This enduring educational program was supported through a sponsorship from Otsuka. The content was developed independently by the PKD Foundation to ensure high-quality education and support for the PKD community.

This was part two of our four-part series, "Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines." Stay tuned for the next session as we continue exploring the new KDIGO guidelines for ADPKD.

Missed our webinar, “Managing ADPKD: Treatments, Lifestyle, & Living Well?” The full recording is now available:

Reach out to the PKD Foundation. We can provide you with a mentor or access to community meetings offering support and education. “I've had a mentor for years, and she is there for me in every way,” Lebowitz says.

Find a support group. “Exchanging information can be empowering and life-changing,” says Lebowitz who is an ambassador of the PKD Foundation’s New York City Community.

Exercise. It helps both physical and mental health. Get mental health care. Most COEs have mental health practitioners who are also experienced in PKD or can refer you to a clinic with one.

Don’t let anyone tell you that your pain is in your head. When Lebowitz felt her regular nephrologist wasn’t listening to her, she went to a Center of Excellence (COE) where she was taken care of more holistically.

Ask your health insurance company for support. Lebowitz was connected with a renal nurse through hers. “I meet with her as often as I want, and she has been a lifesaver.”.

In our latest issue of PKD Life, Linda Lebowitz, a PKD Connect Ambassador of the New York City Community, shared her tips for becoming your own self-advocate when navigating the medical field. 🧵⬇️

Congratulations to our 2025 PKD Foundation research grant and fellowship recipients! . This year, we're proud to invest $2 million in ten research projects and three fellowships. Explore this important research and it's impact at

RT @n0r0zha: ✅ Check out a few nice slides on managing ADPKD from today’s PKD Foundation Part 2 Webinar, presented by Dr. Fouad Chebib. @PK….

RT @n0r0zha: ✅ Check out a few nice slides on ADPKD lifestyle from today’s PKD Foundation Part 2 Webinar, presented by Dr. Pranav Garimella….

Don’t miss our webinar, “Managing ADPKD: Treatments, Lifestyle, & Living Well,” happening this Tuesday, June 24. Gain expert insights into the latest KDIGO recommendations for ADPKD management. Let us know you’re coming!

Want the latest PKD updates, news, and resources sent directly to your phone?Want the latest PKD updates, news, and resources sent directly to your phone?. Text ENDPKD to (816) 281-6072 to opt-in for PKD Foundation text messages.📲. Message and data rates may apply.

We're proud to have earned the Platinum Seal of Transparency from Candid along with our Charity Navigator 4-star organization rating. Over the past year, we've maintained the highest ratings a nonprofit can achieve underscoring our commitment to the trust of our supporters.

Raise $100 or more to earn your 2025 Walk for PKD t-shirt! Deadline is August 4 to receive your shirt before Walk for PKD events begin across the country! Register today at

Did you know some of your other health issues may be caused by PKD? Outside of the kidneys, PKD can affect and cause damage to many other parts of the body. Learn more about the potential related health complications of PKD at

This webinar is supported by a sponsorship from Otsuka. The PKD Foundation retains full control over the content and speaker selection to ensure unbiased, high-quality education for our community.

Register for our upcoming webinar, to learn about. ➡️ Tolvaptan and other treatment options.➡️ Lifestyle and dietary changes that support kidney health.➡️ Strategies for pain management and mental well-being.➡️ The importance of multidisciplinary care.

In Episode 2 of PKD Chronicles, we sit down with Lisa Smallwood Belk and Alix Piccirilli. They explore how the power of community, open communication, and self-advocacy can significantly help people with PKD and their loved ones. 🎧 Listen now: