Grampian PF Support Group
@GrampianPf
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Grampian Pulmonary Fibrosis Support Group
Aberdeen
Joined October 2019
Toxic air is one of the biggest threats to our health. Air #pollution damages healthy lungs and makes problems worse for people living with a #lung condition. Here we answer some of the most asked questions around air pollution… https://t.co/Qz6b81M3sl
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NHS Grampian today reminding people to wear face masks when visiting hospitals as coronavirus cases continue to rise @STVNews
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Going on holiday? Take one of our Support Group posters, & join our 'around the world with TPFSG' challenge to raise awareness of this dreadful incurable disease. It'll just take a few seconds out of your day. Send your photo to contact details on poster ⛱
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@DoomlordVek @IanDunt The elephant in the room, as soon as we need Iranian oil Liz Truss finds that paying the UK's debt and gaining Nazanin's release isn't as impossible as we had been led to believe. #sogladsheshome
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God she's impressive.
Nazanin Zaghari-Ratcliffe - "I don't agree with Richard on thanking the Foreign Secretary, because I have seen 5 Foreign Secretaries over the course of the 6 years.. I was told many times that we're going to get you home, but that never happened.. I'm not going to even trust you"
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Raising awareness of Pulmonary Fibrosis 💜 Imagine being connected to this cylinder in order stay alive and get enough oxygen #cureipf #pulmonaryfibrosis #health #breathing #lungs #ipf
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Please listen and share. Every day a positive decision is not made, it is a nail in someones coffin. This is crucial, especially when some people may not be eligible for transplant these antifibrotic drugs are the only help. #cureipf #pulmonaryfibrosis
Nice Update on Nintedanib for ILD Patients Steve Jones Action for Pulmon... https://t.co/H4B6a1MuB4 via @YouTube
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It is about time Pulmonary Fibrosis was more in the public eye like as other illnessses such as cancer and dementia. So much suffering, it needs a cure or at least some kind of treatment 🤞Thanks @rach_hopkins #pulmonaryfibrosis #cureipf
Luton lost a great champion in Lord McKenzie when he passed away last month from pulmonary fibrosis. Having met my constituent the Chair of the Pulmonary Fibrosis Trust, it's clear research, diagnosis and care need support. I will keep pushing on this issue. @PFTrust
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BREAKING: The prime minister who gets free gourmet takeaways, free holidays to Mustique and free flat refurbishments is against the idea of ordinary people getting "free stuff" because that would be socialism x
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Commiserations to family, friends and all of those who knew and loved her
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So sad to hear of the passing of Janice Long. So very sad. Her support for sufferers of #IPF is well known and she will be missed by many, many of us @ActionPFcharity @CHSScotland @janicelongdj Thank you for everything you very quietly did for us Janice - we will miss you RIP
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Good article by @stephenpollard but it doesn’t describe what it’s like to have your remaining years on hold for the thousands of people who have #IPF #pulmonaryfibrosis We want priority access along with other vulnerable groups
thetimes.com
‘Booster dose of Pfizer vaccine offers near-total protection” ran the headline in Friday’s Times. That is wonderful news. But for some of us — the forgotten vic
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@ActionPFcharity @sajidjavid @NHSGrampian @ScotGovFM - Scotland needs to take note and take some urgent action to protect those who are at greatest risk - those of us with #PF and #IPF are literally dying to be booster jabbed! Can we please get our booster vaccine shots sooner rather than later @lungscotland
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A slow roll out of the 3rd vaccine or booster jab & the government aren’t yet implementing #CovidPlanB is leaving patients with #PF #IPF isolated and forgotten again! As many face the last few years of their lives in #lockdown this isn’t good enough. Come on @sajidjavid!
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Yes out @ActionPFcharity patient survey showed that for patients and their families the most important member of the ILD team is the specialist nurse. We need more CNSs and training on ILDs for respiratory nurses in DGHs
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Did you know there are only 82 days until Christmas? 😱🎄 It's time to get organised and order your Christmas cards, ready to spread a little festive cheer this winter! ❄️ Every purchase in our online shop will help people live their lives to the full 🥰👉 https://t.co/Wu3LsJfvVq
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Thank you for bring these important facts to our attention. I had forgotten about carers registering the fact with their GP. I will certainly pass the information onto our members @BoltonFibrosis in my next email update
#WeCareSoYouCan...feel supported. We know it’s not always easy trying to find the best kind of support for you, but there are ways to make your life easier, such as registering with your GP as a carer, applying for a carers assessment & more. https://t.co/ztHHtb7IHV
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MP's returning to back benches today in the reshuffle are allegedly being paid £15,000. One MP's 'severance/bonus, call it what you will, would pay the planned £20 UC cut for one person for 14.5 yrs. Now that's NOT what we call levelling up. Especially for the chronically ill 😓
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An exciting new development, we are looking forward to supporting people in Wales 💜
NEW: Welsh Pulmonary Fibrosis Support Group. The Welsh NHS ILD Network and @ActionPFcharity are teaming up to run a zoom support group covering the whole of Wales. First meeting on 23 Sept with talk by Dr Ben Hope-Good. Interested? Contact steve@actionpf.org
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