Kidney Patient Involvement Network (KPIN)
@KPIN_UK
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A network of kidney organisations, charities & people committed to quality patient & public involvement & engagement (PPI/E). #GetInvolvedKPIN
United Kingdom
Joined April 2020
Are you living with a kidney transplant and prescribed immunosuppressants? We need you! đ˘ Help us better understand your experiences of taking medication. Visit https://t.co/hHg2OSfckQ to get involvedđ§
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Colleagues please can you share. We have an exciting face-to-face meeting in Leicester. We are keen to promote to women with kidney disease who may want to attend. Get in touch for more information @PophamKidney @nkf @Kidney_Research @PKDFoundation @KidneyWales @kidneycareuk
Are you a woman living with kidney disease? Do you have children, are you planning to have children, or are you yet to decide? This is for you! Contact Leah : l.mclaughlin@bangor.ac.uk Please share widely, we are so looking forward to meeting you!
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We are currently supporting Researchers from @UHSFT who are looking for people who have experienced acute kidney injury (or who have cared for someone who has) who would be willing to share their experiences of their care after hospital discharge. https://t.co/WTVXMzS7LV
kpin.org.uk
Researchers from University Hospital Southampton are looking for people who have experienced acute kidney injury (or who have cared for someone who has) who would be willing to share their experien...
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@Kidney_Research @KPIN_UK Calling women living with kidney disease! Please share widely, we need to hear your thoughts and experiences to help women like you. Contact Leah : l.mclaughlin@bangor.ac.uk Looking forward to hearing from you!
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If youâre between 11-20 years old and live in the UK, please have a read about the work Silene is doing and get in touch with her if youâd like to help design her research project! #exercise #mentalhealth #ckd @KPIN_UK @queenofdialysis @kidneybeam_
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We are currently supporting @currie_moore in setting up this group, and she is especially interested in hearing from male carers. If you or someone you know is interested, please contact her via the email address below. #GetInvolvedKPIN
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We're currently supporting a researcher to set up a PPI group to help develop a point-of-care kidney function testing pathway, which will allow rapid optimisation of medications. Visit our website for further information & contact info:
kpin.org.uk
We are currently supporting a researcher to set up a PPI group to discuss, give feedback and help develop a point-of-care kidney function testing pathway, which will allow rapid optimisation of...
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If you have had experience of #Calciphylaxis, or you care/have cared for someone who does, we'd like to hear from you regarding a research study aiming to better understand what it's like to live with this condition.
kpin.org.uk
Prof Smeeta Sinha and Dr Sharon Huish are looking to identify patients with (or who have had) calciphylaxis for a new study evaluating patient experiences. They would like to hear from people who...
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Brilliant! Thanks for including KPIN members in this research! #GetInvolvedKPIN
â¨Very excited to share my latest paper⨠đTake a look if you are interested in understanding what professionals think about implementation of e-mental health interventions for caregivers https://t.co/bJNwnHIiIA
#CFIR #implementation #iCBT #eMentalHealth #caregivers
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If you have experience of both #ChronicKidneyDisease & #HeartFailure then you may be interested in the below opportunity, led by a researcher from St Georgeâs University NHS Foundation Trust. #GetInvolvedKPIN
https://t.co/3PpbSqdWrI
kpin.org.uk
Impact of at-home subcutaneous furosemide in heart failure patients with chronic kidney disease on prevention of hospital admission; a randomised controlled, non-inferiority trial. We are supporting...
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Had a great weekend attending my first @goKDIGO event in Madrid, a CKD-MBD Controversies Conference. Great to see patient involvement happening internationally & at this level. @KPIN_UK @SmeetaSinha @huish_sharon
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@LOROSHospice @uniofleicester Info collected will help improve training for healthcare professionals, and the care they provide for patients and their families at the end of life. If you are interested in taking part or would like more info, please contact the LOROS Research Team: research@loros.co.uk 2/2
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Researchers at @LOROSHospice & @uniofleicester would like to speak to bereaved family carers of patients who had Dialysis Dependant Kidney Disease from ethnically diverse backgrounds. 1/2
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Has your #kidney centre received a PREM resource pack yet? Keep an eye out for posters, business cards & stickers đ Itâs time to get your team involved: help us by distributing the resources & raising awareness of PREM 2023 opening soon. Learn more âĄď¸ https://t.co/kEYfUmunQO
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A study funded by the @NIHR at the @uniofleicester is investigating the role of pharmacists in managing chronic kidney disease. They are looking for people living with chronic kidney disease and their carers to participate in a short online survey đđ https://t.co/Dmrag3xhh8
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PatientView has now closed. The viewing of test results for kidney patients has moved to a system called Patients Know Best: https://t.co/OXstDKTxuY For FAQs about the switch: https://t.co/jmSHqPkTBw For info about the break in service for NI & Scotland: https://t.co/ehqrIPUdvR
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Apologies to anyone currently trying to access our website. We are experiencing some technical difficulties and hope to be back online again soon.
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We are supporting the @Kidney_Carers project & are looking for family, partners & friends of people living with a kidney condition to take part in an interview! Share your experiences of getting support & views about online support programs. See the below poster for further info.
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