Big thank you to @HNHCP board members for inviting us to their nursing education conference in Zurich! Our research assistant Silene ten Seldam presented on shared decision-making (SDM) in myeloma care. Watch our SDM animation:

Shared Decision making with Silene ten Seldam from Myeloma Patients Europe

Attendees are taking part in breakout session one led by MPE´s Research Assistant, Silene Ten Seldam, who will talk about shared decision-making between patients and medical teams. #SharedDecisionMaking #MPEMasterclass

@HansScheurer, @sillytenseldam and @EilidhMDuncan are representing MPE at the @EMA_News and @EORTC workshop on "How can PRO and HRQoL data inform regulatory decisions?" This event gathers the medical community for discussions and networking.

If you’re between 11-20 years old and live in the UK, please have a read about the work Silene is doing and get in touch with her if you’d like to help design her research project! #exercise #mentalhealth #ckd @KPIN_UK @queenofdialysis @kidneybeam_

Our Research Assistant, Silene Ten Seldam, is all set to present at #IMS23! Catch Silene's poster presentation at 13:30 Greece time, delving into #myeloma patient and clinician views on Minimal Residual Disease (MRD). Learn more: https://t.co/r18zSbsauw #EuropeanMyelomaDay

Today is #EuropeanMyelomaDay and is also the start of #IMS23 @Myeloma_Society meeting in Athens, Greece. MPE is thrilled to be part of the meeting and to present our patient research findings on MRD. Stay closely connected with us through our social media for updates!

Thank you to @WECANadvocate for having us and allowing us to share data challenges with patient reported outcomes (PRO) in cancer clinical trials and the need for SISAQOL-IMI with the wider cancer community. Find more information for patients here: https://t.co/XJoizuS1Nn

MPE staff, board members, and members across Europe participated in the @WECANadvocate academy. We presented on regulatory/HTA processes, governance and @sisaqol while also learning about research, advocacy tools, healthcare systems, policy and access.

WP8 just held their Educational Workshop deliverable at @WECANadvocate academy 2023. This workshop highlighted the need for patient involvement in the design process of clinical trials to have true input on the analysis and reporting of PRO data. More information will follow.

Silene, from @MyelomaEurope taking us through their recent research projects #MPEMasterclass #Myeloma #BloodCancer

Our superstar Research Assistant Silene ten Seldam presenting @MyelomaEurope patient evidence strategy and projects. There are big evidence gaps on #myeloma #ALamyloidosis patients needs, wants and preferences which we aim to strategically address.

MPE’s Head of Medical Education and Scientific Engagement, Solène Clavreul and Research Assistant, Silène ten Seldam presented on the Patient Evidence department and the Clinical Trial Navigator at MPE #MPEMasterclass 2023

MPE's Research Assistant, @sillytenseldam, is presenting the research findings from the Year of Action! #EuropeanMyelomaDay

Our members and staff are getting together to celebrate our welcome dinner at the 2022 #MPEMasterclass!