
CDG CARE
@CDGCAREorg
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45
CDG CARE is a nonprofit organization founded by parents to support families affected by Congenital Disorders of Glycosylation.
Joined March 2020
RT @RareRevolutionM: Why do CDGs matter? 🧬.📉 Rare and underdiagnosed .🩺 Life-threatening & medically complex .🚫 No approved treatments .😔 O….
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RT @RareRevolutionM: 🚨 It’s CDG Takeover Day! 🧬 @CDGCAREorg is taking over Rare Revolution's channels to spotlight Congenital Disorders of….
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RT @RareRevolutionM: We’re @CDGCAREorg 💚— a U.S.-based non-profit supporting children, families & researchers impacted by Congenital Disord….
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RT @dunckerUAEM: #CDGAwareness Day. Science in #RareDisease is urgent, personal, and deeply human. In studying Congenital Disorders of Glyc….
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RT @RareRevolutionM: Here’s how @CDGCAREorg helps: .🔬 Research – We fund gene therapy, drug repurposing & natural history studies .📚 Educat….
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RT @RareRevolutionM: Because glycosylation is so critical, CDGs can lead to complex, multi-system symptoms like: .⚡ Developmental delays .🧠….
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RT @RareRevolutionM: Thank you to @RareRevolution for today's powerful #CDGTakeover! 💚.Here’s how to keep the #WorldCDGDay momentum going:….
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Curiosity drives discovery. but without funding, the future of science hangs in the balance. This Radiolab episode is a powerful reminder of what's at stake.
radiolab.org
How a tiny worm that loves hot water changed the trajectory of modern science.
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🌍 Today is Undiagnosed Day, a reminder that for many rare disease families, the search for answers can take years, even decades. In this thoughtful piece, @dunckerUAEM shares the systemic barriers, emotional toll, and scientific breakthroughs shaping the diagnostic journey. .
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RT @MexicoCdg: ¡Únete al movimiento! Este 16 de mayo, el mundo se pinta de verde #CDGGOGREEN @CDGCAREorg
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RT @ChanZuckerberg: At our new #CZBiohub, experts are uniting under one vision: build a first-of-its-kind imaging tool for understanding th….
axios.com
Next-generation imaging tools could give researchers a better understanding of the processes that govern cells, especially when they go awry due to disease.
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