ern_reconnet Profile Banner
ERN ReCONNET 🇪🇺 Profile
ERN ReCONNET 🇪🇺

@ern_reconnet

Followers
3K
Following
6K
Media
992
Statuses
3K

🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET

Pisa, Toscana
Joined July 2017
Don't wanna be here? Send us removal request.
@ern_reconnet
ERN ReCONNET 🇪🇺
29 days
Register now for the 🆕@ern_reconnet #webinar “Microvascular Involvement in Antiphospholipid Syndrome (APS)” with Prof. Savino Sciascia, moderated by Prof. Ricard Cervera. 🎯Audience: healthcare professionals.🗓️Sept 3rd - 16 CEST.✍️Registration is🆓
Tweet media one
0
4
9
@ern_reconnet
ERN ReCONNET 🇪🇺
1 month
🧡 Today, ERN ReCONNET proudly recognizes Sjögren's Awareness Day! 👁️ .Explore Sjögren's Resources:.🔬 Discover all SjD-related content: 🎥 Watch our SjD webinars: .💡 Subscribe to our newsletter at
Tweet media one
0
6
15
@grok
Grok
3 days
Join millions who have switched to Grok.
162
191
1K
@ern_reconnet
ERN ReCONNET 🇪🇺
1 month
📢 ERN ReCONNET Newsletter #29 – July Edition is out!.CPMS 2.0 launch, new patient representatives, call for new Disease Coordinators, webinars, online accredited course & more on rare CTDs 🌍.🔗 Read: 📥 Subscribe: #ERNReCONNET
Tweet media one
1
2
7
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
🎓 The latest @ern_reconnet #webinar “The transition from benign to secondary Raynaud’s phenomenon” is now available on our YouTube channel!.🔗You can access the webinar here: 🌐 More info on rCTDs here:
0
1
1
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
Don’t miss TODAY’S @ERNReCONNET webinar at 16 CEST on “The transition from benign to secondary Raynaud’s phenomenon” with Prof. Maurizio Cutolo and Prof. Vanessa Smith, moderated by Prof. Gerd Burmester. ✍️Make sure you're registered to participate:
Tweet media one
1
1
8
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
🎓 The latest @ern_reconnet #webinar “Genetic Testing in the Era of NGS: Lessons from the Hereditary Connective Tissue Disorders” is now available on our YouTube channel!.🔗You can access the webinar here:
0
0
0
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
🧡 Today ERN ReCONNET joins the World Systemic Sclerosis Day 🌻.We support patients & HCPs with dedicated SSc resources, led by top experts & ePAGs. 🔗 🎥 SSc Webinars: 🗞 #WorldSclerodermaDay #ERNReCONNET
Tweet media one
0
6
16
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
🚀 Today ERN ReCONNET hosted a CPMS 2.0 Webinar with 65+ participants!.The new CPMS helps clinicians across EU manage rare & complex cases through secure virtual consultations. 🔗 Learn more about the CPMS here: #ERNReCONNET #CPMS #RareDiseases
Tweet media one
Tweet media two
0
0
1
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
Register now for the 🆕@ern_reconnet #webinar “The transition from benign to secondary Raynaud’s phenomenon” with Prof. Maurizio Cutolo and Prof. Vanessa Smith moderated by Prof. Gerd Burmester. 🗓️July 2nd - 16 CEST.✍️Registration is🆓
Tweet media one
0
3
12
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
TODAY: @ERNReCONNET webinar at 16 CEST on “Understanding Genetic Testing in the Era of Next-Generation Sequencing: Lessons from the Hereditary Connective Tissue Disorders” with Dr. M. Castori, moderated by Prof. M. Cutolo and Prof. A. Sulli. Register here:
Tweet media one
1
1
6
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
🎓 The latest @ern_reconnet #webinar “Thrombocytopenia in systemic lupus erythematosus (SLE)” is now available on our YouTube channel!.🔗You can access the webinar here: 🌐 More info on SLE here:
reconnet.ern-net.eu
0
0
0
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
🆕@ern_reconnet #webinar “Understanding Genetic Testing in the Era of Next-Generation Sequencing: Lessons from the Hereditary Connective Tissue Disorders” with Dr. Marco Castori moderated by Prof. Maurizio Cutolo and Prof. Alberto Sulli. ✍️Register here🆓
Tweet media one
0
0
3
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
Thank you to everyone who stopped by the ERN ReCONNET booth at #EULAR2025 Congress in Barcelona! It was great to meet our members and connect with new people interested in our Network💙 #ERNReCONNET #RareDiseases #Networking #ShareCareCure
Tweet media one
0
2
8
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
Don’t miss TODAY’S @ERNReCONNET webinar at 16 CEST on “Thrombocytopenia in Systemic Lupus Erythematosus (SLE)” with Dr. Karina de Leeuw and Dr. Hilde Kooistra, moderated by Dr. Maarten Limper. ✍️Make sure you're registered to participate:
Tweet media one
1
2
8
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
ERN ReCONNET is at #EULAR2025 in Barcelona! 🇪🇸.Lots of people are stopping by our stand and we’re loving the energy! 💬💙.Come meet the team in the NGO Area — we look forward to connecting and talking about rare and complex connective tissue diseases. #ERNReCONNET
Tweet media one
Tweet media two
Tweet media three
Tweet media four
0
2
11
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
Register now:🆕@ern_reconnet #webinar “Thrombocytopenia in systemic lupus erythematosus (SLE)” with Dr. Karina de Leeuw and Dr. Hilde Kooistra, moderated by Dr. Maarten Limper. 🗓️June 18th - 16 CEST.✍️Registration is🆓 ⚙️ on SLE
Tweet media one
0
3
12
@ern_reconnet
ERN ReCONNET 🇪🇺
2 months
❤️ ERN ReCONNET joins #WorldAPSday!. 🩸 💪The ERN ReCONNET APS Disease Group is proudly chaired by . 🔹Maria Tektonidou. 🔹Savino Sciascia. 🔹Silvia Aguilera . 🌐For resources and more information, visit: 📍Come and visit booth #O7 at EULAR 2025
Tweet media one
0
9
21
@ern_reconnet
ERN ReCONNET 🇪🇺
3 months
🎓 The latest @ern_reconnet #webinar “Imaging in Relapsing Polychondritis (RP)” is now available on our YouTube channel!.🔗You can access the webinar here: 🌐 More info on RP here:
reconnet.ern-net.eu
0
2
2
@ern_reconnet
ERN ReCONNET 🇪🇺
3 months
Don’t miss TODAY’S @ERNReCONNET webinar at 16 CEST on “Imaging in Relapsing Polychondritis (RP)” with Prof. Valentin S. Schäfer, moderated by Prof. Oliver Sander. ✍️Make sure you're registered to participate:
Tweet media one
1
2
4
@ern_reconnet
ERN ReCONNET 🇪🇺
3 months
🎓 The latest @ern_reconnet #webinar “Unmet Needs in Childhood-Onset Sjögren's Disease – Patient and Clinician Perspectives” is now available on our YouTube channel!.🔗You can access the webinar here: 🌐 More info on SjD here:
reconnet.ern-net.eu
0
1
3