UHB CF Physios
@CF_physios
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Providing physiotherapy information and advice for adults with Cystic Fibrosis. Our tweets do not replace the specific advice from your own physiotherapist.
West Midlands Adult Cystic Fibrosis Centre
Joined August 2017
It's a goodbye to X, for now, from the West Midlands Adult CF Physio team. Please do stay in touch via our website https://t.co/u2NpwMFZio
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We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3) ➡️ https://t.co/hZj2aQsIH9
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Hot off the press! We have just released the agenda for our meeting to launch the new Standards of Care for people living with #NTM disease. To take a look and to register to attend this free meeting, please visit: https://t.co/zechwzmnXU
@UCLTB @NHSEngland @BTSrespiratory
ntmnetworkuk.com
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Publication Alert!📢🚨😀This commentary discusses a RCT that we failed to recruit to. https://t.co/NMrcJ7bsRA "Why publish something that didn't work?!" some may ask. "Why hide it?", I say. We learn many lessons along the way, and these papers help the whole academic community.
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Have you checked out our online resources on physiotherapy recently? 🫁 This leaflet talks about physiotherapy and airway clearance with diagrams explaining how CF affects the lungs and information on the different types of airway clearance. ➡️ https://t.co/Bri3u8lXNK
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Lung MRI has the potential to help in cystic fibrosis care but we need your help in understanding how this might work. Please complete our survey and share your views: https://t.co/PgikxQSRZF
#MRI #CysticFibrosis
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👋 Hi everyone, I'm Catherine Brown, the new ACPCF Public Relations Officer. I wanted to take the opportunity to introduce myself, ask about you, and ask if there is anything you'd like to see on here :) Please comment below👀⬇️ #ACPCF #CFPHYSIO #CFTRUST #CYSTICFIBROSIS
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Please participate in this online focus group ✅work in UK Adult CF Centre ✅dietitian, physio, CNS or Dr ✅ opportunity to share your views on weight management and CF @bda_cf @CF_Exercise @CF_physios @cftrust Sign up to take part here https://t.co/FYdVo9gOud
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Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here https://t.co/OOsqPte4uW
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Today we are thrilled to announce a multi-year co-funding grant with @CFCanada looking into the bacteria Mycobacterium abscessus that causes serious lung infections in people with CF. You can find out more about this exciting research on our website! ➡️ https://t.co/Mg48P0d5pO
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Great to see everyone back in Birmingham for the ACPCF study days! We didn’t let the snow put us off ❄️☃️@acpcf
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🎆Happy New Year! 💛We hope you all had a lovely one! We wanted to highlight a great #CFliveevent that our Dietitian Katie is involved in! 💵Eating on a budget might be on your mind this new year so register below on come and see what tips/advice you can get!
Hear from professional chef Luke & others at our next #CFLive event, #Eatingonabudget on 10th Jan. ⭐"I’m looking forward to this CF Live and teaching people how to be thrifty when shopping, what to buy + when, & sharing some cooking tips and advice".⭐ https://t.co/jNg71byi8z
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@acpcf @AcpcfR @TheACPRC @ECFSPhySIG @CF_physios @AliGates8 @GemStanf @JanetMPhysio @hldouglas can you support & highlight this work. @milliephysio is continuing the fantastic work presented by @orla_physio @ECFSConference last year.
📢Are you a qualified physiotherapist who works regularly with patients with Cystic Fibrosis interested in the effects of Kaftrio on physiotherapy treatment?? 👋We would like to invite you to take part in a focus group to discuss your experiences. ⁉️ Scan the QR code for more.
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🎄 #CFElfOnTheShelf want's his height checked today 🤦Somethings not right! 🧦 When we check your's remember to take your shoes and hats off - why not take us giggle with silly socks this December! @bda_cf @cftrust @CFTrustYouth @CFAware @CF_physios #CF #CysticFirbrosis
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🎄It is almost December and we have a special guest joining us to take over our twitter for the month! 👀Keep your eye peeled this week to see who it is! @CFAware @bda_cf @CF_physios @CFLeeds @cfadultsni @cf_newcastle @adult_cf @yorkhullcf @AdultCystic @TeessideCF @ChildrensUnit
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CFPhysio 4 Kids is now live. This educational resource aims to empower, inform, and support you whilst navigating the CF journey. Thank you CFT for support through a Circle of Care grant to help make this next phase of https://t.co/s5ldgnGT7R happen. https://t.co/0QpvKKtkAV
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Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust
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First meeting as chair NMP ACPCF and a treat being back f2f. Great opportunity to discuss, share and collaborate all things prescribing with a room full of amazing clinicians @acpcf @CF_physios @CysticAdult @thecfphysio #cysticfibrosis #respisbest
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What a great opportunity to share work done in collaboration with our wonderful @acpcf NMP group- @AliGates8 @thecfphysio @Zoejohnstone10 @lrcarson1 @melarcher1973 @niclcoll What a dream team 🙌🤓⭐️
Wonderful presentation from #cysticfibrosis Physio Catherine Brown about the specialist role in the regional centre here at #HeartlandsHospital at @uhbtrust @UHBTherapy and the impact of covid on their non-medical prescribing practice #AHPsDay2022
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