Patrick James Lynch
@pjlynch
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Founder & CEO, https://t.co/kmRD092c6N | filmmaker, content producer, and bleeding disorders advocate
Los Angeles, CA
Joined January 2010
In a special three-part Blood Brother Collab, @pjlynch and Marc sit down with blood brothers to talk grief, identity, support, and strength. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #podcast
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Want to help create a better future for bleeding disorders, do ya?! Learn how to join @hemophiliafed's new initiative, The Voice of the Community. https://t.co/wxC4sqll06 Presenting Sponsor: #Takeda
#bloodstreammedia #raredisease #bleedingdisorders #podcast #genetherapy
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Celebrating Dr Assad on 25 years with WFH. Your guidance gave me the courage to start HFN and gave my sons hope for life. Thank you for touching our lives so deeply. Congratulations on this amazing milestone.
For over 25 years, Assad E. Haffar, MD, has worked to improve care for people with #BleedingDisorders. As WFH Humanitarian Aid & Medical Training Director, he has helped expand access to treatment and strengthen national care systems. Read the interview: https://t.co/Tqe7x3yZXT
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We hear how Voice of the Community is your chance to share your story and help shape what’s next for the bleeding disorders community. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #bleedingdisorders
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We talk with The Red Ink Project about rewriting the story for women and girls with bleeding disorders, and with Lanre Tunji-Ajayi about organizing across borders for sickle cell. https://t.co/wxC4sqll06 Sponsor: #Takeda
#bloodstreammedia #raredisease #bleedingdisorders #podcast
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After my brother passed away, I became committed to helping this community however I could. @hemophiliafed’s Voice of the Community initiative is a chance for all of us to shape the next decade. I’ve signed up for a listening session. Have you? ➡️ https://t.co/1DQuyc9eXQ
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No brush-offs here—just hallway stories, cool mics, and HIPAA-approved laughs with Dr. Quon. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring. #bloodstreammedia #raredisease #bleedingdisorders #genetherapy
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More people have stood on Everest than have swum the English Channel. Tim’s one who has—and the kicks to the face were just part of it. https://t.co/wxC4sqll06 Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring
#bloodstreammedia #raredisease #bleedingdisorders
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🎙️ The Blood Brotherhood x BloodStream Podcast applications are now closed — huge thanks to everyone who applied! 🙌 Stay tuned for next week’s updates on this powerful live-recorded mini-series hosted by Marc Pangilinan & Patrick James Lynch. 💪🩸 #BloodBrotherhood #Podcast
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Mental well-being has many components. Dr Ryan Warner provides a great 2-min breakdown on Ep 5 of THE FINAL SUMMIT podcast w @AdventureHemo. #mentalhealth #hemophilia #bleedingdisorders
Dr. Ryan Warner breaks down how mental wellness is multi-faceted and how therapy is only one way to promote wellness. https://t.co/xoC5FwyKbJ Brought to you by Genentech. Visit https://t.co/67T5kezgzA to watch the short film. #thefinalsummit #raredisease
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Von Willebrand Disease is starting to get more attention! Thank you to Jessica (Jess) Swann for joining @BloodStrmMedia to discuss #vWD as well as Star Therapeutics' commitment to patients. #vonwillebranddisease #bleedingdisorders #chronicdiseases #biotech #science
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For too long, women in the bleeding disorders community have had their symptoms overlooked and their voices dismissed. Dismissed, a powerful new documentary from Believe Limited, shares these stories and calls for change. 🎥 Watch now: https://t.co/b9y0u0pDdF
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Wow, what a spokesperson these folks found.
⏳ Only 1 week left until the WFH Global Summit on Women and Girls with Bleeding Disorders! Hear from a session chair @pjlynch, on why this virtual event is so important—and why you don’t want to miss it. 🌍 Register now: https://t.co/n3pXEMFDtk
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Just days post-surgery, Patrick shuffles downstairs and finds a Bob Barker marathon waiting. Recovery feels a little lighter when old comforts show up. What’s yours? https://t.co/wxC4sqll06 Presenting Sponsor: #Takeda
#bloodstreammedia #raredisease
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Join me for this special men’s rap session! 👇👇👇
🎙️🚨 Calling all Blood Brothers! 🚨 Are you a male or male-identifying member of the #BleedingDisorders community? Join HFA + @BloodStrmMedia for a new podcast mini-series & share your story! 🎙️ 📌 Apply by Sept 19: https://t.co/ZpQrWHZNFr
#BloodBrotherhood #Podcast
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The global #bleedingdisorders community is celebrating a milestone achievement! The #WHO has approved the WFH proposals to update the Essential Medicines List and the Essential Medicines List for Children. Stay tuned for more news on the work carried out by the WFH.
The latest updates to WHO Model Lists promote global access to lifesaving care people need through new treatments for: ➡️ various types of cancer ➡️ diabetes with comorbidities such as obesity ➡️ cystic fibrosis, haemophilia, other blood-related disorders & more. 20 new
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Columnist Jennifer Lynne describes a powerful new documentary film that shares the stories of five women with #hemophilia.
hemophilianewstoday.com
Columnist Jennifer Lynne describes a powerful new documentary film that shares the stories of five women with hemophilia.
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Columnist Jennifer Lynne describes a powerful new documentary film that shares the stories of five women with hemophilia. https://t.co/QxnkpcxzIP
#hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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Richland resident in 'Dismissed,' a doc about the challenges women face in getting hemophilia diagnoses
post-gazette.com
“In old textbooks, they say that, ‘Women were the carriers of this disease, and their sons were the victims of it,’ putting the shame and blame on mothers,” says Dawn Rotellini.
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