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Ataxia and Me CIO 1184030 Profile
Ataxia and Me CIO 1184030

@Ataxia_and_Me

Followers
4K
Following
27K
Media
19K
Statuses
79K

#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma

Wales - Cymru + Global
Joined August 2016
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
5 months
Checkout our #SocialMedia channels and our website from #Ataxia / #Raredisease #Charity based in #Wales with a #Global Following #Patient #Pharma #StrongerTogether for @rarediseaseday
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
14 hours
ICYMI.*Nominate now to BOOST to £2000 *.@benefactgroup is giving £1,000 to charities. #Atacsia #Ataxia #Charity #Cymru / #Wales. (28th July Draw). ✅ Scan the QR code or visit . ✅ Submit your nomination—it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
14 hours
RT @advancedNTC: 🧠 We can't believe it's nearly been a month since our #helloadvanced event!. Thanks again to everyone who joined us from a….
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
17 hours
RT @theAMRnarrative: We're excited to launch a music video "AMR heroes" a collaboration by The Hope Music Foundation &.@theAMRnarrative . T….
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
18 hours
RT @alanROYGBIV: *Nominate now to BOOST to £2000 *.@benefactgroup is giving £1,000 to charities. #Atacsia @atacsia_a_Fi #Ataxia @Ataxia_and….
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
22 hours
1 in 17 people in the UK will be affected by a #RareDisease but the realities of living with one often go untold. Learn about my story and why my Passport is significant to me in my #RD journey. Visit the #IAmNumber17 website to learn.
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
1 day
*Nominate now to BOOST to £2000 *.@benefactgroup is giving £1,000 to charities. #Atacsia #Ataxia #Charity #Cymru / #Wales. (28th July Draw). ✅ Scan the QR code or visit . ✅ Submit your nomination—it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
ICYMI.*Nominate now to BOOST to £2000 *.@benefactgroup is giving £1,000 to charities. #Atacsia #Ataxia #Charity #Cymru / #Wales. (28th July Draw). ✅ Scan the QR code or visit . ✅ Submit your nomination—it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
#Ataxia is NOT a foreign Cab/Taxi.Be aware of this #RareDisease--👍 .Follow @Ataxia_and_me #Ataxia #charity Wales. Support us at our .@Localgiving webpage.
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
RT @AtaxiasARG: Expanding the clinical spectrum of RAB3A: from cerebellar ataxia to spastic paraplegia.@Brain1878 .
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
*Nominate now to BOOST to £2000 *.@benefactgroup is giving £1,000 to charities. #Atacsia #Ataxia #Charity #Cymru / #Wales. (28th July Draw). ✅ Scan the QR code or visit . ✅ Submit your nomination—it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
*Nominate now to BOOST to £2000 *.@benefactgroup is giving £1,000 to charities. #Atacsia #Ataxia #Charity #Cymru / #Wales. (September draw). ✅ Scan the QR code or visit . ✅ Submit your nomination—it only takes a minute!
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
RT @Share4Rare: 🤔 Do you want to launch a research project with your #raredisease and your associates? Not sure how to benefit from the ser….
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
RT @AtaxiasARG: The clinical burden of #Friedreich ataxia in the United States: A retrospective claims database analysis..
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
2 days
RT @lifearc1: These human medulloblastoma (DAOY) cells have been probed for IL6 RNA during motor neuron disease assay development, along wi….
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
5 days
🍔 TOO #HOT to #Cook ? order a #takeaway and Make it count! 🍕. Order via @GiveasyouLive & they’ll donate to #Atacsia / #Ataxia . #Charity —at no extra cost!. Order now . #Pizza #Kebab #Heatwave
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
5 days
RT @SBDRareProject: Having seen many posts on different SEN related social media platforms about the film ‘Out of My Mind’ we knew we had t….
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
6 days
ICYMI.** THANK YOU ** .Anonymous for your generous #Donation.#Ataxia #Raredisease #Pateint #Charity #Wales + Global. #FindYourPower to support us at. #StrongerTogether
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
6 days
📣 We have delivered an open letter to the #Government calling for greater awareness and support to ensure people with a #RareDisease receive the care and understanding they need and deserve. Read the full letter here to learn more: #IAmNumber17
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
7 days
RT @OHRareDisease: Thank you Alan for sharing your story and raising awareness for the whole #raredisease community 💪💪💪.
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
7 days
RT @AtaxiasARG: Cerebellar involvement in #HIV is typically associated with opportunistic infections or neoplasia. This case illustrates th….
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