Sickle Cell Society
@SickleCellUK
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The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
London
Joined February 2011
🩸 Help Shape an Exhibition About Sickle Cell! We’re inviting @NHSBarts patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon to be displayed at Royal London Hospital.📩 Apply by 11 Sept: Heritage.Project@sicklecellsociety.org.#SickleCell
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📣 Join us on Tue 26 Aug at Manor Park Methodist Church Herbert Rd, E12 6AY for our NEL Sickle Cell Transition Co-creation Day! Patients (12–24) & parents — share your voices, help shape resources & hear from experts.🔗 Sign up: #SickleCell #TransitionCare
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Help shape sickle cell & infections research! 🧪We’re looking for people 18+ living with or caring for someone with sickle cell to join our patient & public involvement group. 🔍 Scan the QR code or visit: 📧 r.muzambi@imperial.ac.uk.#SickleCell #Research
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On 17 Aug, our CEO John James & volunteers Brenda & Sophie joined Emancipated Run Crew for their annual Pre-Carnival 5K in Notting Hill 🎉Huge thanks to ERC for supporting the Sickle Cell Society & our Give Blood, Spread Love campaign🩸#ERC #GiveBloodSpreadLove #SickleCellSociety
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A huge thank you to Charles Sam for organising the Windrush Trophy golf competition (@windrushtrophy) and raising an amazing £2,500 for us! ⛳💙. Your support makes a real difference to the Sickle Cell community. 🙌🏾. #WindrushTrophy #SickleCellSociety #Fundraising
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We’re looking for new Trustees to join our Board. Could you help guide and shape our work for the sickle cell community? . This is a **voluntary role**, but the impact you can make is huge. Find out more & apply here .#SickleCell
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If you’re thinking more about dating and relationships, or love life and family planning, we’ve got you covered with two podcast episodes on these topics. Check them out on our website or YouTube Channel or wherever you listen.
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Some alcohol-free cleansing wipes may be contaminated with harmful bacteria. Do not use:.ValueAid Alcohol Free Cleansing Wipes.Microsafe Moist Wipe Alcohol Free.Steroplast Sterowipe Alcohol Free.Reliwipe Alcohol Free Cleansing Wipes.More from @UKHSA :
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Aged 10–24 & living with Sickle Cell in NW England or South Yorkshire?.Join our Peer Mentoring Programme for support, guidance & 1-2-1/group activities. 📧 NWMentors@sicklecellsociety.org.#SickleCell #PeerMentoring #YouthSupport
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🩸🎨 Barts NHS patients – we need you!.Join our Patient Committee to help shape Our Journey, Our Story Sickle Cell exhibition. 💷 £125 | ⏳ 3 hrs | Start: Aug | No experience needed. #SickleCell #OurJourneyOurStory #PatientVoices #BartsNHS
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Register your interest for the Genetic Alliance UK workshop on 22 October 2025. We’re looking for more people to share their views on new tests and treatments for genetic conditions during pregnancy. Join us in person or online and have your say.
Are you impacted by genetic conditions? Attend a workshop in London or online organised by @GOSHCharity and @UCLchildhealth and share your views on new tests and treatments for genetic conditions during pregnancy. Find out more at
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RT @GeneticAll_UK: Are you impacted by genetic conditions? Attend a workshop in London or online organised by @GOSHCharity and @UCLchildhea….
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Our Comms team joined @BAMREF’s 4th Annual Conference at Notts County FC on 20 July. A powerful day of food, workshops & EDI discussions in football. Thanks to Darren, sponsors & all involved!.#BAMREF2025 #EDIinSport #RefereeDiversity #SickleCellSociety
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📢 Helpline Closure. Please note that our helpline will be closed on Monday 28 July and Tuesday 29 July 2025. For any urgent enquiries during this time, please email info@sicklecellsociety.org. Our helpline team will return on Wednesday 30 July 2025. Thank you for your patience.
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Huge thanks to the African Caribbean Business Alliance for hosting a fantastic quiz night on 16 July, raising over £6K for the Sickle Cell Society! Our CEO John James was honoured to attend. Your support helps us make a real difference. #SickleCell #ACBA #Fundraising
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Parliamentary Update.On 22 July, Kate Osamor MP raised a question on funding for sickle cell research & workforce. The Minister reaffirmed NIHR welcomes funding bids for all health areas incl Sickle Cell.Contains Parliamentary info licensed under the Open Parliament Licence v3.0
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We're supporting a paid opportunity for people with lived experience of sickle cell or thalassaemia to join a working group to improve school support. Sessions run online from Sept 2025 to Jan 2026. Deadline to register is 8 August. Sign up:
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Join Team Sickle Cell at Tough Mudder 2025 💪. Choose a 5K or 15K obstacle course at one of 14 events and raise awareness for those living with sickle cell. Medal, T-shirt, headband, drink & parking included. 🔗 Sign up: #ToughMudder #SickleCell
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A month on from #WorldSickleCellDay, we’re reflecting on some incredible events: from Royal London & Central Middlesex to Sheffield with SYSCO. Thank you to all who helped raise awareness. #SickleCellAwareness #ACTNOW #SickleCellSociety
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As we gear up for more races, we're celebrating our amazing London Marathon runners from April! 🏁. Thank you for your strength, support, and dedication to the Sickle Cell Society. London 2026 spaces pending… stay tuned!.#SickleCell #TeamSickleCell #LondonMarathon
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