Bottsie Hicks
@BottsieHicks
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ME/CFS since 2007 ~ I miss my life
Joined October 2016
(Oct. 31, 2025). Miriam E. Tucker. Medscape. No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
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Anyone with ME/CFS and the spoons to do so, please fill out this series of polls about how you have responded to anesthesia. This is one of three similar poll series’s planned and the team has worked hard putting them together. A million thanks in advance for your effort!!
1/16 This is a thread with 14 polls about responses in patients with ME/CFS (from any trigger, including COVID-19) to anesthesia / sedation / numbing (including dental). Please ONLY fill this one out if you meet the Canadian Consensus Criteria for ME/CFS. We appreciate people
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1/16 This is a thread with 14 polls about responses in patients with ME/CFS (from any trigger, including COVID-19) to anesthesia / sedation / numbing (including dental). Please ONLY fill this one out if you meet the Canadian Consensus Criteria for ME/CFS. We appreciate people
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I LOVE this study It’s decentralized, fully remote, inclusive of people home and bed bound, it’s interventional (!!) and the compensation is great Join today! Don’t miss this opportunity! ❤️❤️❤️❤️
⏰ 21 Hours Left to Enroll in #LongCOVID Wellness Study ⏰ 🦸 Make #LongCovid History 💪 👀 When have you last heard of a clinical trial with well over 700 enrollees in 4 weeks??? 🧑🔬 "We are Making Science Move at the Speed of TRUST" 🔬 ✅ Have you enrolled in this historic
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The status of RECOVER-VITAL. Dr. Lindsey Baden is the PI for this trial. This trial tested an extended course of Paxlovid (nirmatrelvir and ritonavir). 964 people participated at 69 sites across the US. 1/
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He died from Long COVID today. His words: “I’ve experienced more discrimination and stigma for being openly disabled by #LongCovid than I ever did for being openly gay” When will the gaslighting stop? How many more need to die?
New York designer Derrick Kardos, known for Black Swan and The Departed, has died at 53 from complications of Long COVID. He was a fierce creative force and advocate for Long COVID recognition. https://t.co/uWnFSYAANJ
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Please check your spam or junk folders for emails from @ICanCMEResearch. Mine are showing up in my spam folder. If you are not getting any emails, you may want to check with them to make sure your email was written correctly.
Please check your spam or junk folders for an email from ICanCME if you haven’t received your link yet for part 2 of the registration. :) Also, we had some missing emails and some that were rejected for being written incorrectly (missing the @ sign for example).
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Thank you for the opportunity to share this proof-of-concept work, @CPTJournal. @wearlumia @4Workwell
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If you are interested or have questions about the study, contact: Johanna Squires jsquires1@bwh.harvard.edu (617) 525-6797 $350 compensation #MECFS #LongCovid
Post-Exertional Malaise (PEM) Muscle Biopsy Study with Dr. David Systrom is recruiting at Brigham and Women's Hospital in Boston, MA. 1/
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Inclusion criteria: ✅18-75 years old ✅Meet National Academy of Medicine Criteria (NAM), for diagnosis of ME/CFS (for the ME/CFS group) ✅Symptoms started after confirmed SARS - CoV - 2 (Long COVID group) ✅Prior clinical invasive cardiopulmonary exercise test (iCPET) since 2014
Post-Exertional Malaise (PEM) Muscle Biopsy Study with Dr. David Systrom is recruiting at Brigham and Women's Hospital in Boston, MA. 1/
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Statistik & Karten: ME/CFS, Long Covid, Post Vac - 650.000 Erkrankte brauchen mind. 1 Milliarde Forschungsgelder! - Online-Petition
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You should get an email confirmation and link to register for zoom for the @ICanCMEResearch conference November 4-6, 2025. ‼️Do NOT share the Zoom links publicly! ‼️
Just a heads up though to please not share the Zoom links publicly, when you receive them. 🙏 We actually need everyone to register here to attend (step 1), for privacy law compliance in Canada. 👇 https://t.co/WHvci3Sx41
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The WE&ME Foundation (@weandmecfs) and WWTF are launching the ME/CFS Fellowships 2026 — funding 6-month research stays with up to €40,000 per fellowship (total €200,000). A great opportunity to connect people and to advance ME/CFS science. (Link with specifics in the comments.)
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Join ICanCME for their Canadian Collaborative Conference on Myalgic Encephalomyelitis: Nothing About Us Without Us. Learn more and register at https://t.co/uYAdNoyOeQ
@ICanCMEResearch
icancme.ca
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I got my email confirmation and link to register for zoom yesterday for the @ICanCMEResearch conference! ✳️Still time to register...starts next week!!
@TeamPostX The emails have started to go out. It may take another 24 hours for everyone to receive them though so please be patient with us.
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PrecisionLife’s Bold Attempt to Break the Code on and Beat ME/CFS and Long COVID #MECFS #longCOVID
healthrising.org
Geoff’s Narration The GIST This is the next in a series of blogs exploring ongoing projects in ME/CFS, FM and long COVID. The first featured the RECOVER project’s next set of long COVID clinical...
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This is so true. And largely an impossible task for a child. We try our best to keep our son optimistic so he survives into an age range where he can learn the skills Whitney describes.
My life is a math equation. I live every moment by this: X energy use = Y outcome. I evaluate every single tiny thing I do based on this equation, often with long, in depth analysis. Imagine being healthy, not having this equation, and just acting on every impulse w/out thought🤯
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Statistik & Karten: ME/CFS, Long Covid, Post Vac - 650.000 Erkrankte brauchen mind. 1 Milliarde Forschungsgelder! - Online-Petition
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A pilot version of a Medical Education Hub developed by World ME Alliance. https://t.co/2GYXfLAjuD Screenshot from latest Science for ME weekly update #MEcfs #CFS
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