IPF Awareness
@IPFawareness
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Aiming to increase awareness of Pulmonary Fibrosis, support charities in helping improve the outcomes and quality of life for patients with this disease
Wigan, England
Joined November 2015
From Reflux, to Auto Immune Diseases, to Medication, to Idiopathic (no known cause), whatever the reason, a diagnosis of PF is devastating. It's debilitating, exhausting, frightening & PF literally takes your breath away. 🫁 Raising Awareness of PF! 💜 #aroundtheworldwithtpfsg
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🫁Today is World Lung Day.🫁 Pulmonary fibrosis is a devastating lung disease that is still not widely recognised. More research and awareness are urgently needed. 💜Share this post and together, let’s shine a light on pulmonary fibrosis: https://t.co/pzC2btwaUE
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Our 2025 Conference Award applications are open! Are you a student, early career researcher or HCP presenting your PF work at @BTSrespiratory Winter Meeting or other conferences? We offer extra financial support for those facing barriers to attend: https://t.co/wGJ3bmQluE
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📢 Save the date! Join us on 10 Sept 2025 for an #ILDIN webinar with @drphilmol “From Calm to Crisis: ILD Acute Exacerbations” ➡️ For ILD-IN members. Registration info coming soon via email. #ILD #ERS #LungHealth
It is a great privilege to have @drphilmol as guest speaker for the first in our exciting webinar series on 10th September. Access details have been emailed to ILD-IN members. Don't miss this fantastic opportunity to hear Prof Molyneaux share his expertise in ILD.
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From our #PulmonaryFibrosis Wish List: £50 – For analysis of a novel molecular imaging (PET) scan in an #IPF patient. See more wishes at https://t.co/pUrZwIYxRx
#GrantAWish #PulmonaryFibrosis #WishList #ThankYou #YourDonationMakesADifference
breathingmatters.co.uk
Find out how you could really help make a difference in 2023
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10 years of ILD-IN We’ll have great speakers, the latest updates, and memorabilia from the past to celebrate. Not-to-miss event for the ILD community #curePF #ILD
🚨ILD-IN Conference 2025 is celebrating 10 years of ILD-IN. Join us October 5th and 6th to look back on 10 years of the network, discuss current areas of innovation and look to the next 10 years. Conference agenda to follow: transplant, ILA, palliative care and much more...
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You now have until 14 July to complete the PF State of the Nation survey. This is your chance to help drive real change in PF care across the UK. 🎥Watch this video of Ronnie, who's completed the survey and shares why it’s important to take part. https://t.co/tcbzGssrcu
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❗️Unbelievably this issue still isn’t sorted after 5 years. Wearing oxygen all the time even in bed, nasal tubes are uncomfortable behind the ears. Sometimes it’s the small things. let’s not forget about the day to day, quality of life @ActionPFcharity #qualityoflife
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Want to share your research with a leading respiratory audience? Submit your abstract for the PCRS Conference! Present your work, gain valuable feedback and contribute to respiratory best practice. 📝 https://t.co/fMG0sNwoyA
#PCRS2025
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📣Now’s your chance to share your experience to help make positive, lasting change in PF care across the UK. Complete the 2025 'PF State of the Nation Survey' today to help influence change and ensure PF is prioritised and recognised. 📋Take part: https://t.co/6a9ZJkz7mo
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Great news thanks to all involved. Good to hear progress is being made 😊
📣Two major global trials have found a potential new treatment for IPF and other forms of progressive pulmonary fibrosis. The drug, nerandomilast, significantly slowed lung function decline, offering hope for the first new PF treatment in over a decade. https://t.co/Cl6CEd3pco
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Finally! The Pulmonary Fibrosis Drug Connectome is on #IPFCellAtlas!! If you want to know if a drug is antifibrotic, which cells it targets, or what drugs target a gene , in what cells - go to https://t.co/3acmOQ2RiC click on the Connectome tab. Enjoy!! #DataSharing
#CurePF4All
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Tramper hire in Derbyshire for people with limited mobility 🙂 Great for getting out and about in the countryside👍 Cromford Mill today. There is a café, bookshop and gift shop too #tramper #mobility #disabled #Derbyshire @ActionPFcharity
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Calling all researchers! 📣 Abstract submissions for #PCRS2025 are open until 30th June. Share your respiratory research or service development work and gain recognition. Learn more and submit ▶️ https://t.co/HuOINDpv4z
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Are you a basic science or medical student interested in #lungscarring research? Or a clinician scientist with an idea for an 8-week project? Together with @BALRcommunity, we're supporting 2 Summer Studentships in 2025. Applications will open in March. https://t.co/fSHNHx4DcA
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From our #PulmonaryFibrosis Wish List: £50 – For analysis of a novel molecular imaging (PET) scan in an #IPF patient. See more wishes at https://t.co/pUrZwIZ5H5
#PulmonaryFibrosis #WishList #YourDonationMakesADifference #KnowledgeIsPower #Donate4Knowledge #CharityTuesday #Thanks
breathingmatters.co.uk
Find out how you could really help make a difference in 2023
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Big shift in diagnostic practice for #IdiopathicPulmonaryFibrosis The use of surgical lung biopsies has dropped from 14% in 2013 to 5.5% in 2022, reflecting a move towards less invasive approaches. Find out more 👉 https://t.co/yHULAUgLlj
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It’s still cold out there – why not buy one of our cosy warm hoodies or sweatshirts to keep you warm and sing our praises at the same time! https://t.co/fpSj4cPgUh March promo = FREE delivery with code BM032025FD! #RaiseAwareness #CharityTuesday #FreeDeliveryInMarch
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