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SCDAA

@SCDAAorg

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The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.

Baltimore, MD
Joined July 2009
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@SCDAAorg
SCDAA
7 hours
Have you signed up for the SCDAA and MedicAlert pilot program? During a sickle cell pain crisis, warriors present their Smart Medical ID Card to the emergency room staff, who can then easily get the information they need to streamline care. Sign up today: https://t.co/DL9lBKLypQ
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@SCDAAorg
SCDAA
1 day
Starting at 11:20 a.m. Global Warriors: Achieving Solidarity Across the Globe will bring together the global perspectives of warriors from around the world. Our closing ceremony begins at 2:05 p.m. Thank you to everyone who joined us for our 53rd Annual National Convention!
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@SCDAAorg
SCDAA
1 day
Today is the last day and it will not disappoint! Today’s highlights include our next SCDAA SCD Masterclass “Sickle Cell in the Media: Scene and Heard” will be hosted by Agios Cheat Codes at 10:15 a.m.
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@SCDAAorg
SCDAA
2 days
The SCD CARES Consortium will share news about what is in the pipeline at 3 p.m., and we will dance the night away at our gala beginning at 7:30 p.m.
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@SCDAAorg
SCDAA
2 days
It's day two, and we are excited to share another day of inspirational and educational programming. Highlights today include our Clinical Trial Summit at 9 a.m., plenary sessions at 1:15 p.m. and 2:05 p.m.
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@SCDAAorg
SCDAA
3 days
Our Plenary Sessions will be at 10:30 a.m., 1 p.m., 2 p.m. and 3 p.m. We wrap up our day at 7:30 p.m. with our welcome reception — be sure to wear your favorite SCD merch! Connect to the Cvent app with a QR code: https://t.co/sYkviiV5cf
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@SCDAAorg
SCDAA
3 days
Today is the day! Check the Cvent app or scan the back of your badge for a complete schedule of all our sessions and events. The abstract poster walk is a must-see, at 8:30 a.m. Join us for the opening ceremony at 9:45 a.m. Download the the Cvent app: https://t.co/sYkviiV5cf
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@SCDAAorg
SCDAA
4 days
and 6 p.m. Heal the Healer with Dr. Wanda Whitten-Shurney; and 7 p.m. Warrior Wisdom presented by Novo Nordisk. Connect to the Cvent app: https://t.co/sYkviiV5cf
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@SCDAAorg
SCDAA
4 days
Convention starts tomorrow! Some sessions require pre-registration in the Cvent app. Be sure to check out Thursday’s special sessions and register today to reserve your spot: 10 a.m. SCAR Stories Photography Session; 11:35 a.m. Pfizer Lunch & Listen;
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@SCDAAorg
SCDAA
4 days
We can’t wait to see you! It’s not too late to join us at our 53rd Annual Convention: EMPOWERMENT: Forging Ahead with Strength and Courage at the Loews Chicago O’Hare Hotel in Rosemont, Illinois! Walk-in registrations welcome: https://t.co/AROjToaaL2 #SCDAAEmpowered
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@SCDAAorg
SCDAA
4 days
Thank you to our Silver Sponsors Beam Therapeutics, Chiesi Global Rare Diseases, CSL Behring and Sanofi for their support of our 53rd Annual National Convention! Register for the convention: https://t.co/AROjToaaL2 #SCDAAEmpowered
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@SCDAAorg
SCDAA
5 days
This project and exhibit are made possible through funding from Cayenne Wellness Center's CA State Funding and presented in collaboration with the Sickle Cell Community Consortium (SC3) and the Sickle Cell Disease Association of America, Inc. #SCARStories #CayenneWellness
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@SCDAAorg
SCDAA
5 days
Warriors who have a visible scar from SCD surgery or treatment can be photographed Oct. 16 or 17 from 10 a.m. to 2 p.m. Limited sessions available. Register to share your story: https://t.co/dJ98xiK7CY
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@SCDAAorg
SCDAA
5 days
Join us for an art and storytelling project honoring the scars, stories and strength of sickle cell warriors. SCAR Stories: A Visual Testimony of Sickle Cell Warriors, will be on display at the SCDAA 53rd Annual National Convention on Oct. 17, from 2:30 to 6:30 p.m.
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@SCDAAorg
SCDAA
6 days
Thank you to our Gold Sponsors CVS Health, Fulcrum Therapeutics and Genetix Biotherapeutics for their support of our 53rd Annual National Convention! Register for the convention: https://t.co/AROjToaaL2 #SCDAAEmpowered
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@SCDAAorg
SCDAA
7 days
Join us at the SCDAA 53rd Annual National Convention Gala Celebration on Friday, Oct. 17, at 7:30 p.m. in the Loews-Chicago O’Hare Hotel. Connect with fellow attendees and celebrate the incredible work being done within the sickle cell community. Register: https://t.co/AROjToaaL2
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@SCDAAorg
SCDAA
8 days
who has co-sponsored several bills related to sickle cell disease that have become law in recent years. She said, "The more we research, the more we invest, the more we can save families from the pain we’re experiencing." Watch the news report:
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@SCDAAorg
SCDAA
8 days
He contributed to a tragic and touching story about Candis King, a fifteen-year-old from Virginia who died from sickle cell complications. Candis' mother is Virginia Delegate Candi Mundon King, D-23rd District,
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@SCDAAorg
SCDAA
8 days
Sickle Cell Disease Association of America's Chief Medical Officer Dr. Edward Donnell Ivy, spoke with NBC4 in Washington, D.C., this week about the challenges of sickle cell disease. Watch the news report: https://t.co/WRzHsAXR48
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@SCDAAorg
SCDAA
9 days
For people living with sickle cell disease, clinical trials provide hope for better treatments. Our Clinical Trial Finder offers a comprehensive list of local research opportunities for warriors. To find a clinical trial near you, visit: https://t.co/KvGw4BUnWH
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