Bottsie Hicks
@BottsieHicks
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ME/CFS since 2007 ~ I miss my life
Joined October 2016
@OpenMedF. aka My Dreams-Come-True Team. is 1/3 of the way to doing this phenomenal large-scale #MECFS BIOMARKER STUDY!!.Only $1,600,000 to go!. ✳️Learn more ✳️Donate to BioQuest . ✳️Please donate if you can and SHARE! 🙏.
ICYMI ‼️ Thanks to two generous grants, we've secured $800,000—one-third of our goal—to initiate a large-scale ME/CFS biomarker study!. Learn more 👉 Help us reach our goal of testing 1,200 samples. Donate to BioQuest 👉
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RT @TomKindlon: From Sweden:.Beneficial effects of intermittent intravenous saline infusion in dysautonomic patients with #MyalgicEncephalo….
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RT @NeurologistMom: Do you have a question for a rare expert on tick-borne diseases for her Tick Talk? If so, please leave it in the commen….
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RT @ValeBodi: ME is as complex and mysterious of a disease, as its decades long mischaracterizations and neglect. If you know enough about….
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RT @NeurologistMom: This is a dynamic condition, and the approach should be dynamic too. There were times my daughter needed cromolyn sodiu….
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RT @KatyBruce108: I sent the🔗@ABrokenBattery's really excellent📽️ "#ME/CFS Scandal Explainer" to someone who's job it is to help those who….
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RT @NeurologistMom: This is the first in decades in the field of postviral illnesses. @BatemanHorne has created a guideline for HCPs on how….
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RT @JackHadfield14: Interesting paper - simple breakdown 🔬. At rest, the ME/CFS fluid had extra serine (a protein building block) and less….
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RT @IsabelRamirezRD: Today’s clinician’s roundtable was so great. I’m downloading to get on YT asap. Cant wait for you all to see it.….
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Thank you @lifeanalytics for thinking of us at what I'm sure was a peaceful moment for you. for having us #pwME and #pwLC there with you. Most do not understand just how precious the seemingly smallest things in life really are. Bless you! 🙏🫶🙏.
I rarely make posts like this one, but yesterday I was at this beautiful spot and felt grateful for being able to do so. Not long after, I thought about all of those patients who are unable to have a normal life. No stopping until a solution is found. #MECFS #LongCOVID
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I wish I were able to participate. please do if you are able!.Study Eligibility: .-Be 18 years or older .-Have a formal diagnosis of Long Covid, ME/CFS or Post Treatment Lyme Disease .-Live near NYC; be able to come in person for 5 visits over 12 weeks.
Now recruiting! Lumbrokinase trial for Long Covid, ME/CFS and PTLD patients will “see how taking the enzyme impacts blood clotting, fibrin & other parameters over the course of the study… We should gain more info on which kind of patient Lumbrokinase can benefit.” Email
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RT @CureLongCovid: @MaskedHottiee Our Long COVID clinic continues to receive about 100 new referrals a month. The people infected from the….
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RT @mecfsskeptic: 1) The Canadian research group of Alain Moreau published a big study on Sphingomyelin phosphodiesterase acid-like 3B (SMP….
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RT @JackHadfield14: We’ve just received samples for the @amaticahealth batch 2 and our next project all the way from New Zealand. New Zea….
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RT @MECFSSD: New ME/CFS biomarker: SMPDL3B 🧬.A large study finds SMPDL3B, a gene involved in immune-regulating lipid metabolism, is altered….
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RT @OpenMedF: OMF StudyME is a free global recruitment tool that connects individuals interested in participating in research studies with….
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RT @BatemanHorne: “We’ve taken the initiative to say what needs to be said about ME/CFS, Long COVID & IACCS.” – Dr. Bateman.One Guide. One….
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Could this apply to #MECFS? .@NIHDirector_Jay .The study at NYU Langone Health found that a chemical precursor to a commonly available enzyme, CoQ10, can help brain cells overcome a genetic condition that impacts the cells’ energy production process. ✳️
“A dream come true”: A child walks again after breakthrough treatment for a rare genetic disorder—thanks in part to NIH-funded research. Scientists at @nyulangone discovered that a CoQ10 precursor can help brain cells restore energy production, offering new hope for families.
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RT @NIH: “A dream come true”: A child walks again after breakthrough treatment for a rare genetic disorder—thanks in part to NIH-funded res….
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RT @ahandvanish: Prof Alain Moreau presents a prognostic panel of 10 circulating miRNAs + RFM that predicts whether #LongCovid patients wil….
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RT @IsabelRamirezRD: Take the time to sign up for this research recruitment tool through OMF. We at @RenegadeRes will be recruiting for….
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