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Perlara

@PerlaraPBC

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5K
Following
8K
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426
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https://t.co/fyNyv0FS57 The first biotech public benefit corporation est. 2014. Direct-to-patient and decentralized. Co-owner @epalrestat

Distributed / Slack / Meetups
Joined November 2013
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@PerlaraPBC
Perlara
2 years
Patients are the true limiting reagent in the crucible of drug development. It's time we recognize this reality, and build a care-to-cure system that rewards patients with both cures and upside
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@PerlaraPBC
Perlara
2 months
RT @OnceUponAGene: Do you love the movie - Hackers? .Of course you do. Maybe you'll enjoy this story too. "She Found the Backdoor - One M….
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@PerlaraPBC
Perlara
4 months
RT @eperlste: A little girl in Hong Kong with the rare genetic disease PIGN-CDG has been seizure-free for a year while taking ascorbyl palm….
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@PerlaraPBC
Perlara
5 months
RT @paulkhls: Anyone who says DeSci is a scam is jaded by short termism and has lost the values that created Bitcoin and Ethereum. Solving….
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@PerlaraPBC
Perlara
5 months
RT @eperlste: Let’s go parabolic in the final 24 hours of the $CURES auction 📈. $520,000 raised so far despite the market sentiment 💪. Max….
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@PerlaraPBC
Perlara
5 months
RT @CDGCAREorg: CDG CARE is kicking off a new chapter with a brand-new Core Team and updated 2025 Board roles. Our passionate leaders are s….
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@PerlaraPBC
Perlara
5 months
RT @ArcadiaScience: Happy Darwin Day! Today we’re thinking about how to use evolution to accelerate biomedical research. We think the answe….
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@PerlaraPBC
Perlara
6 months
RT @srikosuri: It’s been a tough few weeks. My 10yo daughter was diagnosed with a very rare, aggressive cancer called interdigitating dendr….
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@PerlaraPBC
Perlara
6 months
RT @Engineer_Health: Wow! Incredible working coming from @PerlaraPBC and @endrarediseases ! . Incredible Presentation! @cure4ars. #raredise….
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@PerlaraPBC
Perlara
6 months
RT @OnceUponAGene: ✨ It Was Rare & I Was There ✨. Join us on Rare Disease Day + February 28th for an evening of connection, celebration, an….
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@PerlaraPBC
Perlara
6 months
RT @0xMiraDAO: Hi team! I've been quiet since the last tweet on Monday. The reality is that during the week, it's hard for me to make a l….
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@PerlaraPBC
Perlara
7 months
RT @endrarediseases: Curetopia community call tomorrow Jan 10 @ 3PM EST. We’ll discuss the upcoming $CURES governance token auction and how….
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@PerlaraPBC
Perlara
7 months
RT @eperlste: 📣 Attention all rare disease warriors and DeSci enthusiasts in NYC:. Curetopia (@endrarediseases) launch party is next Wednes….
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@PerlaraPBC
Perlara
7 months
RT @bioprotocol: New BioDAOs are cooking 🔥. Say hello to Curetopia (@endrarediseases), tackling the $1T Rare Disease space. There are arou….
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@PerlaraPBC
Perlara
7 months
RT @eperlste: Excited to launch my first DeSci project/BioDAO called Curetopia!. If you’re a rare disease community member, scientist or cl….
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@PerlaraPBC
Perlara
7 months
RT @DavidFajgenbaum: Did you know a simple derivative of vitamin C is transforming the lives of children with congenital disorders of glyco….
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@PerlaraPBC
Perlara
7 months
RT @Lab_Pandey: We show significant changes in glycopeptide abundance along with alterations in glycosylation machinery, lysosomal and mito….
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@PerlaraPBC
Perlara
7 months
RT @Lab_Pandey: Happy to present our paper on N-glycoproteomic and proteomic alterations in SRD5A3-CDG, a rare congenital disorder of glyco….
Tweet card summary image
academic.oup.com
Abstract. SRD5A3-CDG is a congenital disorder of glycosylation (CDG) resulting from pathogenic variants in SRD5A3 and follows an autosomal recessive inheri
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@PerlaraPBC
Perlara
7 months
RT @eperlste: Community medicine. A rebel alliance of rare parents united as the PIGN-CDG Cure Collective to fund a drug repurposing projec….
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