@ExTINGUISHTrial
@extinguishtrial
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The ExTINGUISH Trial for NMDAR Encephalitis, a NeuroNEXT Clinical Trial Network study sponsored by NIH/NINDS 👉Enrolling Now
Joined September 2021
📣What is NMDA Receptor Encephalitis, and Why is the ExTINGUISH Trial so important? Watch and Share with your network 👇🏼- You may just help someone get to the correct diagnosis 🧠🔥 #Awareness #KnowledgeIsPower #Neurology #Encephalitis #Neurotwitter
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As many take well-earned vacations around the globe, a small number of individuals will experience the life-changing onset of NMDAR Encephalitis. We are here, working to get the answers you and your medical team need, via the @ExTINGUISHTrial .
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RT @StaceyLClardy: 📣 Saturday August 16 is for PATIENTS, designed by PATIENTS, for free, on what is most helpful in autoimmune neurologic c….
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RT @neurology_live: Now enrolling patients across the US and Europe, the phase 2b ExTINGUISH trial is a multicenter study evaluating 300-mg….
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RT @LyonPNS_AE: 🧠The preliminary program for the congress “Autoimmune Encephalitis & Paraneoplastic Neurological Syndromes” (Sept 18–19, 2….
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RT @Mayo_AING: This is an important paper. ➡️GAD epilepsy is distinctive. ➡️At multiple levels including demographics, comorbidities, semi….
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Shared decision making *must* include an honest discussion of the options, as well as what is and is not known, AND whether or not proposed treatments have been approved for the condition 👇.
✋ 🛑 We must do better. If available clinical trials are not discussed and offered to patient/loved ones BEFORE immunotherapy is given, then it is NOT informed care. KNOWLEDGE = POWER . @extinguishtrial
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Link to article here:. Link to ExTINGUISH Trial info here:.
Just published 👉. A NEWLY updated, comprehensive meta-analysis of the treatment of anti-NMDAR encephalitis: Analysis, equipoise, and the urgent need for evidence over anecdote 🧠🔥 . Why is this paper so important ? . 1/
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RT @Mayo_AING: My Editorial is out on actively immunised mouse model in NMDAR. Hope you enjoy! .
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RT @StaceyLClardy: This is great work!! . If we only had a high quality, ongoing, prospective randomized clinical trial of a B-cell targeti….
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RT @NIH_NINDS: Calling all nonprofit leaders in the neurological space! NINDS is hosting its annual Nonprofit Forum, "Progress through Part….
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RT @DiLibertoMD: Our new paper is finally out! A terrific joint effort to advance our understanding of T cell mediated neurodegeneration in….
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RT @StaceyLClardy: Being involved in the @extinguishtrial for NMDAR Encephalitis is the honor - and challenge - of a lifetime. And our co….
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RT @neuroimmuclinic: Dr Spatola sharing our work about HSV1 antibody profile in herpes encephalitis, showing compartimentalization in CSF a….
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RT @neuroimmuclinic: Dr Guasp presented her work on super-refractory anti-NMDAr encephalitis and about multimodal brain MRI and cognitive c….
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RT @neuroimmuclinic: EstĂbaliz Maudes showing our recent publication in @Brain1878 about the new animal model of anti-NMDAr encephalitis by….
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RT @neuroimmuclinic: 🧠At #AAN2025, PhD student @lmarmolejoa presented fascinating findings: FC-glycosylation analyses reveal brain-compart….
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RT @Vogrig_Alberto: Exciting session on autoimmune neurology #AANAM2025 — @DiLibertoMD discussed the role of pSTAT1 in the synaptic patholo….
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RT @hyderabaddoctor: Factors that should increase the suspicion of autoimmune encephalitis in people presenting with short-duration or firs….
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RT @jonttrout: Honored to have presented a @BYU Neuroscience Symposium lecture on #NMDARencephalitis to BYU students and faculty today! Sha….
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