MedicsforRareDisease
@MedicsForRare
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This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare
United Kingdom
Joined February 2014
Please continue to follow our work on Bluesky and Instagram 💙
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Today Helen is over at the @RCPCHtweets conference! If you see her make sure you say hello! #RCPCH2025
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Be #Ataxia aware at #Swansea #RareDisease Study Day - Saturday 8th March Unlock the mysteries of rare diseases booking link: https://t.co/5KXhhLTvAs
@SwanseaUni / @MedicsForRare #SwanseaRDStudyDay
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Read the England Rare Diseases Action Plan 2025
gov.uk
The fourth action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.
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Dr Daybell is also an ambassador for @MedicsForRare, a charity helping to drive rare disease awareness. Its campaign #ShowYourStripes on @rarediseaseday today encourages medics to wear stripey socks in support. Read the full interview here: [5/5] https://t.co/qlekHVk4YW
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Check out our Ambassador and Paralympian legend in this piece by @Seren_Boyd @ParalympicsGB #ShowYourStripes #RareDiseaseDay
Table tennis star @KimDaybell was at the peak of his career and preparing for his third @ParalympicsGB games... But he shelved his sporting dreams to work full-time as a doctor in Covid and retired from his sport soon after. Has it all been worth it? @Seren_Boyd asks [1/5]
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Dr Emma Huskinson is featured in the @Telegraph today about the Red Flags of Rare Disease study. While innovation in diagnostics and treatment march on healthcare professional training has been left behind. HCPs need to know when and how to suspect undiagnosed rare conditions
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We have a vision of equitable healthcare for all. Our mission is to shape a medical profession that can provide timely diagnosis and excellent care to people living with rare conditions. Today is the day to raise awareness #RareDiseaseDay #ShowYourStripes
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Our CEO, Dr Lucy McKay, had the pleasure of meeting Mr Peter Dowd MP yesterday and handed him some of our socks. Peter is the new Chair of the Rare, Genetic and Undiagnosed conditions APPG. We look forward to working with you! #ShowYourStripes #RareDiseaseDay
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We couldn't be happier...that Ashley Dalton received her socks & chose to wear them to the @GeneticAll_UK Parliamentary Reception yesterday to mark #RareDiseaseDay. Her passionate speech was energising & we look forward to working together #ShowYourStripes Thank you Ashley!
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Thank you to @marketingmerch for being so helpful and supportive in the creating of our beautiful campaign socks. This was a big 'step' for us and we're so glad we took it with you #ShowYourStripes
🧦💜 This Rare Disease Day, we’re thrilled to see @MedicsForRare using their branded socks to get involved and #ShowYourStripes! 🎗️✨ Join the movement to raise awareness for rare diseases—every stripe tells a story. 💙💜💚 #RareDiseaseDay #ShowYourStripes #BrandedMerchandise
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At #Ataxia #RareDisease patient #charity we support #ShowYourStripes for @MedicsForRare
#RareDiseaseDay (28th February) Find out more at https://t.co/O4PrDl7WWQ
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#Whitechapel is where it all began for this charity. The founder Trustees studied medicine at The Royal London Hospital - now the Tower Hamlets Town Hall. "It is a beautiful place to study & work, with such a unique & rich history of cultural diversity" - Dr Lucy McKay, CEO
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#FindYourPower at Swansea #RareDisease Study Day - Saturday 8th March Ready to unlock the mysteries of rare diseases? Eventbrite / booking link: https://t.co/5KXhhLTvAs
@SwanseaUni / @MedicsForRare
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Medics for Rare Disease may be a small charity, but it is making a huge impact! Medics4RareDiseases is evolving. They are excited to announce a refresh of their strategy, a relaunch of their branding and even a new name! Read here: https://t.co/U21v5jhAtH
@MedicsForRare
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Medics4RareDiseases is evolving. We are excited to announce a refresh of our strategy, a relaunch of our branding and a new name! We spent much of the last year working alongside our partners, @emotive__agency to ensure we are harnessing that growth! Take a look!
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Sorry to see the Parliamentary debate become focused on genetic research, AI and university networks. Rather than carrying on the original focus of acknowledging patient experience, the need for good standards of basic level of care and HCP training @HouseofCommons #RareDisease
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Thank you to @JimShannonMP for highlighting the challenges faced by the millions of people in the UK living with rare condition - many of which are preventable or able to be alleviated with HCP awareness #ThinkRare #RareDisease
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