SCDAA
@SCDAAorg
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The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
Baltimore, MD
Joined July 2009
August is Minority Donor Awareness Month. Blood donations from minority communities are especially vital for people living with sickle cell disease, who often require closely matched blood types. Learn more: #MinorityDonorAwarenessMonth #DonateBlood
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Exciting News: the @MDHealthDept has officially accredited SCDAA's Community Health Worker Training! This accolade will allow our program to have an even bigger impact in the state. Our next seven-week CHW Training starts on September 8:
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SCDAA Warrior Walkathon photos are here! We're still buzzing with energy from this event. Thanks again to everyone who joined us. Your support makes a difference! View the full album: #MoveForSickleCell
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Have you visited the SCDAA Clinical Trial Finder recently? This tool helps you participate in clinical research by finding opportunities that match your criteria. Learn more:
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Tee up for a good cause with us this September at the inaugural SCDAA Golf Classic! Learn more and sign up: #SickleCell #Fundraiser #Golf
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SCDAA P.O.W.E.R. CHW Award nominations are open! Learn more and submit a nomination:
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Registration is officially open for SCDAA’s 53rd Annual National Convention on October 15-18 in Rosemont, Illinois! This year’s convention theme is “EMPOWERMENT: Forging Ahead with Strength and Courage.” Learn more and register: #SCDAAEmpowered
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SCDAA's Community Health Worker (CHW) Training is back this fall! Join us starting Sept. 8 for 7 weeks of learning and skill-building. This training will give you all the tools you need to excel as a CHW serving the sickle cell community:
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Thank you to everyone who joined us for the 12th Annual SCDAA Warrior Walkathon this weekend! Your support is crucial as we continue our mission. Photos coming soon! 📸 . P.S. - It's not too late to make a gift for this year's walk: #MoveForSickleCell
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The SCDAA Warrior Walkathon is tomorrow morning! Sign up today to #MoveForSickleCell with us at Canton Waterfront Park in Baltimore, Maryland, or create a virtual team and participate virtually:
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Two days to go until we #MoveForSickleCell at Canton Waterfront Park in Baltimore, Maryland! It’s time to push your fundraiser over the finish line. Check out our fundraising tips and tricks: . Sign up:
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On July 15, 2025, the Centers for Medicare & Medicaid Services (CMS) announced expansions to the Cell and Gene Therapy (CGT) Access Model. Read more:
sicklecelldisease.org
On July 15, 2025, the Centers for Medicare & Medicaid Services (CMS) announced expansions to the Cell and Gene Therapy (CGT) Access Model. “The Sickle Cell Disease Association of America, Inc., is...
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Only three days left until the SCDAA Warrior Walkathon in Baltimore, Maryland! Are you ready to #MoveForSickleCell? Sign up today:
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Time is ticking. the SCDAA Warrior Walkathon is in less than one week! Lace up your sneakers and get ready to join us in Baltimore, Maryland, on July 19. Sign up today: #MoveForSickleCell
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Let's get ready to #MoveForSickleCell at the SCDAA Warrior Walkathon on July 19 in Baltimore, Maryland! This annual fundraiser plays a crucial role in supporting our education and advocacy initiatives. We hope you'll join us! Sign up today:
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SCDAA will continue to advocate on both the federal and state levels as provisions of the law are implemented. Thanks to the many of you who engaged in advocacy on the bill. We are a resilient community and our work must continue. (3/3).
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We are in the process of carefully analyzing the bill to fully understand its effects and develop guidance for warriors, providers, caregivers and families moving forward. We will keep you updated in the next few weeks with more information and proposed next steps. (2/3).
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On July 4, President Trump signed the One Big Beautiful Bill Act into law. SCDAA shares the concerns of many in our SCD community regarding the impact that this act will have on the Medicaid program, access to care and health care overall for sickle cell warriors. (1/3)
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In June, SCDAA board member & former CMO Dr. Lewis Hsu attended the 5th Global Congress on Sickle Cell Disease in Abuja, Nigeria. SCDAA values these opportunities to hear global perspectives as we work to improve care for our warriors in the United States. #SickleCellMatters
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