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Patients growing up with a chronic illness have to take charge of their own care at some point. Here are some tips from
#SickleCell
patients for young adults about to take over their own care.
#WorldSickleCellDay2019
5
30
125
We get by with a little help from our
#friends
. If you have a friend with a
#raredisease
, here are ways to be truly helpful.
@RareDiseases
5
39
129
Hemophilia is complicated, but here's a simple explanation in a short video: Watch it:
#EAHAD18
2
27
86
We join
@SCCConsortium
@ConquerSCD
@SCDAAorg
@ASCAA_
@SickleCellUK
and others around the world next week for
#WorldSickleCellDay2019
Help us raise awareness of this disease by watching and sharing this short video about the impact of
#SickleCell
2
28
99
A team of NFL hopefuls raised awareness and money for
#rarediseases
at this year's NFL combine - a campaign that got its start
@PennStateFball
with a single athlete: Jesse James
@JJames18_
who now plays for the
@Steelers
!
@UpliftingAth
1
25
61
Today at
#ACC23
, Drs.
@EliotBrinton
and Nihar Desai will discuss the 90-day high-risk window post-AMI and why this time period is critical for patients. Visit Industry-Expert Theater
#1
and find more details here:
0
3
53
Plasma donations are urgently needed. Find out how it works and why
#raredisease
patients appreciate the generosity of plasma donors.
@IDFCommunity
@ipopi_info
#donateplasma
1
27
45
Are today's high school students ready to harness
#artificialintelligence
? To assist, CSL Behring sponsored a boot camp program initiated by
@mcuban
.
9
8
40
Come see us at
#ESID2019
, 18-21, September, Brussels, Belgium.
@CSLBehring
is supporting five scientific posters and the Satellite Symposium, “Infections and secondary immunodeficiency in hematologic cancer: identifying patients at risk.”
#DrivenbyOurPromise
1
9
44
#DYK
that
#SickleCell
disease can cause vulnerability to infections, organ problems and even stroke? Learn more for
#WorldSickleCellDay2019
by watching this quick video
1
9
38
In honor of World
#Hemophilia
Day, we created a new video for families. It answers the question: When is my child ready to learn to self-infuse?
#SharingKnowledgeMakesUsStronger
#WHD2018
@wfhemophilia
@NHF_Hemophilia
0
11
36
Earlier today we announced an industry alliance with other world-leading plasma companies to accelerate development of a potential hyperimmune immunoglobulin therapy in the fight against the
#COVID19
pandemic. Details
1
10
36
CSL Behring announced it is donating 500 million international units of coagulation factor replacement therapy to the
@WFHemophilia
Humanitarian Aid Program to help those living with bleeding disorders globally.
1
8
33
We are pleased to join other world-leading plasma companies
@BPLPlasmaLLC
,
@BiotestPlasma
,
@LFB_Group
, Octapharma &
@TakedaPharma
, in an industry alliance to accelerate development of a hyperimmune immunoglobulin medicine in the fight against
#COVID19
.
0
21
33
Did you know
@Forbes
Magazine ranked us among the world's top 50 employers and we're hiring? See our current
#jobopenings
:
1
11
30
What risk do
#measles
outbreaks pose to people who have primary immunodeficiencies? Hear from the top patient advocate in the United States, who recently testified on Capitol Hill about low
#vaccination
rates.
@IDFCommunity
#PI
2
14
30
Linebacker
@CameronLynch50
plays for Tampa Bay but this weekend he'll be wearing a bit of
@SyracuseU
orange and raising awareness about rare diseases.
#MyCauseMyCleats
@Buccaneers
@syrfootball
0
8
28
Today we announce another important step in the fight against
#COVID
-19. The 1st patient is enrolled in study to assess our monoclonal antibody to treat patients suffering from severe respiratory distress. Learn more here:
0
14
28
We welcomed more than 100 children today to learn about the world of biotech. It's Take Our Daughters and Sons to Work Day.
#TakeYourChildToWorkDay
0
10
27
It's
#HAEDay
! RT this post and we'll donate $10 (up to $5K) to the rare disease patient org
@US_HAEA
#StandUpStrong4HAEedu
0
55
25
#COVID19
News: We’re teaming up with SAB Biotherapeutics (
@SABBantibody
) on using leading edge technology to produce a novel immunotherapy to potentially treat COVID-19. Clinical trials could begin this summer. Details here:
0
15
24
As
#coronavirus
(
#COVID
-19) cases mount, we have formally offered to help governments around the world by lending our expertise, technologies and facilities to help support rapid, scaled development of coronavirus vaccines and treatments.
1
14
24
Attending
#ACC23
? Join us Monday to hear Drs.
@EliotBrinton
from Utah Lipid Center and Nihar Desai from
@YaleMed
dive into the risk of recurrent events post MI and the potential role of cholesterol efflux function as a therapeutic target. Learn more:
0
2
24
The 2022
#ESCCongress
is this weekend and we’re excited to once again participate in discussions that fuel
#cardiovascular
innovation. Scroll through to find out more about our activities at the congress.
#cardiotwitter
@ESCardio
1
3
23
We’re excited to be
@penn_state
this morning to help cut the ribbon on the CSL Behring Fermentation Facility inside PSU’s new Agricultural Engineering Building. Let's train the next generation of biotech leaders!
@RaisePennState
@agsciences
@PSUScience
0
9
23
Welcome to the world's biotech leaders in Philadelphia for
#BIO2019
! After the Liberty Bell, check out these 7 sites that celebrate science:
@BIOConvention
@iambiotech
@LifeSciencesPA
@discoverPHL
@UCScienceCenter
0
9
23
Our response to
#COVID
-19 starts with the health and safety of our employees, donors and patients. Learn more about what we’re doing in this rapidly evolving situation.
4
7
22
"Patient focus" comes to life when employees meet patients. See what they learned at our recent patient summit.
0
3
22
Employees at the manufacturing & research site in Marburg, Germany, show solidarity with our patients with rare diseases.
#RareDiseaseDay
0
3
20
Thanks to the efforts of
@IDFCommunity
, more babies are being tested for a dangerous, but treatable
#primaryimmune
deficiency condition. Learn more about a major milestone for infant screening:
#pi
0
6
21
Penn State University = a top-notch partner in
#biotech
. CEO Paul Perreault visited State College today to talk about innovation and how we're working together.
@penn_state
@PSUScience
@PSUresearch
@huckcenters
@huckinstitutes
0
4
21
Today we are announcing an agreement to acquire
@uniQure_NV
’s phase 3 gene therapy product, currently being studied to treat hemophilia B. Learn more here:
1
7
21
The success of the CoVig-19 program depends heavily right now on the support of people across the world to donate convalescent plasma. Visit for more information.
#covid19
#donateplasma
1
14
20
Parents living with a
#raredisease
face a daily challenge of managing their own health while also looking out for their child’s well-being. Here’s some advice from some
#CSLBehring
patients on finding the right balance:
0
7
20
When Jeffrey Modell
@info4pi
begged his parents to “do something” about his
#PrimaryImmunodeficiency
, it broke their hearts. Now Vicki and Fred Modell are sharing their story through a new movie. Hear about it on our “World of Promise” podcast
#pi
0
4
17
"Patient focus" isn't a fad. It's one of our core values. Hear more from CEO Paul Perreault:
#patients
#efpBarca
@eyeforpharma
0
4
19
Clinical production is underway! Thanks to convalescent plasma donations, the CoVIg-19 Plasma Alliance has begun manufacturing a potential COVID-19 medicine.
#COVID19
#COVIDresearch
0
4
20
Patients. Caregivers. Engineers. Developers. Creatives. Working together to hack
#hemophilia
this weekend.
@NHF_Hemophilia
@mithackmed
0
8
20
🔬 BREAKTHROUGH DISCOVERY: Researchers from
@TheDohertyInst
@ONJCRI
&
@CSL
have determined the molecular basis for how an important component of the immune system, called gamma-delta T cells, detects infections and cancers.
#science
#stem
🔬
0
6
20
Did someone say the Ronald McDonald House in Philadelphia needed some snacks?
@PhilaRMH
, we got you covered.
0
2
19
Congrats to the Hemophilia Association of New Jersey for its important impact in the bleeding disorders community, and thanks for recognizing CSL Limited CEO Paul Perreault with the 2018 Humanitarian “Man of the Year” Award!
1
4
19
Headed to
#AHA22
? Be sure to join Drs.
@DLBHATTMD
,
@ceciliabahit
and
@ProfSNicholls
on Nov. 5 as they discuss the cardioprotective potential of cholesterol efflux. Add to your calendar:
0
3
18
Friendship matters, especially when someone has a
#raredisease
, like primary immunodeficiency. In honor of National
#PIAwareness
Month, share this video and learn how to be there, respect boundaries and keep the bonds of friendship strong.
@IDFCommunity
0
7
18
#CSLBehring
Dedicates
#Philly
Biotech Mural: New 8,000-square-foot mural celebrates the drive for innovation in biotech.
#BIO2019
📸 by
@SteveWeinik
for
@muralarts
1
4
18
0
11
18
Let’s accelerate academic research in the Philadelphia region! Through a partnership with
@UCScienceCenter
, CSL Behring will invite researchers to submit proposals for projects that focus on therapeutics in our areas of expertise.
@LifeSciencesPA
0
7
17
It is
#WorldHemophiliaDay
! Dr Karen Pinachyan reflects on latest progress in the field of
#hemophilia
0
1
16
Proud to be among
@Forbes
Magazine’s top 50 employers in the world. “CSL employees enjoy promising futures." – EVP & Chief HR Officer Elizabeth Walker
0
11
17
They're counting on you. In an
@ipopi_info
campaign, 160 patients in 27 countries made personal appeals for plasma donations and social distancing during the
#COVID19
pandemic.
#donateplasma
0
6
17
Today we announced the closing of a global commercialization and licensing agreement with
@uniQure_NV
for a novel gene therapy for the treatment of severe and moderate
#hemophiliaB
#hemophilia
0
4
17
Welcome to our backyard
#AHA19
! Looking forward to seeing the latest research and connecting with global thought leaders on advancements in cardiovascular innovations
@AHAMeetings
0
3
17
#Coronavirus
: 5 Things
#PrimaryImmuneDeficiency
Patients Should Know. Get the details about a joint statement from
@ipopi_info
and eight other groups, including
@ESIDsociety
.
2
9
17
Women are not just carriers of hemophilia. About 7% of people living with hemophilia symptoms are women. Is someone in your family living with hemophilia?
#WorldHemophiliaDay
#WHD2022
short.url/aBcXyZ
0
7
16
Check out these 📸 of the
#Marburg
Castle and
@nopponotouto
Tokyo Tower lit up in honor of
#RareDiseaseDay
.
0
0
15
Thanks to our employees who really walk the walk for primary immunodeficiency patients.
#PI
@IDFCommunity
0
3
16
CSL Behring has agreed to acquire Calimmune, Inc., a biotech focused on hematopoietic stem cell
#gene
therapy (HSC).
1
7
15
Today, April 25, marks the European
#Alpha1AwarenessDay
. Alpha 1 Antitrypsin Deficiency
#Alpha1
is the most common rare hereditary condition in adults worldwide. It is a rare genetic disease with a 6-8y diagnostic delay.
0
6
15
People with chronic conditions are looking for answers about
#coronavirus
. See how
@johngordonboyle
of the
@IDFCommunity
- counseled fellow patients who have
#primaryimmunodeficiency
.
#PI
1
7
16
We’re looking forward to joining
#Philadelphia
area innovators and entrepreneurs at tonight’s
@UCScienceCenter
#Nucleus2019
awards!
0
5
16
A new paper in
@JAHA_AHA
by
@CMichaelGibson
and colleagues evaluates the role of
#cholesterol
efflux and its potential as a new target for reducing recurrent
#cardiovascular
events. Read the review paper here:
2
7
15
Biotech has stepped up to the
#COVID19
crisis and it can help solve many of the world's most difficult problems,
@DrMichelleBIO
said. She's the new leader of
@IAmBiotech
.
@LifeSciencesPA
0
5
15
We are one step closer to the development of a potential therapy with the CoVIg-19 Plasma Alliance. Our Bern facility successfully manufactured the clinical trial materials and now they are being sent to our Marburg location for packaging.
#COVID19
1
4
16
Meet the next generation of
#raredisease
advocates. These 4 got a standing ovation after speaking at
@NIH
for
#RareDiseaseDay
. Expect to hear more from Maddie Herd, Taylor Kane, Shira Strongin & Tej Neaz Powell.
#RDDNIH
@MaddiesZeal
@shirastrongin
@TheChildrensInn
@RareDiseases
1
6
16
Clinical trials aren’t possible without patients & physicians. Thanks to the
#HAE
community for participating in the COMPACT trial!
0
9
15
On
#DoctorsDay
we'd like to thank physicians everywhere, especially those on the front lines during the
#coronavirus
pandemic.
2
8
16
CSL Behring is delighted to announce the winners of the
#ProfHeimburgerAward
2022: Romein Dujardin,
@ClaudiaTersteeg
, Emma Leitinger, Chiara Suffritti and Ellie Karampini. Learn more about the Prof Heimburger Award and this year’s winners at:
0
1
15
How do you decide if it's safe to do this or that amid the evolving
#COVID19
pandemic? Dr. Kate Sullivan of
@ChildrensPhila
offers guidance for people who have
#primaryimmunodeficiencies
.
@IDFCommunity
1
3
15
The Illinois
@AmericanLegion
selected our Kankakee manufacturing site as an “Employer of the Year.” 12% of the workforce are
#veterans
.
0
5
15
The CoVIg-19 Plasma Alliance is now part of a nationwide coalition in an effort to further encourage recovered
#COVID19
patients to
#donateplasma
. Learn more about the initiative:
#TheFightIsInUs
If you’ve had COVID-19, your plasma can literally save lives.
To find out how to donate, go to .
Let’s work together to take down COVID-19.
#TheFightIsInUs
374
1K
7K
1
4
14
Learn how a partnership between
@UROP_Biomedvic
and
@CSL
helped a young scientist find her path.
0
9
15
This morning at
#WFHVirtualSummit
learn about the Humanitarian Aid program [11am-12p] and how it addresses the lack of access to care for
#bleedingdisorders
communities around the world.
@wfhemophilia
0
2
15
New
#CSLBehring
@muralarts
mural highlights life sciences big role in
#Philadelphia
’s economy via
@phillyinquirer
#BIO2019
0
4
15
Six million people worldwide have primary immune deficiencies. That's why we walked in Phila with
@Marciaidf
and
@IDFCommunity
.
#walkforPI
1
9
14
#DYK
that when you visit our
#ESID2018
booth, you can help
@ipopi_info
, too ? Come to booth 3 to learn more.
#PID
1
7
15
When Estelle Benson founded
@gbscidp
Foundation 35 years ago, it started with 8 members & held meetings in her living room. Little did she imagine the group would swell to 35,000 members with 190 chapters in 46 countries. May is
#GBSCIDPAwareness
month!
0
4
14
Join Marcus Maurer, Markus Magerl, Don Levy and Stefan Cimbollek as they discuss the evolving management of
#HAE
patients at the CSL Behring-sponsored
#EAACI2021
symposium on 10 July 18:00–19:30 CEST.
@EAACI_HQ
#HereditaryAngioedema
0
6
14
#BREAKING
: AEGIS-II Phase 3 global
#cardiovascular
trial enrolls first patient. Trial now underway to evaluate CSL112 (Apolipoprotein A-I [Human]), a novel infusion therapy. Read more:
1
5
15
Let's draft the next generation of researchers to tackle rare disease. Jens Oltrogge explains:
@UpliftingAth
0
4
15
Check out new data (published in Arteriosclerosis, Thrombosis and Vascular Biology) regarding CSL112 (Apolipoprotein A-I [human]) and cholesterol efflux in atherosclerosis patients.
@atvbahajournals
1
7
14
THANK YOU to all the recovered
#COVID
-19 patients donating their plasma to help us make a potential treatment! Visit to join them!
#donateplasma
0
5
15
To celebrate
@CSL
's 100th birthday, we squeezed as many employees as possible into this collage.
#JustGettingStarted
0
3
14
Dr. Pierluigi Tricoci, Executive Director, Global Clinical R&D Therapeutic Area Head,
CV&M reflects on his career in
#cardiology
and what drives him to pursue innovative research for heart attack survivors. Read more here:
0
6
15
Prof.
@CMichaelGibson
weighs in on newly published research in
@FrontCVMedicine
regarding the association between cholesterol efflux capacity and
#cardiovascular
outcomes:
1
2
15
Today's rising star researchers are tackling rare diseases. Learn about Uplifting Athletes' Young Investigator Draft, sponsored by CSL Behring:
@UpliftingAth
0
5
15
We’ll be at the
@EuroRespSoc
#ERS2019
, 28 Sept-2 Oct, Madrid. Visit
@CSLBehring
at Booth T.07 and participate in our “Donate Your Steps - Walk for Alpha1” program to support
#patients
. Learn more here
0
1
13
Today, we take an important next step in growing our portfolio of promising products in late-stage development to address the significant unmet needs of
#transplant
recipients.
@vitaerisbio
is now part of
#CSLBehring
0
4
14
Our donation of coagulation therapies reached its destination in Puerto Rico despite logistical difficulties caused by
#HurricaneMaria
. Gracias to all who are helping those with
#hemophilia
and other bleeding disorders.
0
4
14
The stars will be out tonight for the National
#Hemophilia
Foundation's Red Tie Soiree in New York. Emmy-award winning actress
@AlexBorstein
and
@NYRangers
coach David Quinn will be honored for their advocacy.
@NHF_Hemophilia
1
1
14
Congratulations to researchers Ferdows Atiq and Samantha Donkel, both of Erasmus University Medical Center, Rotterdam, Netherlands. Each received a Heimburger Award, given by CSL Behring to advance innovations in coagulation research.
@erasmusmcintl
0
6
14
#3
: Your plasma can be used to make plasma-based medicines needed to treat a variety of conditions and diseases, including
#hemophilia
.
0
3
13
PI is underdiagnosed. Knowing the signs could lead more patients to get treatment that improves health and quality of life.
#WPIW2018
0
4
13
Happy
#NationalDogDay
from our resident
@CSLBehring
pup Bailey who joins her mom Caitlin at our King of Prussia location. Share your pup pics in the comments.
2
1
13
CSL Limited is donating $150,000 to the United Way of Greater Houston Relief Fund.
@HouUnitedWay
0
4
13
The CoVIg-19 Plasma Alliance has initiated clinical production for our potential
#COVID19
medicine thanks to your continued donations of convalescent plasma. Keep them coming!
#donateplasma
0
6
14