ERN EuroBloodNet
@ERNEuroBloodNet
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ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases. Funded by the European Union.
Joined March 2017
🩸​June 19th is #WorldSickleCellDay, and @ERNEuroBloodNet & @RADeep_network are proud to launch a 2-minute animated video co-created with youth living with #SickleCell. 📺 YouTube playlist: #SickleCellDisease #TransitionOfCare @mmanupe @MariangelaPell4.
youtube.com
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story (Multilingual Versions). This video is available in this playlist with t...
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RT @ERDERA_org: Applications open soon! From 25–28 May 2026, Barcelona hosts the @EURORDIS Open Academy Schools 🧑‍🎓.📣 Applications open: 8….
openacademy.eurordis.org
The 2026 Open Academy Schools will take place in Barcelona from 25-28 May 2026. The face-to-face intensive training of the Open Academy School on Medicines Research & Development and the Open […]
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RT @eurordis: Launching Soon 👀 Rare Barometer survey on what helps people live with a rare or undiagnosed condition. Join our #RareBaromete….
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📢Have you registered yet?.​​✅​The full program is still open for registration!. Don’t miss the chance to explore the latest insights on innovative therapies and advances in hashtag#SCD care.
eurobloodnet.eu
🧬New Webinar Series | Genetic Therapy & Sickle Cell Disease!.We’re excited to announce the launch of EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with SCD. 📅 Starts 26 September 2025.🔗 Register here #ERNeu #ERNs #HealthUnion
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🌍​The World Orphan Drug Congress Europe is the largest global event for orphan drugs and rare diseases, attracting over 2,000 attendees, 250+ industry leaders, and 130+ exhibitors, discussing topics from the entire orphan drug lifecycle. ​📝​ #WODC
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🎯​​Outcomes of the successful working days at the #EHA2025 Congress!​​. ERN-EuroBloodNet participated actively with:.📍A dedicated booth;.🎤Active participation in oral & poster sessions;.🤝The Board of Network (BoN) meeting. #ERNs #ERNeu #hematology
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RT @orphan_drugs: 🌟 We’re proud to announce that IRDiRC, Kidney Research UK, ERN Eurobloodnet and Lab A to Z are supporting partners of the….
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RT @ERDERA_org: 🚀 The countdown is on! This year, ERDERA will be present again at the #WODC, the world’s leading event for #RareDiseases, b….
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🚀 Registration is now open for Part 1 of the FAIR Training Program!. 🎓 Join this free, online training happening from September 24 to 26, 2025.
🚀 Registration is open for the FAIR Training Program 2025!.Learn how to make rare disease data more Findable, Accessible, Interoperable & Reusable. 🗓 24–26 Sept | 💻 Online | 🎓 Free.Limited places—register now 👉 #FAIRdata #ERDERA #RareDiseases
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📢​Last days to apply! Don't miss this opportunity to join our dynamic, international team!. ✒️Apply now:
🚨​Hiring alert! We are looking for an experienced, motivated and committed Scientific delivery coordinator to join our dynamic team at Vall d’Hebron Institute of Research, Barcelona!. ​​✒️Apply now: #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
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📢 The ERN-EuroBloodNet July Newsletter is out now!. 📩 Subscribe to receive regular updates and stay informed about ongoing educational activities and initiatives in rare hematology. 👉 #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #hematology
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🚨​Hiring alert! We are looking for an experienced, motivated and committed Scientific delivery coordinator to join our dynamic team at Vall d’Hebron Institute of Research, Barcelona!. ​​✒️Apply now: #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
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🧬New Webinar Series | Genetic Therapy & Sickle Cell Disease!.We’re excited to announce the launch of EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with SCD. 📅 Starts 26 September 2025.🔗 Register here #ERNeu #ERNs #HealthUnion
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RT @EHA_Hematology: ▶️ Now available! EHA & ERN-EuroBloodNet Spotlight Congenital Bone Marrow Failure Syndromes. The recordings from our r….
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RT @ERDERA_org: 📣 Do you know about #ERDERA's Networking Support Scheme? 👇.It funds events that boost rare disease & rare cancer knowledge….
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🌍​Today is #Castleman Disease Day!. ​🔎Did you know? The ERN-EuroBloodNet website has a section called "Disease cards", a curated repository of our actions, resources and materials organized by disease group. Explore the Castleman Disease section: #ERN
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RT @FEDER_ONG: 🌍 Hoy, en el DĂa Mundial de la Enfermedad de Castleman, nos unimos a las personas que conviven con esta enfermedad poco frec….
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RT @ascatconference: Register by August 4 to save on your fee for the 20th Annual Sickle Cell & Thalassaemia Conference. Theme: Haemoglobi….
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RT @EHA_Hematology: ▶️ Now available! EHA & ERN-EuroBloodNet Spotlight Congenital Bone Marrow Failure Syndromes. The recordings from our r….
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RT @EHC_Haemophilia: #VonWillebrandDisease can be the cause of unexplained abnormal uterine bleeding with severe chronic anaemia and iron d….
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RT @SYNTHEMA_EU: Interested in synthetic data, rare diseases, or AI-powered breakthroughs in hematology? Visit #SYNTHEMA’s publications sec….
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