Sonia S.
@soniaserrano0
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My aim in life is to help children and young adults with PANS and PANDAS. Finance background but love making crafts. Above all... I love my children.
Joined January 2017
@soniaserrano0 @aylott_laura @BPNA_org We missed the early signs. What I find astonishing though is the number of doctors, OTs, SENCOs I spoke to and no one suggested #pans or #pandas. More awareness needed... #panspandashour
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Those that have experienced & been affected by #Pans #Pandas have real empathy. We know how debilitating the symptoms can be & how devastating it can be not to get appropriate treatment. We stand together with @notestomyboy 💚 we live in hope of change 🙏🏻 soon
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Thanks 🙏@DrSarahJarvis
#Pans is one of the many diagnoses children and young people living with #LongCovid can receive. We are pleased to be supported by @PandasPans & have learnt so much about #Pans We need more #Neurology Long Covid #research
#LongCovid #LongCovidKids
One day I won't be needed to help raise awareness, because everyone will understand the devastating impact of #Panspandas
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and even save costs to health care systems." Untimely care: How the modern logics of coverage and medicine compromise children's health and development https://t.co/GEnwPiHdNf
@PandasPans @theEXPANDAssoc @PANDASPPN @ASPIREpans 2/2
pubmed.ncbi.nlm.nih.gov
How do families manage when health care systems do not "cover" and clinicians do not acknowledge their children's condition? This article presents an ethnographic study in the Northeastern region of...
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How I this being allowed to happen? How? This is a CHILD. A sick child who is being denied the treatment he so desperately needs.
#panspandashour as a direct result of the BPNA statement my Son is currently in hospital but being denied any PP treatment. He’s naked and been sleeping on the floor for 7 days, not eaten for 3 and not drank or used toilet for nearly 2. How is this happening in 2022? 💔💔
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Sat 7th May 2022 marked 5 years since my daughters onset of #PANS (Paediatric Acute-onset Neuropsychological Syndrome.) On this anniversary I thought I would share some info on all the symptoms, a bit of our story and some videos my daughter made to raise awareness. 1/24🧵
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#panspandashour as a direct result of the BPNA statement my Son is currently in hospital but being denied any PP treatment. He’s naked and been sleeping on the floor for 7 days, not eaten for 3 and not drank or used toilet for nearly 2. How is this happening in 2022? 💔💔
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Taking care of someone with 'active' #PANS #PANDAS often means: 1. Not being able to get out, because your loved one has #separationanxiety. 2. Risking that your loved one does not eat well, because of #ARFID 🟠🟠🟠#pansPandasHour
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#PANS effects the whole family. #Siblings, being sent to their rooms (to keep them safe) while their ill sibling rages for hours, attacking others, self harming & screaming through hallucinations. Sat in their room, alone, scared and confused. #CarerBurden #YoungCarers #PTSD
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After a hellish few years of battling for help, we've had 2 positive encounters with NHS doctors who are helping my boys with #PANDAS. The relief is immense.
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Diane Palmer @NurseDiane2020 uses her new status as @BJNursing "Nurse of the Year" to call for increased awareness of little recognized condition in children in efforts to improve their treatment and outcomes. #PANS #PANDAS
https://t.co/rhLjSRojSI
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