Clare Elman
@ItsClareEl
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23 March is Huntington's disease Gratitude Day: the anniversary of the discovery of the Huntington's disease gene in 1993. Thank you to the Venezuelan families who made the gene discovery possible! #HDGratitudeDay24.
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Behavioural changes in Huntington's disease are common, but why do they happen? These changes can be caused by physical changes within the brain, however, they can also be due to the pressure of dealing with the disease. Factors such as reduced independence, strained social
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I got two, one around 3 one around 8. Clearly they know I would ignore the first one or have forgotten to charge my phone so needed a reminder
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With 91% of people saying the symptoms of Huntington's disease means they will use higher levels of energy in their home, we support @MartinSLewis in asking Chancellor @Jeremy_Hunt to postpone the government's 20% increase in energy bills on 1 April.
I have just sent the Chancellor @Jeremy_Hunt - supported by major charities - a letter asking him to postpone the government's 20% increase in energy bills on 1 April. The letter is at attached (plus supplementary explanation) please read and feel free to share
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This December we're featuring 2022 fundraisers to give you inspiration for 2023 fundraising. In June this year, Andi took on a 1000km bike ride across four days in the north of England. 🧵1/4
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So you can find things in one helpful place, we have put together a page on our website to share information about the cost of living increases. Read more: https://t.co/4cFE80rcBo
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One of our streamers twilitphoenix is live streaming for #JingleJam2022, answering questions about Huntington's disease, playing games and raising essential funds to help our Huntington's Disease Association Youth Service. Go show her some support!
twitch.tv
Uk female LGBTQ+ and ADHD streamer, will play games that have been requested by followers. Enjoy the stream and have fun!!! Join my discord and talk with me outside of my streams
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Looking for streamers to be part of the amazing #JingleJam
Calling all streamers! We're delighted to have been chosen as one of the 12 charity partners this year to take part in @jinglejam ! We're looking for streamers to help us fundraise throughout this extremely popular event
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#Halloween is spooky time of year, but joking aside it's truly scary for those with serious, life-altering conditions like Huntingdon's disease. For everyone that replies with a pumpkin emoji 🎃 we will donate £1* to Huntingdon's Disease Association @HDA_tweeting *Up to £200
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Congratulations to Charles Sabine for his OBE award for raising awareness of #HuntingtonsDisease. Charles is a passionate advocate for raising awareness. He recently gave a talk to our community in our Family Voices series, a joint alliance between @ScottishHD @HDAI_ie @HDAssocNI
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One of our AMAZING fundraisers, Jess, is on The One Show tonight! Well done Jess for all your amazing fundraising! @BBCTheOneShow #TeamHDA
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How adorable is this fundraiser? This gorgeous pup joined Ruby, Lucy and their friends in their fundraiser in August. The fundraiser was part of their overall fundraiser for #TeamHDA which included Lucy running the #LondonMarathon this weekend. Well done!!
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Loving all the photos from #TeamHDA today! #LondonMarathon2022
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It’s 9am. I’m watching Mickey Mouse clubhouse. Donald Duck says “how exacerbating” my child does not understand… but I do.
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🎲 Calling all gamers 🎮 This September we are joining the 'Gaming for Good' initiative with our brand new fundraiser - #HDAPlay. It's time to use the power of play to raise valuable funds to support people affected by #HuntingtonsDisease. Find out more: https://t.co/8utAPUSfdQ
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ME Research UK is pleased to an announce an open call for applications from researchers world-wide wishing to investigate the causes, consequences and treatment of ME/CFS. Full details - https://t.co/BBTQQdbUtl
#researchers #MECFS
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Fantastic cause and excited to see what @mariaeaglemp’s response will be. #HuntingtonsInMind #HuntingtonsDisease
This year, we launched the #HuntingtonsInMind initiative to raise awareness of the mental health impact that a diagnosis of #HuntingtonsDisease has on patients and their families and the need for better mental health support. Get involved: https://t.co/z4QbjcI2Jw
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