Action for Pulmonary Fibrosis
@ActionPFcharity
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💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
U.K
Joined February 2014
Day 2 is underway at ILD-IN conference 2025! We are in conversation with Andy Bright from APF and Dr Amit Adalaka regarding lung transplant from life pre transplant through to post transplant.
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💜We're at the Interstitial Lung Disease Interdisciplinary Network (ILD-IN) Conference to raise awareness of the support and services we offer for everyone affected by pulmonary fibrosis. @ild_inn
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💜We're proud to support four amazing researchers who have each won an APF Conference Award. The award has given them the opportunity to present their work at the #ERSCongress2025. You can read more about the researchers and their work on our website: https://t.co/ISknxObRN4
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🫁Today is World Lung Day.🫁 Pulmonary fibrosis is a devastating lung disease that is still not widely recognised. More research and awareness are urgently needed. 💜Share this post and together, let’s shine a light on pulmonary fibrosis: https://t.co/pzC2btwaUE
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There's still time to apply for a Conference Award! Are you a student, early career researcher or HCP presenting your PF work at @BTSrespiratory Winter Meeting or other conferences? We offer extra financial support for those facing barriers to attend: https://t.co/wGJ3bmQluE
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“My name’s Dave. This year, I was given a diagnosis that changed everything. Idiopathic pulmonary fibrosis. I refuse to let my illness define my life. I choose to seek out joy, to embrace adventure, to fight for every beautiful moment." Read full story: https://t.co/kyWNlD6Rkg
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Our 2025 Conference Award applications are open! Are you a student, early career researcher or HCP presenting your PF work at @BTSrespiratory Winter Meeting or other conferences? We offer extra financial support for those facing barriers to attend: https://t.co/wGJ3bmQluE
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Milan cared full-time for his mother, Daksha. “She was caring, kind & strong. When she was diagnosed with PF, neither of us had heard of it. We didn’t appreciate how serious it was. She got on with life, but as it progressed, we had to make adjustments." https://t.co/yrJoB9nNjw
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“My name’s Meg. I’m a former NHS healthcare support worker, where I cared for hundreds of wonderful patients in end-of-life care. In 2022, my life changed when I was diagnosed with hypersensitivity pneumonitis, a form of PF, aged 32.” Read story here: https://t.co/K2vSA8Q7ID
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💜We’d like to say a huge thank you to some of our Pulmonary Fibrosis Awareness Month sponsors, @Boehringer, Avalyn Pharma and @TreviThera. #PFMonth2025
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“Our names are Lorraine and Allan. We lost our father and uncle to PF, and we have now both been diagnosed with PF. We stand together through every challenge, knowing we truly understand one another’s experiences." Read full story here: https://t.co/xh2VPOJ2M7
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It's #PFAwarenessMonth. This year's campaign, ‘Every Breath Counts’ puts the PF community at its heart: https://t.co/5NgQ0HldUQ During September we’ll be sharing 4 stories, each bringing a different view on PF. You can also share your PF story here: https://t.co/2JShVkI8dv
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Our 2025 Conference Award applications are open! Are you a student, early career researcher or HCP presenting your PF work at @BTSrespiratory Winter Meeting or other conferences? We offer extra financial support for those facing barriers to attend: https://t.co/wGJ3bmQluE
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Great to see registration open! This a fantastic opportunity for the research community to come together, share, and collaborate.
📢Registrations and abstract submissions are OPEN for #BALR2025 in Cardiff 8-10 September! A stellar program and ECR awards await! Head here https://t.co/eDWMD1TFC9 to submit your abstract by 10/08 and register by 25/08!
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We’re excited to see lung conditions prioritised in the new Diagnosis Connect service, a government scheme launching in 2026, linking people with specialist charities at diagnosis. 250k+ people will benefit from this move and we're ready to play our part so no one faces PF alone.
Patients will be connected to specialist charities as soon as they've been diagnosed with a long-term health condition, starting next year. This new service means expert advice, emotional support and practical help from day one, alongside NHS care. More: https://t.co/DIJjZ6CQUp
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The 2025 PF State of the Nation Survey is now closed. 💜Thank you to everyone who took the time to complete it. The insights you've shared will help drive crucial changes for the future of pulmonary fibrosis care.
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📣Just one day to go! Have your say in the 2025 PF State of the Nation survey. We need your experience to help push for better care, faster diagnosis, and national standards that will transform the future of PF care. 🕒Don’t miss out! Complete today: https://t.co/szZMqrgJnH
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Huge congratulations to the @TamesideGroup💜
Clive & I reached the final three in our category - Community Champion in the @GMchampions2025. Last night we went to the awards ceremony at MOSI in Manchester, & guess what . . we won! 🥹 In memory of my dear Clive & the other 64 members we've lost in 7 years. Thank you. 💜
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⏳Extended until 14 July – there's still time to take part! Complete the 2025 PF State of the Nation survey. We need your experience to help push for better care, faster diagnosis & national standards that will transform the future of PF care. https://t.co/bPfq4WTQot
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You now have until 14 July to complete the PF State of the Nation survey. This is your chance to help drive real change in PF care across the UK. 🎥Watch this video of Ronnie, who's completed the survey and shares why it’s important to take part. https://t.co/tcbzGssrcu
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