HDANI
@HDAssocNI
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HDANI is a NI registered charity which supports people affected by Huntington's disease. We provide support, information & advice to families and professionals.
Serving Northern Ireland
Joined October 2014
Can you spare a minute to help end health inequities for #huntingtonsdisease families in Northern Ireland? #FamilyMatters #InternationalNursesDay
https://t.co/KGdxdBZNLw
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Carers face physical and emotional challenges that can easily restrict their lives. Older carers bear the responsibility of looking after their loved ones and themselves which navigating the changes that age can bring. For more information and support: https://t.co/qgBvhyUJWX
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This #InternationalDayOfCharity we'd like to thank everyone who has supported our #HuntingtonsInMind campaign. ✉️ As parliament is back in session, it's a brilliant time to support our campaign. You can use our template letter to send to your local MP: https://t.co/OZCtaBxqzU
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Cruinniú eile #SEAS22 ar maidin le @SenRobGallagher, @fiannafailparty 💬 Bhí deis ag @Nollaig96, @orlaithnic & @SeanMurchadha cúrsaí @MuineachanleG mar aon leis na héillimh náisiúnta a phlé ✅ #Gaeilge #Gaeltacht #Gaeilge4All
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Why focus upon 'MISSION: isPOSSIBLE'? Happy Father's day from all at HDANI. International Men's Health Week (MHW) begins on the Monday before Father's Day and ends on Father's Day itself. https://t.co/uLl5oJ5cbw
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Don't forget you can listen to Sarah Winckless MBE, British Rower and former member of Team GB discussing how Huntingdon's has affected her family and how she is living whilst at risk. Tuesday 21 June at 7pm. https://t.co/YeZlZ3ZD0t
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Children and Young People who are at risk of inheriting HD or who have a close family member with HD are welcome to attend this event https://t.co/9YF1n3ULmN
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Don't miss hearing from British Rower and former star of Team GB discussing how Huntingdon's Disease has affected her family and how she has dealt with living while at risk https://t.co/pfrlSKXBgT
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HDANI are proud members of the NI Rare Disease community and the NIRDP offer a range of opportunities to empower and connect families affected by any rare disease!@NI_RDP
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We're calling for the full reopening of all day centres, short breaks & respite support across Northern Ireland. These services still haven't returned to pre-Covid levels & some of our carers haven't had a break in over 2 years. #CarersWeek
https://t.co/gOoE4kUt9n
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Join our team! (Or share with someone who would be great for this role) Full Time Family Support Worker needed (Primarily Western Trust) https://t.co/Ah3TuTeGvM
#jobfairy #nijobs #jobs #newjob
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What an incredible support @RevolutApp customers gave to a worthy charity @RTELateLateShow! Granted, there were some challenges at the peek of the live campaign. So, I've personally donated €100K, and will also match any further donations this weekend via @RevolutApp up to €1M.
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📣Northern Irish Neuro Community. I'm doing some research and would appreciate a RT Looking for people with progressive neuro conditions who have tried to access rehab to share their experiences 🎥 Watch: https://t.co/NFJoJ11HZR 📧 Contact: Pryde-S1@ulster.ac.uk
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Really insightful video interview on @FLGenomics with our Patron Sarah Winckless who talks about how finding out she is gene positive for #Huntingtonsdisease affected her and the fulfilment she finds in her role with SHA. https://t.co/jCGDrjsUGV
@HDA_tweeting @HDAssocNI @HDAI_ie
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Are you a Social Worker? We have an informative guide for Social Workers that want or need to learn more about Huntington's disease. You can find the full guide on the link below. https://t.co/T6zseqLJw5
#SocialCare #SocialWorker #LetsTalkHuntingtons
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@theRCOT @HDAI_ie @EHDN_News @EHDN_GRANTM @ScottishHD @HDAssocNI yippee the video versions of our #OccupationalTherapy clinical tips series. More to come...think we did 12 in all.
Did you miss any of our #OccupationalTherapy webinars? 🟢 Manual handling, equipment and funding 🟢 Encouraging engagement in daily living 🟢 Self care in daily living 🟢 Domestic skills in #HuntingtonsDisease You can watch them all below: https://t.co/YdyW39vyTY
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@RCOT_NP @theRCOT
@RCOT_MH @HDA_tweeting @HDAssocNI @HDYOFeed
@EHDN_News @EHDN_GRANTM
@ScottishHD @HDAI_ie We're updating the Best Practice Guidelines. Interested? Please join us https://t.co/7HII54BfgM
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@Peugeot @peugeotireland #peugeot I'm actually desperate at this point as it is a wheelchair adapted van and the only source of transport for my little girl that we had to fundraise for in the first place.
Maybe twitter can help because I'm getting fierce desperate at this point. For weeks my local garage has been trying to source the front section of the exhaust for my van to no avail. With the kids going back to school, desperation is setting in. So this is it
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May is #HuntingtonsAwarenessMonth! In case you missed it, I made a video that gives an overview of Huntington's. From symptoms to genetics, I've tried to make is accessible to everyone. Do share if you think it'd be useful! @HDA_tweeting @HDYOFeed
https://t.co/15a8PXWvmJ
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