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Cystic Fibrosis Profile
Cystic Fibrosis

@CFLeeds

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Following
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Keeping you up to date with news and events on the Adult CF Unit in Leeds #J6CFUnit

Joined December 2014
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@CFLeeds
Cystic Fibrosis
1 month
This is our poster being displayed tomorrow at #PEN25, showcasing the amazing work of our patient-led CF group ๐Ÿ’œ. Huge thanks to everyone who has taken part and shared their voices โ€“ this wouldnโ€™t be possible without you! ๐Ÿ™Œ
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@CFLeeds
Cystic Fibrosis
1 month
Sarah M Media1 https://t.co/Og1xS2FF5l via @YouTube ๐Ÿ’œ Thanks to Sarah for this video! Our next online CF group meeting is Thurs 6pm โ€“ a space for patients to connect, share & shape care. Tomorrow weโ€™re at a national award #PEN25 โ€“ showing how patient voices improve care.
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@CFLeeds
Cystic Fibrosis
2 months
๐Ÿ’› Are you an adult living with cystic fibrosis who has also experienced cancer? โ€“ researchers at Leeds Beckett Uni want to hear your story. ๐Ÿ“ž 45โ€“60 min flexible interview (phone/video). โœ‰๏ธ rebecca.spencer@leedsbeckett.ac.uk | ๐Ÿ“ž 0113 812 4139
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@CFLeeds
Cystic Fibrosis
3 months
๐Ÿ’™ Big news from J06! Weโ€™re raising funds for a TOSCA machine โ€” vital for monitoring oxygen levels overnight. Help us make this a reality for the adult Cystic Fibrosis ward. Donate or share today! ๐ŸŒŸ @CFLeeds #CysticFibrosis
justgiving.com
Help Jason Swarbrooke raise money to support Leeds Hospitals Charity
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@CFLeeds
Cystic Fibrosis
3 months
๐ŸŽ‰ Last week, the CF Patient Focus Group won LTHTโ€™s Patient Experience Award! A huge thank you to all the patients whoโ€™ve helped shape the group โ€” your voices are at the heart of everything we do. Together, weโ€™re improving patient experience across the board ๐Ÿ’™๐Ÿ‘ #PatientVoice
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@CFLeeds
Cystic Fibrosis
4 months
โฆ@CFLeedsโฉ physio Dean has been awarded an IRIS award today for his amazing collaborative work. Well done Dean! โฆ@LeedsHospitalsโฉ โฆ@LTHTRespiratoryโฉ
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@CFLeeds
Cystic Fibrosis
5 months
๐ŸŒŸ Please join us in welcoming two new faces to J06! ๐Ÿ‘ฉโ€โš•๏ธ Lauren, our new CF diabetic nurse specialist, brings a wealth of experience in diabetes care. ๐Ÿ’› Kyra joins us as a clinical support workerโ€”super friendly and ready to meet everyone! Weโ€™re lucky to have them! #Welcome
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@CFLeeds
Cystic Fibrosis
5 months
โฆ@CFLeedsโฉ had a fantastic time at the European Cystic Fibrosis Society Conference last week ๐Ÿซ๐Ÿ‡ฎ๐Ÿ‡น The Leeds adult team learned lots, presented posters and even featured on the programme #goteam
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@CFLeeds
Cystic Fibrosis
5 months
Dr Clifton presenting @CFLeeds poster on a patient questionnaire exploring access to dental services โ€” offering a valuable perspective on oral health in adults with cystic fibrosis.
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@CFLeeds
Cystic Fibrosis
5 months
Dietitian Alice presenting her poster on patient experiences with fibre gel, based on findings from her questionnaire โ€” offering valuable insights.
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@CFLeeds
Cystic Fibrosis
5 months
CNS Rita presenting her poster on the flushing solutions used for totally implanted venous access devices (Port-a-Caths) in CF centres across the UK โ€” highlighting variations in practice and the need for standardised care
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@CFLeeds
Cystic Fibrosis
5 months
A huge thank you to anyone who has completed a survey over the past year- we are listening and we are putting your comments to the wider CF community at conference this week #ecfs2025
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@CFLeeds
Cystic Fibrosis
5 months
Hello from Milan! Nine members of the @CFLeeds team have come to the 48th European CF conference. So much inspiring content and a great opportunity to share our experiences too.
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@CFLeeds
Cystic Fibrosis
7 months
After 30 incredible years, today we say goodbye to Julie on her last day at โฆ@CFLeedsโฉ . From housekeeper to ward clerk, sheโ€™s been the heart of J06. It wonโ€™t be the same without her. Thank you, Julie โ€“ and happy retirement!
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@CFLeeds
Cystic Fibrosis
11 months
The Christmas raffle has been drawn! Congratulations to all those who won prizes, we will be in contact with you to arrange collection of your goodies๐ŸŽ Thank you to those who donated prizes and purchased tickets! Merry Christmas everyone and a happy New Year๐ŸŽ‰
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@CFLeeds
Cystic Fibrosis
11 months
Today marks Housekeeper Tinaโ€™s last shift after 11 years of dedicated service. Tina has been the heart of โฆโฉ โ€“ always hardworking, cheerful, and a source of endless positivity. Weโ€™ll miss your warmth and energy, Tina! Wishing you a well-deserved, fantastic retirement.
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@CFLeeds
Cystic Fibrosis
11 months
๐ŸŽ„๐ŸŽ‰ โฆ@CFLeedsโฉ Christmas Raffle is here! ๐ŸŽ‰๐ŸŽ„ Grab your tickets for just ยฃ1 a strip & take a shot at naming the bear for ยฃ1 a go! ๐Ÿงธ A huge THANK YOU to everyone who donated prizes ๐Ÿ™Œ All funds go toward Christmas presents for inpatients & year-round comforts! โค๏ธ
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@CFLeeds
Cystic Fibrosis
1 year
Exciting news! ๐ŸŽ‰ Dr. Christine Etherington has been shortlisted for the Outstanding Adult CF Care Award at the @cftrust 60th anniversary awards! She met Richard Madeley at the online ceremony and is honored by the patient nominations. Congrats, Christine! ๐Ÿ‘ #CFawards
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@CFLeeds
Cystic Fibrosis
1 year
@CFLeeds Had a fantastic time attending the Transpennine Cystic Fibrosis meeting! A valuable opportunity to learn about the future and challenges of CF care. Huge thanks to Dr. Rowland Bright-Thomas, Dr. Fran Gilchrist, and PARI for organizing such an insightful event! #CF
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@CFLeeds
Cystic Fibrosis
1 year
๐ŸŽ„๐ŸŽŸ๏ธ Christmas Raffle for Adult Cystic Fibrosis ๐ŸŽŸ๏ฟฝ๏ฟฝ๏ฟฝ๐ŸŽ„ Help spread holiday cheer! Funds raised will go toward Christmas gifts & comfort supplies for CF patients. Grab your tickets at J06 or at clinic. Thank you for your support! โค๏ธ #CysticFibrosis #ChristmasRaffle #SupportPatients
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