HDYO
@HDYOFeed
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An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Global
Joined August 2011
We attended the @hdyofeed Congress in March! Our Game Lead/Streamer, H, had never attended an HD event of this magnitude, and we wanted to capture his reactions! Lauren and Melissa then got to live react…to his live reactions Full video on our YouTube: https://t.co/ZKDc54lTZ2
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HDYO would like to wish all who celebrate a very Happy Easter! Have a great day!
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Happy Passover! The evening of Saturday 12 April marks the start of Passover which lasts until Sunday 20 April. HDYO wishes everyone who celebrates a joyous time.
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🎉 Big News! 🎉 We just launched our brand-new Research Terminology catalog! 🧠✨ Dive into the latest terms and concepts in Huntington’s disease research. The definitions are designed to be understandable and can be easily translated. Check it out now! #HDYO #HuntingtonsDisease
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Thank you to our sponsors! @TevaUSA , @uniQure_NV , @Roche, @neurocrine , @WaveLifeSci and the Griffin Foundation.
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Watch full video: https://t.co/O4AberObI7 HDYO Ambassadors weigh in on the recent study looking at early progression in Huntington’s disease and how that may impact how young people view research. @EHDN_GRANTM
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The Huntington’s Disease Society of India (HDSI) will host HDSI International Conference. Bringing together global experts, researchers, clinicians, patients, caregivers, policymakers. Understanding, treatment, and care of Huntington’s Disease @HDYOFeed @cbmnimhans @NIMHANS_BLR
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We are excited to be featured in the latest edition of HD Insights regarding young people’s need for support first. Thank you @HuntingtonSG! https://t.co/UozQJoDY6m
huntingtonstudygroup.org
Huntington Disease Youth Organization (HDYO) is one of the leaders in addressing the concerns of young people. Since inception, it has directly supported more than 8,500 young people and families...
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We would like to wish everyone celebrating this joyous occasion a wonderful Eid Mubarak! From everyone at HDYO.
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Grateful for the opportunity to have a conversation about our AMT-130 program for #huntingtonsdisease @HDYOFeed’s congress in beautiful Prague. Thank you Ashley and Lauren for the great collaboration!
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And that’s a wrap! It has been an amazing three days at @HDYOFeed’s congress in Prague! Thank you to Jenna, Lauren and the entire team who put this fantastic conference together. These gatherings give us the information and inspiration we need to move our AMT-130 program forward!
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British occupational therapist Alex Fisher and Venezuelan filmmaker Gindel Delgado (2024) collaborated to document the lives of two Huntington's disease caregivers in Barranquitas Venezuela over a two-week period. Today it is Huntington's appreciation day, and we send them our
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We honor this needed partnership between the community members and scientists still to this day working together to find treatments for HD. And we honor all of you for helping build awareness around the impacts of HD.
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Today is #hdgratitudeday - the day where we celebrate the finding of the #huntingtonsdisease gene. Today, we honor the amazing families in Venezuela who made that happen and often still live in extreme poverty and face discrimination. ⬇️⬇️ @factorh_org @EHDN_GRANTM
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Sun Mar 23rd is HD Gratitude Day –the anniversary of the discovery of the HD gene. A great day to celebrate the amazing community of families & medical professionals coming together as they did then & do even more now! Lets’ get the world saying thanks together! #HDGratitudeDay
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Thank you all! Words can’t express what a fab time we’ve all had! Everyone is so tired but happy after an amazing Congress! Thank you to everyone – sponsors, partners, speakers, volunteers, staff, board & esp Jenna and Marisa Matt for all their hard work! Highlights to follow!
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Welcome to Day 3! Hope you enjoyed the party last night as much as we did! Today is wrapping everything up with some fantastic research sessions & the keynote from Jimmy Pollard! #hdyocongress
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Welcome to Day 2! So much planned today – learning from scientists & others in the community! Don’t miss the party tonight! Check the app or your programme for all the details. See you at 9! #hdyocongress
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Have a fabulous time at the @hdyofeed conference . Whilst I was caring for my bother Mark who had Huntington’s disease I made about 500 #hdyo #sybilontour and people donated over five thousand pounds the @HDYOFeed @HDA_tweeting
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