Pam Mace, RN
@pdmace2
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Executive Director, FMDSA. Awareness of Fibromuscular Dysplasia-survivor of bilateral carotid and vertebral dissections. Views are my own.
Joined August 2011
RT @heatherlgornik: Wonderful piece @docpark et al. and always so impressed by your illustrations.
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RT @IllinoisACC: BREAKING: IL passes legislation requiring PAD screening coverage for adults 65+ with risk factors like smoking, heart dise….
cardiosmart.org
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RT @purviparwani: Honored to chair the @ACCinTouch program “Monitoring Blood Pressure Throughout a Woman’s Lifecycle.” We planned multiple….
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RT @FMDartery: Southeast Regional Fibromuscular Dysplasia Patient Conference, .Saturday, August 16, 2025 .from 7.50am until 4pm. FMDSA Boa….
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RT @VMJ_SVM: Online First! Do patients with cervical artery dissections benefit from anticoagulation? Loufopoulos and colleagues present an….
journals.sagepub.com
Background: Though anticoagulation is a well-established treatment for stroke prevention in cervical artery dissection, antiplatelet agents could offer comparab...
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Thank you @heatherlgornik You do so much for our community and give us all so much hope for our future.
Thank you to our volunteers this weekend at the @clevemarathon Expo and the marathon finish line on both Saturday and Sunday. Dr Gornik, thank you for joining us!. #fmdawarenessmonth.#FibromuscularDysplasia.#FMD.#ClevelandMarathon.@heatherlgornik
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We are so excited to watch the lighting tonight with patients from Brussels, Belgium, Vancouver, Canada, Kentucky, Michigan and more. I was diagnosed with FMD 25 years ago. Thank you for helping us to raise awareness!.
BLUE & RED | For Fibromuscular Dysplasia (FMD) Awareness! . The Fibromuscular Dysplasia Society of America (FMDSA) is a not-for-profit patient advocacy organization working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). "We do this by building
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Need volunteer hours? Volunteer with us at the Cleveland Marathon on May 17th or 18th. #clevelandmarathon .Link to register
clevelandmarathoninc.volunteerlocal.com
Click here to become a volunteer with Cleveland Marathon, Inc.
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This is such a great opportunity to raise awareness of #FMD among emergency medicine professionals. #dissections #aneurysms #SCAD #stroke.
Attending #AAEM25 in Miami? stop by booth 305 and meet Kelly to learn the latest on #FMD #FibromuscularDysplasia @aaeminfo
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RT @heatherlgornik: Congrats to @CWRUSOM MS2 Karen Ji on her presentation at #ACC25 ~10% of patients with multifocal FMD seen @HarringtonHV….
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RT @HeadacheJournal: A retrospective case-control study suggests the link between #migraine & spontaneous coronary artery #dissection is du….
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Brad was a friend and will be terribly missed.
We are deeply saddened to announce the passing of Bradley Daar, the President of FMDSA and our cherished friend. Tragically, Brad lost his life in an aviation accident on Friday, March 14, 2025. Brad was an accomplished pilot with a passion for flying.
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RT @FMDartery: We're excited to share that there is now an FMD registry center in Philadelphia, PA!. Debbie L. Cohen, MD.University of Penn….
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I am so grateful for this organization, our donors and the medical community for standing with us.
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RT @ACCinTouch: In this week’s #EaglesEyeView, Dr. @keaglemd looks at:.✅ Identifying #cvMI after #PCI.✅ Myocardial Fibrosis & Severe Aortic….
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RT @KaatjeMek: @EM_RESUS Women with 'typical' symptoms often aren't taken serious either. I had severe chest pain and knew I was having SCA….
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RT @YaneValdezT: On #RareDiseaseDay I want to bring attention to #FMD.Fibromuscular dysplasia (FMD) is a condition that affects the arterie….
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RT @RareDiseases: Thank you, #Cleveland Mayor @JustinMBibb, for speaking about the impacts of rare diseases at today's @ClevelandClinic #Ra….
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RT @ChildYouthCareZ: 💜🌍 Today is Rare Disease Day! 🌍💜. Together, we stand with the 300 million people worldwide living with rare diseases.….
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