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Addison's Disease Self-Help Group (ADSHG) Profile
Addison's Disease Self-Help Group (ADSHG)

@AddisonsUK

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The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA

UK & Ireland
Joined February 2015
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
12 days
Addison's disease & adrenal insufficiency are lifelong conditions that require daily medication & management. Being well-informed & prepared will not only help you manage your health but also make you feel more confident & in control. Read more ➡️ https://t.co/ykcrRhf9ax
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
7 days
Back to School? 🎓 Whether your child is back to school already or getting ready for the start of term, we have resources to help support your child manage their Addison's and adrenal insufficiency! Visit our webpage for advice and support ⤵️
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addisonsdisease.org.uk
Addison's disease and adrenal insufficiency can strike at any age. We provide support and information around the specific issues facing children, teenagers and their families. From managing school to...
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@grok
Grok
26 days
"A modern black glass house with warm lighting, nestled among tall trees beside a tranquil river in a misty forest." Create images and videos in seconds with Grok Imagine.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
8 days
What your £33 could do: ✅ Provide 12 months of support, advice & connection ✅ Share life-changing resources & trusted information ✅ Help someone feel less alone navigating Addison’s or adrenal insufficiency Together, we can ensure nobody has to face this rare disease alone.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
8 days
💜 Sponsor a Member this September 💜 This September, you can give the gift of connection. For just £33, you can sponsor a digital membership and welcome someone facing financial difficulties into the supportive ADSHG community 🤲 👉 Donate today 🔗 https://t.co/ReSxiojXZr
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
11 days
Begin fundraising and make a difference! 💜 Whether you run, walk, cycle or bake (or something else), your fundraising helps us provide vital support and raise awareness for everyone affected by Addison’s and adrenal insufficiency. 👉 Sign up today 🔗 https://t.co/IBTgNjsPzi
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
12 days
If you’re looking for more support, join our charity! We're here for you. Your membership also helps fund research, free publications & gives the Addison's & adrenal insufficiency community a stronger voice. We couldn’t do it without you! https://t.co/XDko6e3gz3
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addisonsdisease.org.uk
Membership is open to anyone with Addison's, or other forms of adrenal insufficiency that result in steroid dependence. Family members, friends or anyone with an interest in adrenal medicine are also...
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
13 days
@AldonsChua Are you a member of our charity? Members receive our Addison’s magazine, a Welcome Pack of expert info, access to our online forum & the chance to connect with others at events. Your membership strengthens our voice & supports vital work. Join us! ⤵️ https://t.co/XDko6e3gz3
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addisonsdisease.org.uk
Membership is open to anyone with Addison's, or other forms of adrenal insufficiency that result in steroid dependence. Family members, friends or anyone with an interest in adrenal medicine are also...
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
13 days
Tablet time & a cuppa? The perfect moment to catch up on the Addison’s Magazine! Enjoy personal stories, a focus on exercise & bone health, a research update from @AldonsChua & #AddisonsDiseaseDay roundup, alongside expert, trusted articles. Read more ⤵️ https://t.co/0zCE9Cr1ZD
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
14 days
Summary of the new @NICEComms Guideline: adrenal insufficiency: identification & management - all in one infographic! Read online & our members have received a "cut out & keep" printed copy in the Addison's Magazine to share with their healthcare teams. ➡️ https://t.co/MDke6Bf7Xc
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bmj.com
### What you need to know Adrenal insufficiency is the inadequate production of the hormone cortisol from the adrenal glands. Global prevalence ranges from 0.4/100 000 (South Korea) to 15-22/100 000...
@hormone_doc
Helen Simpson
4 months
Pleased to share @bmj_latest summary of NICE guideline on Adrenal Insufficiency. Resources galore to share https://t.co/uLvwVHKIEj
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
14 days
Jenn was diagnosed with Sheehan’s Syndrome when her son was days old. Living with secondary adrenal insufficiency, she repeatedly went into adrenal crisis. Then she found @MedDetectDogs and Joy, her cortisol alert dog. #InternationalDogDay Read more ⬇️
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addisonsdisease.org.uk
Following multiple life-threatening adrenal crises as a new Mum, Jenn was determined to find a way forward. Jenn's research led her to Medical Detection Dogs and now Joy is her cortisol alert dog....
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
18 days
Join Kelsey & Joe for a 24-Hour Gym Fundraiser in support of their son, Dougie! 💪 📅 10am Saturday 18 October - 10am Sunday 19 October 📍 Bruno's Gym, Market Harborough, LE16 9PL ✅ Free to take part - everyone's welcome! Sign up & find out more 👇
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addisonsdisease.org.uk
Join Kelsey and Joe for a 24-Hour Gym Fundraiser in Support of Dougie!
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
19 days
Remember, you’re not alone & there are places that can help, inc @Raremindsuk. They offer mental health support for the rare disease community & cover all aspects of living with a rare condition. Visit their Wellbeing Hub this #NationalWellnessMonth ⤵️ https://t.co/wpPfXEFpLd
rareminds.org
These pages are also available in Welsh/Cymru. Please use the menu in the bottom right hand corner.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
19 days
Visit our ‘Reducing the stress of a long-term condition’ webpage for more tips & resources for those with Addison’s & adrenal insufficiency. #NationalWellnessMonth ⬇️How to reduce levels of stress 💊Do I updose? 🧠Mental illness 💬Professional support https://t.co/CW7Yy1JvJV
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addisonsdisease.org.uk
How can we manage any stress or anxiety that we experience as a result of living with a long-term medical condition? We share resources for looking after your mental health.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
19 days
Living with a chronic condition like Addison’s and adrenal insufficiency can be stressful, and stress can make the condition worse and symptoms harder to manage. Inspired by #NationalWellnessMonth, we want to share some important reminders that can help ease these feelings 👇
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
22 days
Share support in Shoreham-by-Sea! 🤗 Join our wonderful volunteer host, Wendy, for a warm and welcoming ADSHG Members' Social Meeting by the sea. 📅 Sat 6 Sept, 10.30am - 12.30pm 📍 Shoreham-by-Sea, West Sussex 👥 ADSHG Members Only RSVP here ⬇️
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
25 days
This #FundraiserFriday we're celebrating Shirley, Zoe & Francine, who recently hosted a fantastic driveway sale to raise funds for the ADSHG – raising over £360 & counting! 🎉 They brought their community together for a sunny day of raising funds & awareness of our charity.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
26 days
Siblings Eddie and Grace found themselves thrown into an unusual situation when Eddie started displaying signs of Addison’s disease, whilst Grace was studying Addison’s at medical school. Read their experiences on our blog 🔗 https://t.co/B86z6qJ3W6 @MedicsForRare
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addisonsdisease.org.uk
Siblings Eddie and Grace found themselves in an unusual situation when Eddie started displaying signs of Addison’s disease whilst Grace was studying Addison’s at medical school. This kickstarted a...
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
28 days
✔️ For more 'Addison's Admin' tips, check out our regular page in our Magazine. We include a checklist of reminders to help you manage your Addison's or adrenal insufficiency between appointments 🔗
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addisonsdisease.org.uk
Our bi-annual members' magazine is packed with news and information to live well with Addison's Disease.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
28 days
This is a great chance to: 🔍 Check your medicines and emergency injection kits are in-date. 💊 You have sufficient extra should you need to increase your dose as the Sick Day Rules, due to being unwell. 🧰 Your loved ones know where you keep your emergency injection kit.
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@AddisonsUK
Addison's Disease Self-Help Group (ADSHG)
28 days
⏰ 'Addison’s admin' reminder! The last bank holiday before Christmas is less than two weeks away! In preparation for the long weekend, request your repeat prescription to make sure you have the medication you need when some services may be closed.
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