SockittoSarcoma
@sockittosarcoma
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Not-for profit promoting community awareness and sarcoma research
Joined January 2013
This is a great project and we are really pleased to be able to support it. We would encourage you to add input towards a great future resource.
Would you like to get in involved with a project looking at building a sarcoma well-being guide. For more information please click here: https://t.co/jY58CBzF4E Curtin University Human Research Ethics Committee (HREC) has approved this study (HREC no.HRE2024-0011).
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One of the many things about large scale precision oncology programs: they enable discovery of new entities. EP300::VGLL3 rhabdomyosarcoma: a potential distinct indolent adult rhabdomyosarcoma subtype - ESMO Rare Cancers https://t.co/wSgsyh387H
@OmicoAustralia @UNSW
esmorarecancers.org
A case of EP300::VGLL3 fusion-positive spindle cell rhabdomyosarcoma (SRMS) of the tongue is presented. The 58-year-old male, who has a background of Lynch syndrome, remains disease free 34 months...
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To all of the nurses who work with such dedication within our sarcoma community - THANK YOU! ☺️
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🧬 Genetic Predisposition in Sarcoma Up to 20% #sarcoma may be assoc. with predisposition genes In our 📝 we review evidence on genetic predis. & how it may influence Rx decisions & management inc. surgery, radiotherapy, systemic Rx & surveillance 1/4 https://t.co/xLEdL9LLpK
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Wishing everyone a fantastic day today and a massive thank you for the support for the sarcoma community
Headed to the Charity Shield at Melrose Synthetic today? Please be aware of the limited parking available on -site. We ask that you either carpool or park at the nearby shopping centre. #GameOn #CharityShield
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We are absolutely thrilled to be able to congratulate our amazing colleague Georgia Halkett on her well-deserved promotion to the post of full Professor at Curtin University. Georgia, we are so proud to be working with you on so many worthwhile projects for our sarcoma community
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Wonderful to see Breanna in this graduation photo, being one of our PhD Top-Up Scholarship recipients. Onwards and upwards!!
A huge congratulations to our Honours and PhD students who graduated from @uwanews in December! 🎓 We are incredibly proud of their achievements and their contributions to the WA Kids Cancer Centre. We can’t wait to see what they achieve next!
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At Telix, we are united by a common purpose – to help people living with cancer and rare diseases live longer, better quality lives. This year, more than 100,000 Telix doses were delivered to patients through our approved imaging agent, clinical trials and early access programs.
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Really great to have been able to support this work.
Cancer Centre researcher @DrBenWylie shared an update on his work to develop new immunotherapies for kids with sarcoma at @TheKids_AU Illuminate Sundowner. Dr Wylie received Illuminate Award at The Kids' Illuminate PitchFest earlier this year. More: https://t.co/S2rPQtqKoy
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If you have a lived experience of cancer join us at this Community Conversation on the 13 Nov & help researchers better develop #RNA technologies to transform #cancer treatment https://t.co/7OSjAx4zkX A $70 honorarium is offered
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Please consider participating in this study run by the fab @CESchilstra and retweet if you know anyone who would be interested in participating 🙏 @ShortMichala @CEwakefield @ANZoncofert @ChrisSigno
Are you a medical or allied health professional who works with children/adolescents with cancer in a hospital-based setting in Aus or NZ? Researchers at @UNSW are investigating how PROMs are used in clinical practice. Complete the survey here: https://t.co/odnM13M64X
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This course is making its debut at the International Society of Limb Salvage in Brisbane, October 2024. If you are interested in more information about the course or opportunities in attending a workshop, please contact Associate Professor Georgia Halkett. @Georgia_Halkett
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This workshop offers healthcare professionals the opportunity to refine these critical skills, ultimately leading to better outcomes and experiences for those affected by sarcoma.
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Effective communication is at the heart of quality healthcare. For people diagnosed with sarcoma and their families, clear, empathetic, and informed communication from their healthcare team can make a world of difference.
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4. Understand unique challenges faced by sarcoma patients and caregivers •Recognize and respond to emotional cues related to anxiety, distress, anger, and depression •Develop strategies to support patients through their sarcoma journey •Enhance overall communication
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2.Evidence-Based Approach: All content is backed by extensive research and practical application, ensuring you receive the most up-to-date and effective strategies. 3.Hands-On Learning: Engage in real-life scenarios with skilled actors, simulating authentic interactions
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Workshop Highlights: 1.Expert-Led Training: The program is facilitated by Ms Debra York, a clinical psychologist and accredited communications skills trainer, and A/Prof Georgia Halkett, bringing a wealth of experience in radiation therapy.
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This workshop aims to equip healthcare providers with the tools and techniques needed to navigate difficult conversations and provide compassionate, effective support throughout the sarcoma journey.
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At Sock it to Sarcoma!, we're always looking for ways to improve care and support for people affected by sarcoma. We’re excited to share a new training opportunity : a specialized communication skills workshop for health professionals working with the sarcoma community.
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