Clarissa Schilstra, PhD
@CESchilstra
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2x cancer survivor, PhD in AYA Psycho-Oncology, author: Riding the Cancer Coaster: Survival Guide for Teens and Young Adults (on Amazon)
Sydney, New South Wales
Joined January 2013
Have you or a family member ever been diagnosed w/ cancer? Help us amplify the lived experiences of ppl affected by cancer around the 🌎& inform healthcare policies/programs to improve cancer care. Share your experiences in our survey. Available in 21 languages, closing July 31!
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This World Childhood Cancer Day, we are seeking childhood cancer survivors who are 18+ yrs old from around the 🌎 & want to share their experiences through a survey that'll help improve global policies/programs to better support children & young ppl with cancer & their families!
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This World Childhood Cancer Day, please help me and the WHO understand the lived experiences of childhood cancer survivors and their families - plz do our survey if you're 18+ and ever had cancer, or ever had a family member affected by childhood cancer!!
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Guess what? Vaccine scientists know exactly what’s in every vaccine, how much, & why they’re included. Why? Because scientists put them there. That’s literally how medicine formulation works. People claiming “no one knows what’s in your vaccines” are telling on themselves.
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Complete the WHO lived experience of cancer survey in French, Spanish, Russian or Romanian!📝
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Complete the WHO lived experience of cancer survey in Turkish, Arabic, Brazilian Portuguese or Mandarin!📝
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Your responses can help the WHO to develop policies and programs to better support people diagnosed with cancer and their families around the world! And the survey is available in 9 languages!🌎📝
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This World Cancer Day, please help me & a team working with the World Health Organization, to better understand the lived experience of people affected by cancer🔁🌎. If you're 18+, have ever been dx w/ cancer, or have had a family member ever dx w/ cancer, please complete our 📝
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Visit the 🔗 to access the @WHO global survey on the lived experience of ppl affected by cancer in English, Spanish, French, Chinese, Arabic, Russian or Brazilian Portuguese. https://t.co/UQsC8d9NIW
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Are you age 18+ and have you ever been diagnosed with cancer as a child, AYA or adult? Or are you the family member or caregiver of someone diagnosed with cancer? Or perhaps have you lost a loved one to cancer? Plz complete our survey 🖥️📝here:
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In partnership with @WHO, @CEwakefield Julie Cayrol @JordanaMcloone @LoriWIener and our 🌟 team of researchers & advocates are thrilled to announce the launch of our 🌎 survey on the lived experience of ppl affected by cancer. A🧵 https://t.co/o3pXCJy9UK
who.int
During their lifetime, 1 in 5 people are diagnosed with cancer. Nearly every family around the world is affected by cancer, either directly or as caregivers of someone who has had cancer.
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I recently contributed to @Resolve_GH's special report on addressing global disparities in childhood cancer. With 1000+ children diagnosed each day, it’s crucial to raise awareness of the psychosocial & financial impact on children and their families.
re-solveglobalhealth.com
In the fight against childhood cancer, the triumphs of modern medicine should be matched by equally significant improvements in life.Claire E Wakefield & Clarissa E Schilstra — Globalhttps://static...
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Are you a medical or allied health professional who works with children/adolescents with cancer in a hospital-based setting in Aus or NZ? Researchers at @UNSW are investigating how PROMs are used in clinical practice. Complete the survey here: https://t.co/odnM13M64X
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📢 Have you or a loved one been diagnosed w/ cancer before their 19th bday? We want to hear what unanswered questions you have about child & adolescent cancer. Take 15-mins out of your day to tell us & be a part of driving future research in this field! https://t.co/Xe8lsZ0y8r
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Excited to share my 🚨 final PhD paper🚨 exploring prevalence/course of clinically significant social anxiety symptoms in AYAs w/cancer! Is social anxiety 🔗survivors' poor social outcomes? #AYACSM @jefardell @usansomdaly @ANZoncofert
liebertpub.com
Purpose: Social anxiety disorder (SAD) remains an understudied potential link between the cancer experience and adolescent and young adult (AYA) cancer survivors' poor psychosocial outcomes. We...
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Hey Aussie #cancersurvivor friends who currently have cancer and are under 24 y.o. or who, like me, are over 24 y.o. but had cancer when you were younger: help researchers better understand your experience of symptoms and side effects by filling out this quick survey! #AYACSM
We are seeking parents & carers of children who have, or who have survived #cancer to complete a survey about the most troubling cancer symptoms. The results will inform our research priorities to find better treatments for people living with cancer: https://t.co/uvz5gm5Jfj
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Harrowing evidence that women are 6x more likely to experience partner abandonment after serious illness than men Once again the social history is SO much more than alcohol/smoking/drugs, Y/N We need to understand who is caring for our patients at home https://t.co/taypmBfzbT
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Officially graduated with my PhD!👩🎓 @jefardell & @usansomdaly, you have been the most incredible mentors, guiding me through this PhD, but also my first years of motherhood. Eternally grateful for all you've done to support me!❤️ And so glad I get to keep working with you!😊
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On 9 May 2023: 3:45pm - 4:30pm AEST, Canteen is hosting a National Education Professionals Training webinar on the impact cancer can have on students. To register for the webinar, click here: https://t.co/uOELlZJVYR
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📢Calling all young ppl 16-25 in 🇦🇺 who've ever been diagnosed with cancer! Want to have your say in a new website resource for the @CanteenAus Edu/Career counselling service? Plz register for our workshop! https://t.co/EplFUsboRy
#AYACSM
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