Jonelle Elgaway
@JonelleElgaway
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Following
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Advocate for Doctor/Patient Rts thru EDUCATION & LEGISLATION on #opioids #pain / Executive Director /
Carolina Beach, NC
Joined February 2016
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Pinned Tweet
Sign up for PAIN ROUND TABLE at cpproundtable
@gmail
.com. Info Needed:
first/last name
email
cell
state you live in
#cpp
#opioids
#PainRoundTable
#chronicpain
#pain
#health
#WeR1
#StrengthInUnity
#advocate
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This is the FIGHT of my LIFE.
FOR my LIFE.
And I REFUSE TO LOSE!
WHO’S WITH ME?
#WeR1
#cpp
#opioids
#NationalPainCouncil
#NPC
@ThomasKlineMD
@DocBearOMD
@JulieDavisson3
@BethDarnall
@CMerandi
@ljluvsbuterflys
@EndPainStigma
@CanadaPain
@ravensspirit68
@TheRebelPatient
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373
646
Spent over 4 hours w/ my new doctor. He was kind/compassionate.
Together we came up w/ a game plan for my treatment. He even called a pharmacy that has agreed to fill new scripts.
Thx
@ThomasKlineMD
for all ur hard work helping all
#NC34
to find proper care.
#WeR1
#PatientsUnited
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The Tide is Changing: Another State Passes Legislation to Hold Clinicians Blameless for Treating Severe Chronic Pain with opioid analgesics.
#Colorado
#legislation
#opioids
#ChronicPain
#pain
#advocate
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Feeling blessed. Dr. Kline’s doctor called me last night and I have an appointment for Friday.
Feeling relieved and just so thankful.
Thank you to everyone that kept me in their prayers. This has been a nightmare.
It shouldn’t have happened.
I’m blaming NCMB.
They were negligent.
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My friend is getting euthanasia Saturday. Its so final. And its all because she asnt able to get the correcr medications.
#euthanasia
#cpp
#chronicpain
#fyp
25
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173
State of
#Maine
pushing to become first opioid free.
#prescritption
#medication
#dhs
#dea
#SchmidtInstitute
#cancer
#legislation
#advocate
#opioid
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170
My doctor wants me to go to the ER to get iv fluids & antibiotics.
I have pneumonia/bronchitis. It’s been 12 days.
I’m terrified & won’t go. CPPs know how we are treated once they see we are on pain meds and live w/ rare & painful diseases. They immediately think drug seeker.
#FOA
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141
I just finished watching
#Painkiller
the series on Netflix.
At the end it states 40 ppl die daily from overdosing on prescription pain meds. 40x365 = 14,600 total yearly.
Does 14,600 equal an
#epidemic
?
#opioids
#opioidcrisis
#overdose
#dea
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26
153
Why do so many chronic pain patients develop new incurable/painful diseases?
I believe it’s because of
#PAIN
and
#INFLAMMATION
.
This is why it’s important a patients pain is treated aggressively w/ pain medications.
#advocate
#opioids
#DontStaySilent
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The
#DEA
will be cutting the opioid supply cut for 2024. So messed up when there’s shortages already.
#opioids
#fyp
#supply
#chronicpain
#pain
#DontStaySilent
#WeR1
#advocate
24
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Number of suicides in the US in 2022 reaches record level: CDD
1 of the reasons why the numbers of
#suicide
are going up is disabled patients dealing w/ incurable/painful diseases are losing their medications.
#pain
#opioid
#chronicpain
#euthanasia
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National Pain Council is creating a pain contract patients/surgeons sign w/ agreeing to appropriately manage a patient’s after surgery pain care.
Patients have been contacting
@NationalPainCo
stating their surgeon promised to dx opiates after surgery & lie.
I’ll share when ready
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Please check out my first article I’ve written for The Bolen Report on Opioides and CPP’s.
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5th doctor today turned me away saying my case is
“too complicated”
I’m beyond frustrated.
I’ve lowered myself as low as I feel comfortable going
My tachycardia has started up, but it’s controlled.
My crps flare in my hands has been ongoing for 10 straight days.
I won’t give up!
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Had my interview w/ Ryan McPherson today for a documentary involving Dr. Thomas Kline & the
#NC34
about chronic health issues, rare/painful diseases, addiction & doctors losing their DEA license because of
#FearOfAddiction
.
Special thanks to Dr. Mark Ibsen.
#WeR1
#PatientsUnited
19
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It’s been 2 1/2 weeks since I started tapering.
75% off my Er and 50% off my ir.
The withdrawal isn’t that bad, but the constant pain in my neck and CRPS in my hands is what makes it so tough.
Praying I find a doctor and pharmacy soon.
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“As unpleasant as it may be, the evidence is in: chronic pain may produce a loss or atrophy of brain tissue.¹⁻⁸ All practicing physicians and their surrogates and allies must immediately begin understanding the ramifications of this finding.”
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2024
#DEA
plans to lower the opioid supply chain.
Patients, family and friends please leave a comment on the DEA website before December 4th letting them know why they shouldn’t do this.
There’s currently 2800 comments.
We need 10k comments!
DEA link:
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RIP
Jessica Minerd-Massey
May you be in a better place. I made a promise to you that I would make sure your death isn’t in vain. In the next few days I will share Jessica’s journey.
Please watch out for it.
#WeR1
#OneOfMany
#DontStaySilent
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DID YOU KNOW...
CDC Director Thomas Frieden allowed PROP members to secretly write the 2016 Opioid Guidelines in back door meetings.
Until they were caught!
#suspendCDC
#OpioidCrisis
@Andysmi27480333
@DocBearOMD
@CMerandi
@VanilaSingh
@ThomasKlineMD
17
82
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My mom had stage 4 liver & colon cancer a few yrs ago. After surgery she has a foot long incision on her tummy. They refused to give her any pain meds to go home w/.
When will America stop this craziness?!
My mom is 67. She’s never had a history of alcoholism, SUD. She barely touches
@tylenol
& lives w/ fibromyalgia. I saw fear in her today though, being wheeled in for
#BreastCancer
surgery & told she will be denied pain meds after a
#mastectomy
BY HER SURGEON.
#HealthcareCrisis
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Our sweet Olive passed away today.
She was such a wonderful girl.
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I’ve been on
#opioids
for over 15 yrs. 3 yrs ago I was force tapered. Last yr I was put back on pain meds. My quality of life dramatically goes up when I’m on pain meds. I’m living proof that
#opioids
ARE EFFECTIVE when taken long term for rare and painful diseases.
#chronicpain
B.S.! This is just not true!
The trouble is when it comes to
#chronicpain
#opioids
are often not that effective. In fact leading pain expert Dr Cathy Stannard estimates fewer than one in 10 people given opioids for long term
#pain
will benefit from them.
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Doctor who prescribed more than 500,000 opioid doses has conviction tossed
Dr. Joel Smithers
#opioids
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Didn’t share 1st page for protection.
Walgreens gives a doc 30 days to respond/answer all questions I shared about their patients & what they rx to patients OR may discontinue dispensing controlled substances that that doc rxs
#walgreens
#HIPPA
#cpps
#medication
#WeR1
@LawhernRed
40
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The vet gave my cat Gabapentin for PAIN. What do you think?
#vetrinarian
#Vet
#cat
#fyp
#pain
#gabapentin
#opioids
#pouncy
134
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108
@StefanKertesz
As the ability to RX pain meds go down, suicides & street use are going to go sky high.
Patients w/ cancers & incurable/painful diseases will not tolerate zero pain meds.
Has this country lost their ability to reason, make good decisions & have compassion for those living in pain
6
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What does someone look like that’s on pain medicine?
#cpp
#opioids
@fightpaindaily
@LelenaPeacock
@OldHeadFighta
@headdock
@Pharmaciststeve
@SpeakPain2Power
@lawhern1
@CMerandi
@ibdgirl76
@CanadaPain
@JohnnaMagers
16
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CPP’s if youve been force tapered did you develop new permanent health issues?
#cpp
#fyp
#opioids
#pain
#forcetapered
#health
#patient
#chronicpain
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This doctor never sold a single drug, failed to recognize drug dealers posing as patient and was blamed for a suicide - got life in prison.
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The Mighty used my story.
Thank you!
Please check out one of the times I was force tapered off pain medications.
This is chilling and well written. It captures the creepy unethical smugness with which forced tapers of pain medication are often carried out: How It Feels to Be Force Tapered Off Pain Medication | The Mighty
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What DEA does not understand or does not care about medication cessation decisions
Since 2015, DEA has reduced oxycodone by 68% & hydrocodone by 73% stating primary goal is reduction of diversion of these meds
#DEA
#medication
#cessation
#ChronicPain
22
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96
I’m in shock that this can happen over a tweet!
I’ve lost my doctor & pharmacist b/c of this, putting my life in danger.
@ThomasKlineMD
is a great doctor & I’m a great patient.
He has not lost a patient to overdose, suicide & his patients didn’t divert or fill scripts elsewhere.
After an
@NCMedBoard
investigation, outspoken doctor
@ThomasKlineMD
can't prescribe opioids to his chronic pain patients.
How did the probe start?
Twitter.
#ChronicPain
#opioidcrisis
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Hello from my
#MermaidCove
. Wanted to share what happened at the ER. I was forced to get a catheter, even tho I had an iv. I was treated like a drug addict for seizures when I’m palliative care.
#WeR1
#PatientsUnite
49
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89
My mother had stage 4 liver and colon cancer this past year. Nothing was given for pain control after first surgery. She received nothing during chemo. 2nd surgery she was promised adequate pain control, and again received nothing after she was released from the hospital.
CHRONIC PAIN PATIENT POLL: Given that the country is in the grip of anti-opioid hysteria, how concerned are you that patients dying of terminal illnesses like cancer have been, or will be, denied adequate pain control with opioids around the time of death?
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Yes! They go after male, older doctors, that have their own practice. They are the low hanging fruit.
The DEA and state med boards are currently focusing on doctors that have patients living 150 miles or more.
@JonelleElgaway
The DEA prefers to target older private practice MDs who treat pain the way they were taught, seizing their assets, less likely to have a lawyer. 1% of prescription opiate medications are diverted, DEA is gaslighting. The fentanyl crisis is unrelated.
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Interested in becoming a
#Member
or
#Volunteer
.
Join our new organization
#NationalPainCouncil
Please email your contact info to PatientsUnite14
@gmail
.com.
Where 1.5 Billion CPPs Worldwide Unite!
PLEASE SHARE!
@jmkillingnyc
@Bris516
@StaceyF62
@JoeAllenNewman
@urbanfatbiker
6
70
88
When a doctor is under investigation…
WE ALL ARE!
When a patient loses their doctor and medications…
WE ALL DO!
Join me at
#WeR1
#NationalPainCouncil
#DontStaySilent
1
33
87
Can the chronic pain community unite before it’s too late?
I was interviewed to comment on the chronic pain community and whether we can unite.
@Shasta_Rayne
@Bris516
@LouiseShoger
@CMerandi
@jmkillingnyc
@ThomasKlineMD
@urbanfatbiker
@PainNewsNetwork
16
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WE HAVE A WIN!!!
...” DOJ signed a formal agreement with Selma Medical Associates, a large primary care practice in Virginia, that may open the door for people with chronic pain to regain their full access to medical care.”
7
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84
“As a pain specialist, I may have caused more harm by underprescribing opioids”
16
28
83
The
#AMA
states that the opioid crisis is no longer driven by prescriptions for pain medications.
#PROP
rejects the AMA’s statement.
I just ask, what evidence or sources does PROP have to back up their statement?
#OpioidCrisis
11
45
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2 Courts Debunk Widely Accepted Opioid Myths
“Undertreatment of pain is a real problem, and bona fide patients rarely become addicted to their medication”
5
46
85
Taking a break from advocating. Not sure if I’ll be back. Those that need to reach me, you have my info. Good luck
28
11
89
STORY TIME. I walked out of my Primary Care doctor appointment, once I was told that I had to give them a urine sample. What do you think? Was I wrong? Will I get kicked out? Maybe
#advocate
#WeR1
#NationalPainCouncil
#pain
#adhd
33
19
88
Update on mom.
PETscan came back. The cancer taken out of her colon metastasized and is now in her liver. She has stage 4 liver cancer. She got a chest port last week & yesterday got her first chemo. 2 months chemo, shrink liver cancer, take out & more chemo. 💜 you mommy.
40
5
69
There are 1 million addicts. There are 10 million patients needing round the clock pain care. Why aren’t there 11 million addicts?
#opioids
#illicitFentanyl
#advocate
#DontStaySilent
7
33
84
#NationalPainCouncil
will be creating
#PainContract
b/n a
#patient
and
#surgeon
. Making sure patients recieve
#pain
care after
#surgery
.
#fyp
#DontStaySilent
12
32
81
I’ve been having seizures this week.
If I’m not around you know why.
Next week I’ll be ready to advocate again.
Thank you for understanding.
30
10
81
DR. KLINE is looking to compile a list of ALL rare/painful diseases.
Include a 3 sentence description of what it’s like for you, having this disease.
Also are you being treated sufficiently?
Thank you!
#WeR1
#JATH
#CAW360Network
@ThomasKlineMD
@Angelsgal02
@BlessingBox4u
66
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Government Data Refute the Notion That Overprescribing Caused the 'Opioid Crisis'
#opioidcrisis
#opioid
#dea
#medications
#overprescribing
9
41
89
Recently I’ve been told by several ppl within the cpp community that I’m not really sick. Fortunately I have my medications which is why I can fish, garden and advocate for this community.
32
6
75
I have a prescribing doctor
& a pharmacy willing to fill the prescriptions my doctor writes.
What’s the problem?!
#MEDICARE
Medicare is not willing to cover my prescriptions!
It’s over $1200 for each prescription. I can’t afford that!
The system is broken!
#PatientsUnite
#WeR1
18
28
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More info on Maine.
I’ll put together info Dr. Mark Ibsen/Brandy Stokes have created to use to help stop MAINE from becoming the first state to be opioid free. We must not allow this to happen!
#opioids
#Maine
#ChronicPain
#DrIbsen
#BrandyStokes
#advocate
#WeR1
#DontStaySilent
19
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Please join National Pain Council
uniting millions of doctors, patients and more.
To become a member send your first/last name to PatientsUnite14
@gmail
.com.
Please share.
#PatientsUnite
#NationalPainCouncil
@LelenaPeacock
@lpray18
@ThomasKlineMD
@cathy_kean
@Bris516
@CMerandi
9
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WHAT DO YOU THINK...
A Columbia professor who uses heroin says the drug helps him maintain a work-life balance and should be legal for everyone
34
13
69
Replying to
@ParlayPimpin
withdrawal is the least of our worries. It’s the pain and inflammation. That is the killer, and that will kill us in the end w/out access to pain meds
#opioids
#withdrawal
#pain
#inflammation
#chronicpain
#pain
10
27
75
Why are State Medical Boards pressuring doctors on what they are allowed to prescribe to a patient and the amounts they are allowed to prescribe?
And this is how physicians are pressured to involuntarily taper patients…
From the December 7, 2023 meeting of the Arkansas State Medical Board
He’s being criticized for “a core of 20-30 patients in the 100 MME range”
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Excited to have
@goodbloodmedia
traveling to Raleigh, NC this weekend to film/interview
#NC34
He’s interviewing 8 of us & will be visiting again to get those out of town/those that couldn’t do it this time.
Thank you
@DrMarkIbsenMD
@goodbloodmedia
for giving us this opportunity.
9
21
63
What happened at the hospital. I went because of the solutes, which I learned I can die from. Ppl are saying on TikTok I’m high, that I’m lying and that I don’t have seizures. It breaks my heart ppl would say this about me
30
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1)
Today Dr. Pompy was acquitted on all 38 counts of the indictment after a 6 year investigation & month long trial. This is a victory for pain management Physicans everywhere facing scrutiny from the federal gov’t. W/ an aggressive defense supported by Chapman Consulting
Group.
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19
71
@ibdgirl76
I haven’t had an issue with pain meds yet, but I couldn’t get my adhd med for 5 months.
What are we supposed to do if we can’t get our medications?!
11
4
74
1/1 “We do not treat Chronic Pain Patients”
This violates Section 504 of the Americans with Disabilities Act (ADA).
Know your rights so that you are treated with equality and dignity as you are owed by law!
8
42
64
Dr. Jessica Merlin is one of many doctors now FORCE TAPERING & FORCING SUBOXONE on their patients
@ThomasKlineMD
@MisterBMurphy1
@yinzer1982
@StaceyF62
@Angelsgal02
Palliative care patients are not ur lab rats! Stop using us in your cruel & inhumane projects.
#SilentNoMore
24
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EVERYONE...
Can you please retweet this out and tag
@ThomasKlineMD
.
It’s his birthday and we know how much he loves his donuts. Let’s try to show him our appreciation and let him see 100+ retweets w/ his name tagged to our little Happy Birthday message for him.
THX!
@Bris516
9
24
65
At one time, the worst issue of being disabled, was it bankrupted a patient.
Now being disabled can be a death sentence.
Patients with incurable/painful diseases deserve to have all options their care.
Stop punishing patients & allow them to have access to pain meds.
#WeR1
2
34
65
Why isn’t there a study that follows around us patients, with incurable/painful diseases, and see how many of us actually become “junkies” and abuse our medications?
My guess is that there would be 0% to less than 1%.
@Bris516
@urbanfatbiker
#opioidrefugees
#painpatients
8
19
65
Needing
#surgery
? Make sure to do these tips in order to get after surgery
#pain
care.
#opioids
#fyp
#patients
#tips
#medications
#advocate
#DontStaySilent
#NationalPainCouncil
16
31
68
The CDC needs to be brought in front of Congress & answer to why they inflated the numbers of overdose deaths originally.
Why they tried to create these guidelines behind closed doors.
Why they even created these guidelines, when the FDA should have done this.
If intentions of the CDC were to INCREASE overdose deaths
at an exponentialy high rate &
cause patients struggling w/ life long painful diseases to suffer even further, b/c doctors are not willing to prescribe meds that give them a quality of life, WELL DONE CDC!
1
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4
24
68
Yeah I wanted to be disabled after I went to college and got to start my own business and had to give it all up b/c I wanted to be disabled?! Oh and I get under $700/month?! Who the heck is this person and how disgusting to say disabled ppl want to be disabled. Shame on you!!!
@fightpaindaily
@Jdserrano1976
@process_x
@wlkthlne
@diabeteseyedoc
@Rightisred
@ravensspirit68
@Angelsgal02
@jlrmackay
@Tootwisted40
@Rosesdaughter61
@HeatherLinda11
@Rachjr1
@keesaroo
@JL3TimeTitan
@hope411adcock
@cynthiacrytzer
@Deeenst
@PAINWARRIORTEAM
@SpicyPurritos
@Maisybo
@EqualityCouple
@faye_dollar
@StopBadDocs
@BlessingBox4u
@nostigmaforpain
@GhostinGeek
@Jmkilingnyc
@ThomasKlineMD
@CAW360
@dr4liberty
@browndotflop
@puppyluvr312
@CNN
@DanLairdMD
@Pharmaciststeve
@Iamchronicpain
@VirginiaMello10
@ACLU
@Liz_Llorente
@minxy99
@CDCDirector
@GavinNewsom
@headdock
@ChelseaJoPerez1
@PainPtFightBack
@GhanaboyPharmd
@BobTwillman
@CMerandi
25
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When the media discusses
#Fentanyl
, how does the public know the difference between prescription fentanyl and illicit manufactured fentanyl?
29
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65
WE MUST FIGHT!
WE MUST UNITE!
WE MUST CULL THE ENEMY!!!
Are You With Me?!
#advocate
#WeR1
#DontStaySilent
#opioids
#pain
10
20
69
Often our rare and painful diseases are invisible, which is why it’s hard for people to understand what we are feeling and going through.
All those struggling, would you please share a photo to help others understand?
This is me in a CRPS flare and CRPS rash.
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Dr. Lisa Kehrberg was a doctor for over 29 years and then developed a rare disease and was treated as if it was “in her head.”
Great article and thank you
#DrLisaKehrberg
Opioid Hysteria Has Gone Too Far — Pain News Network
4
27
59
Is your immune system low b/c you struggle with painful and rare diseases?
Mine is. I spent 4 hours on a runway in Miami last week and the lady next to me was coughing and sneezing. I knew I was going to get sick.
Now I have bronchitis.
Lovely!!!
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#NationalPainCouncil
want to join?
PatientsUnite14
@gmail
.com
Spreading Truth!
@Elvirababy3
@CMerandi
@lpray18
@LelenaPeacock
@cathy_kean
@Bris516
@AKolostomyBag
@ravensspirit68
@ThomasKlineMD
@jmkillingnyc
@LouiseShoger
@CredicoJennifer
@IntractableAnd
@Ted_LQ4L
@Angelsgal02
16
51
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What is Palliative Care?
Become a member or affiliate of
#NationalPainCouncil
at
.
#OpioidCrisis
@JoshBloomACSH
@LelenaPeacock
@TheRebelPatient
@ravensspirit68
@MichaelNey19
@GiarmoMatthew
@jmkillingnyc
@AwarenessPain
@DocBearOMD
@rsqk9s
@PainPolitics
10
38
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Going w/out our medications is not a solution. It’s a death sentence.
#fyp
#fyp
シ
#opioids
#chronicpain
#chonicpain
#pharmacy
#cpp
#advocate
#painroundtable
10
25
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HOW THE DEA FABRICATED THEIR OPIOID PANDEMIC AND WAR ON PILL MILL SCAM: WHY DIRECTOR ANN MILGRAM MUST STEP DOWN
#dea
#opioid
#scam
#PillMill
#AnnMilgram
7
36
68
My
#dTruth
for today is the importance of advocating for yourself. If you don’t know how, ask someone.
I forgot to mention I had to go to Urgent care the day after the ER b/c I sprained my ankle/knee during my seizure.
I would love to hear your
#dTruth
.
#PatientsUnited
#WeR1
14
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Walgreens and CVS Rated ‘Most Difficult’ for Opioid Prescriptions — Pain News Network
#walgreens
#cvs
#opioids
#pharmacy
#prescription
14
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64
And my 2nd major seizure yesterday.
Was taken to the ER by ambulance.
Went home / instructions that I was “confused” and “drug use.
So nice when they say this. They missed the hugs swelling on my knee and left ankle, which they did nothing about. And put in a catheter n blister
42
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RON CHAPMAN OF CHAPMAN LAW FIRM, DEFEATS DEA IN COLUMBUS, GA CASE OF U. S vs. DR. THOMAS SACHY, MD A NEURO PSYCHIATRIST
#cpps
#opioids
#chronicpain
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I just walked into my bedroom and someone was stealing my medications.
Has this happened to you before?
What do I do?
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Where would I make the biggest impact?
If I ran for NC Congress woman?
Would you vote for me?
I want to make a difference and I Th ought if I ran for office, I could make bigger changes than being an advocate.
Please share your thoughts, talking points etc. thanks!
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Do you agree?
The DEA has become your doctor.
Please don’t forget to send out your
#SuspendCDC
letters.
For more info go to
Became a member at
#NationalPainCouncil
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@Whritenour1
It’s all bs. I usually don’t post ridiculous stuff like this but once in awhile I like to remind ppl the crap that’s being fed to the public
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Just an FYI...I’ve been having seizures the last few days so if I don’t respond, you know why.
Thanks for understanding
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My plea to
#America
to help fight against the
#dea
that’s creating a
#NationalCrisis
of deaths, overdoses, suicides and poisonings by purposely creating shortages on opioids.
#opioids
#advocate
#WeR1
#patients
#doctors
#pharmacists
#DontStaySilent
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