MEcfs together
@MEcfsTogether
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I retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM / #MEcfs #pwME #millionsmissing
Joined December 2019
Follow, if you want to be part of coordinated online activism for ME awareness. I will push our hashtags, retweet polls (like Bill Gates movie list), encourage the community to write comments under some tweets, ... #MEcfs #pwME #ME #myalgicE #millonsmissing
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.@Flying__Doc ich finde es sehr erfreulich, dass Sie über #LongCovid sprechen. Vielleicht möchten Sie in dem Kontext ihr Wissen zu #MECFS aktualisieren? Da waren vor ein paar Monaten leider noch wichtige Lücken zu erkennen. Das wäre vermutlich interessant
Die @ChariteBerlin und @TU_Muenchen führen mit Unterstützung der Dt. Ges. für ME/CFS am 10. Februar eine Online-Fortbildung über ME/CFS für Ärzt:innen durch. Es können 3 Fortbildungspunkte erworben werden. ℹ️ https://t.co/mlAOlnQ6iN
#MedTwitter #Twankenhaus #MECFS #LongCovid
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@elonmusk Hey @elonmusk , a great way to help is by donating to @OpenMedF or @polybioRF . Even small amounts would make a big difference! #MECFS is the worst chronic disease with at the same time lowest governmental funding. Please help us!
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📢📢📢📢WICHTIGE UMFRAGE❗️❗️❗️❗️ „Patientenbedürfnisse neu denken - Alltag mit Erkrankung sichtbar machen” Bitte mitmachen und klarstellen, wie katastrophal die Lage für uns #pwME ist! Auch retweeten! #MyalgicE #MECFS 👉 https://t.co/bA296DRjSn
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#Twankenhaus steht scheinbar auch nur für medical gaslighting und victim blaming
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Für Mitglieder der @gwup ist kritisches Hinterfragen der gemeinsame Nenner. Mal schauen ob das hier auch für Seine eigenen unwissenschaftlichen Ansichten gilt, oder ob der Stolz und die Emotionen dies nicht zulassen. Let's see: @RemindMe_OfThis in 2 weeks.
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Please help Walker. He‘s about to have a craniocervical fusion. This is a major surgery with a brutal recovery, and Walker needs funds to support his healing on the other side: safe housing for #MCAS and pain management. $4,500 and he’ll meet his goal. RT!
gofundme.com
We all worked together to make this webpage that explains why his care req… Sofia Burnham needs your support for Help Walker find secure housing post surgery
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In honor of Invisible Disabilities Week, we take a look at a day in the life of a person with #MyalgicEncephalomyelitis or #ME, formerly known as chronic fatigue syndrome #CFS. Meet Sanna Stella and learn more about #MEcfs👇 #MillionsMissing #MEcvs
https://t.co/VlJ6ImSOJI
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A quick illustrative explanation of how 30 years of psychiatric monopolisation of ME/CFS has left post-viral illnesses in the predicament they are in today: #millionsmissing #longcovid #health #medtwitter #teamGP #MedStudentTwitter Credit: @MillionMissCan
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From, note, the 'Femail on Sunday', 1993: the casual torture of a 13 y.o. boy (Ean Proctor) with ME by psychiatrists. "Treatment included being thrown in a cold swimming pool to see if he could save himself, and being taken on a ghost train to frighten him out of his condition."
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I miss my brother René endlessly. I am so sad that he lost the fight against #MyalgicE. He hoped to get well again until the last day. Pls sign this petition for research and treatment: https://t.co/hHtkKkOtar
change.org
Patienten mit Myalgischer Enzephalomyelitis (ME) benötigen Forschung & med. Versorgung!
❗️TRIGGER ALERT. Another patient with severe #MECFS has passed away. 26-year-old René Mebus from Crailsheim, Germany, was BSc in mechanical engineering and involved in the voluntary fire brigade before he became ill. He died on June 30. Rest in peace. https://t.co/uB5zOX32Ka
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1) It seems like there is some good news from Germany. Two federal agencies, namely the Federal Ministry of Education and Research (BMBF) and the Federal Ministry of Health (BMG) have announced initiatives for ME/CFS.
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Number 1 of Twitter trends is our goal for #meawarenesshour
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Das ist der persönlichste Text, den ich je geschrieben habe. Aber es geht nicht um mich, sondern um meine Freundin und andere #MECFS-Kranke, für die es bislang keine Heilung gibt. Die nur hoffen können - ausgerechnet durch #Corona, @PNN_de @Tagesspiegel
https://t.co/MA14huLXdr
tagesspiegel.de
Erst war es ein Kratzen im Hals. Bald konnte Nora kaum noch aufstehen, kaum sprechen. Eine Heilung gibt es nicht. Doch wegen Corona bald vielleicht mehr Fälle.
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Saw comment by a #LongCovid person who said they don’t go on Twitter coz the #LongHauler tweets have been “hijacked by the #ME lobby, & they’re fed up with it”. Another kick in the guts for those with #MyalgicE. All we’re doing is trying to help & advise so they DON’T GET #ME!
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