci is a scam is jaded by short termism and has lost the values that created Bitcoin and Ethereum. Solving….
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RT @eperlste: Let’s go parabolic in the final 24 hours of the $CURES auction 📈. $520,000 raised so far despite the market sentiment 💪. Max….
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RT @CDGCAREorg: CDG CARE is kicking off a new chapter with a brand-new Core Team and updated 2025 Board roles. Our passionate leaders are s….
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RT @ArcadiaScience: Happy Darwin Day! Today we’re thinking about how to use evolution to accelerate biomedical research. We think the answe….
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RT @srikosuri: It’s been a tough few weeks. My 10yo daughter was diagnosed with a very rare, aggressive cancer called interdigitating dendr….
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RT @Engineer_Health: Wow! Incredible working coming from @PerlaraPBC and @endrarediseases ! . Incredible Presentation! @cure4ars. #raredise….
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RT @OnceUponAGene: ✨ It Was Rare & I Was There ✨. Join us on Rare Disease Day + February 28th for an evening of connection, celebration, an….
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RT @0xMiraDAO: Hi team! I've been quiet since the last tweet on Monday. The reality is that during the week, it's hard for me to make a l….
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RT @endrarediseases: Curetopia community call tomorrow Jan 10 @ 3PM EST. We’ll discuss the upcoming $CURES governance token auction and how….
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RT @eperlste: 📣 Attention all rare disease warriors and DeSci enthusiasts in NYC:. Curetopia (@endrarediseases) launch party is next Wednes….
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RT @bioprotocol: > Watch @eperlste's talk from DeSci Berlin: > Learn more about Curetopia: .
curetopia.xyz
Join us on an odyssey of discovery as we attempt to eradicate rare genetic diseases for all humankind. Curetopia is a BioDAO powered by decentralised science and community medicines, focused on...
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RT @bioprotocol: New BioDAOs are cooking 🔥. Say hello to Curetopia (@endrarediseases), tackling the $1T Rare Disease space. There are arou….
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RT @eperlste: Excited to launch my first DeSci project/BioDAO called Curetopia!. If you’re a rare disease community member, scientist or cl….
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RT @endrarediseases: Curetopia invites you on an odyssey of discovery as we illuminate the dark matter of the human genome and attempt to e….
curetopia.xyz
Join us on an odyssey of discovery as we attempt to eradicate rare genetic diseases for all humankind. Curetopia is a BioDAO powered by decentralised science and community medicines, focused on...
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RT @DavidFajgenbaum: Did you know a simple derivative of vitamin C is transforming the lives of children with congenital disorders of glyco….
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RT @Lab_Pandey: We show significant changes in glycopeptide abundance along with alterations in glycosylation machinery, lysosomal and mito….
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RT @Lab_Pandey: Happy to present our paper on N-glycoproteomic and proteomic alterations in SRD5A3-CDG, a rare congenital disorder of glyco….
academic.oup.com
Abstract. SRD5A3-CDG is a congenital disorder of glycosylation (CDG) resulting from pathogenic variants in SRD5A3 and follows an autosomal recessive inheri
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RT @eperlste: Community medicine. A rebel alliance of rare parents united as the PIGN-CDG Cure Collective to fund a drug repurposing projec….
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