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Rupert’s Rainbow 🌈 Profile
Rupert’s Rainbow 🌈

@rupertsrainbow

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Rupert’s Rainbow 🌈 Supporting our smiling baby Rupert with AHC — a 1 in 1 million condition. Hoping to raise £1.5m for hope, research & a cure.

Joined January 2026
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@rupertsrainbow
Rupert’s Rainbow 🌈
8 days
Our precious Rupert is just 7 months old and has a rare neurological condition called AHC. He needs urgent treatment in the United States, and we’re fundraising £1.5 million to make it possible. Please donate or share Rupert’s Rainbow 🌈 https://t.co/YLaAbxpYKi #RupertsRainbow
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@rupertsrainbow
Rupert’s Rainbow 🌈
20 hours
Huge thanks to @DorkingWDRS manager Marc White for showing support for Rupert and helping raise awareness of AHC, a rare and life-threatening condition. Please donate if you can and help give our son a future. #rupertsrainbow 🌈 https://t.co/HfUzHn4ZFe
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@rupertsrainbow
Rupert’s Rainbow 🌈
1 day
We’re exhausted, but we have to keep going. And with your support, we still have hope 🌈 #rupertsraimbow Thank you 💙 https://t.co/HfUzHn4ZFe
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
We want to say a huge thank you to Dan, Leigh and Nige for fundraising in support of Rupert’s Rainbow 🚴🚴‍♀️🚴‍♂️ Please support 🌈 👉 https://t.co/CZ22fWAMkh
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
Here’s a little update 💙 Thank you so much for all the love and support, it honestly means the world to us! 🌈 #rupertsrainbow #AHCawareness #AHC https://t.co/HfUzHn4ZFe
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
🎯 On Target for Rupert’s Fundraising 🎯 We’re asking for your help to raise awareness of AHC, a rare and life-threatening neurological condition affecting our baby son Rupert. https://t.co/HfUzHn4ZFe A share could help give him a future 🌈 @LukeTheNuke180 @lukeh180 @MvG180
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
Hey @Everton, Would you consider lighting up @EvertonStadium in rainbow colours to help raise awareness of AHC, a 1 in 1 million, life-threatening neurological condition, and to support our baby son Rupert’s story? Awareness can help give him a future https://t.co/HfUzHn5xuM 🌈💙
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
Thanks @RobRyanRed for sharing and helping raise awareness. We really appreciate your support 🌈 https://t.co/HfUzHn5xuM #rupertsrainbow #AHC #WxmAFC #oneteam 💜
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
Hello @rickygervais 👋 A single share can change a life 🌈 Rupert is a baby living with AHC, a 1 in 1 million, life-threatening neurological condition. If you’re able to share his story, it would help raise awareness and bring us closer to giving him a future 💙
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@rupertsrainbow
Rupert’s Rainbow 🌈
2 days
By telling Rupert’s story, we hope to raise much-needed awareness of AHC and bring us closer to giving our son the future he deserves. Every share really does make a difference 🌈
@LivEchonews
Liverpool Echo
3 days
Mum and dad looked at baby son's eyes and knew something was wrong
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@rupertsrainbow
Rupert’s Rainbow 🌈
3 days
Yesterday Rupert visited Wrexham Maelor Hospital to see his consultant and the nurses we now see as extended family. Forever thankful for the care and for saving his life 💙 We also dropped Rupert’s Rainbow posters in town. The kindness blows us away 🌈 https://t.co/HfUzHn5xuM
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@rupertsrainbow
Rupert’s Rainbow 🌈
3 days
On Sunday 1st March, Nia will be walking from Buckley Town to Wrexham Maelor Hospital, carrying a weighted backpack, to raise awareness and funds for Rupert. The backpack represents the weight Rupert and our family carry every single day. The walk isn’t about distance or
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@rupertsrainbow
Rupert’s Rainbow 🌈
3 days
On Saturday 28th February, the amazing staff from Jigsaw Curzon House Day Nursery will be taking on a 20-mile round trip walk from Chirk to Llangollen along the canal, all in aid of Rupert’s Rainbow 👉 https://t.co/PUhPAfs3Ww Thank you for your support! #rupertsrainbow 🌈
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@rupertsrainbow
Rupert’s Rainbow 🌈
4 days
Thank you for sharing Rupert’s story 🌈 Awareness of AHC is so limited, yet it’s a life-threatening condition that affects our little boy every day. The more people who see Rupert’s story, the wider the audience we can reach — and the greater the chance we have of giving him a
@NationCymru
Nation.Cymru
4 days
The parents of a seven month old baby with an ultra-rare, life-threatening neurological condition have shared their hopes to help find a cure
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@rupertsrainbow
Rupert’s Rainbow 🌈
4 days
Physiotherapy is essential for babies like Rupert with AHC. AHC causes repeated, unpredictable episodes of paralysis or weakness that severely disrupt Rupert’s normal motor development. #rupertsrainbow 🌈 #AHC
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@rupertsrainbow
Rupert’s Rainbow 🌈
5 days
Thank you to every single person who has supported us, donated, shared, and stood by our family. Your kindness means more than we could ever say 🌈 #rupertsrainbow #AHC https://t.co/HfUzHn4ZFe
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@wrexhampolicefc
Wrexham Police FC
6 days
You’ve both done so much good in the community and genuinely made a real difference ❤️⚽️ @VancityReynolds @RobMcElhenney. As a father, I’m now asking for my own child. Rupert has AHC — a 1 in 1 million, life threatening neurological condition. I need to raise £1.5 million to help
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@rupertsrainbow
Rupert’s Rainbow 🌈
6 days
We’re on TikTok, Instagram & Facebook — please follow, like & share 🌈 📱 TikTok: @rupertsrainbow 📸 Instagram: @rupertsrainbowahc 💻 Facebook: Rupert’s Rainbow The more coverage we have, the more people we can reach, and the better chance we have of giving Rupert a future.
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