FMDSA
@FMDartery
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The recognized leader in the support of Fibromuscular Dysplasia (FMD) awareness, education and research. non-profit (501)(c3)#RUN4FMDSA
North Olmsted, Ohio USA
Joined July 2009
Save the Date!. The next University Hospitals Online #FMD Webinar via Zoom with @heatherlgornik will be.Tuesday, August 19, 2025.6 - 7:30 p.m. ET (U.S. & Canada).Topic:.2025 FMDSA Conference Recap and Q&A Bonanza. Register via #fibromusculardysplasia
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Southeast Regional Fibromuscular Dysplasia Patient Conference, .Saturday, August 16, 2025 .from 7.50am until 4pm. FMDSA Board Member, Allison Gaines is organising a meet up on Friday night, email allison.gaines@fmdsa.org for more details.
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Thank you to our volunteers this weekend at the @clevemarathon Expo and the marathon finish line on both Saturday and Sunday. Dr Gornik, thank you for joining us!. #fmdawarenessmonth.#FibromuscularDysplasia.#FMD.#ClevelandMarathon.@heatherlgornik
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Thank you for supporting our cause and raising awareness of #FMD. This means so much to the FMD Community World Wide!.
BLUE & RED | For Fibromuscular Dysplasia (FMD) Awareness! . The Fibromuscular Dysplasia Society of America (FMDSA) is a not-for-profit patient advocacy organization working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). "We do this by building
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Meet Rhyan, Run4fmdsa team captain for the @clevemarathon . Rhyan is not a patient, she will be running the half-marathon on Sunday, 18th May and volunteering at the marathon expo. Here's the link to Rhyan's marathon fundraiser page Thank you, Rhyan!
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It really is fun! We would love to have you join us! @heatherlgornik 😊@clevemarathon.
Need volunteer hours? Volunteer with us at the Cleveland Marathon on May 17th or 18th. #clevelandmarathon .Link to register
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Dr. James Froehlich – University of Michigan, Ann Arbor, Michigan.Dr. Jean Marino – University Hospital, Cleveland, Ohio.Dr. Santhi Ganesh – University of Michigan, Ann Arbor, Michigan.Pamela Mace, RN – FMDSA.
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Live Presentations.Dr. Jeffrey Olin – Mount Sinai, New York.Dr. Heather Gornik – University Hospitals Harrington Heart & Vascular Institute, Cleveland, Ohio.Dr. Daniella Kadian-Dodov – Mount Sinai, New York.Dr. Deborah Reed – University Hospital, Cleveland, Ohio.
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•Update from the North American Registry: Current State and Future Plans. •Update on SCAD and the iSCAD registry. •FMD Research Recap: Recent Work from National Meetings. •Genetics and FMD. •Living with FMD.
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Topics.•What is Fibromuscular Dysplasia?.•Treating cerebrovascular FMD, including aneurysms and dissections. •Prevention and management of headaches: What is new?.•Update on Menopause and Hormone Therapy. •Are FMD and SCAD the same disease?.
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Registration for our Virtual Conference on Saturday, May 3, 2025, is now open at this link-. @DrJeffreyWOlin1 @heatherlgornik @DKadiandodov.@pdmace2.#FibromuscularDysplasia.#FMDawareness
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Attending #AAEM25 in Miami? stop by booth 305 and meet Kelly to learn the latest on #FMD #FibromuscularDysplasia @aaeminfo
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We will provide additional information as soon as it becomes available.
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Our hearts go out to his wife, Terasia, their sons, Cory and Kyle, and everyone who knew and loved Brad. We are forever grateful for his many contributions and the lasting impact he made on our community.
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His unwavering dedication and kindness made a lasting impact, and his absence will be deeply felt. Though he is no longer with us, his legacy of compassion and service will continue to inspire us all.
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Brad served as our president for over a decade, providing leadership, compassion, and dedication. He was a beloved member of our community, touching the lives of all who had the privilege of knowing him.
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We are deeply saddened to announce the passing of Bradley Daar, the President of FMDSA and our cherished friend. Tragically, Brad lost his life in an aviation accident on Friday, March 14, 2025. Brad was an accomplished pilot with a passion for flying.
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RT @FMDartery: We're excited to share that there is now an FMD registry center in Philadelphia, PA!. Debbie L. Cohen, MD.University of Penn….
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If you missed the "Genetics and Genomics of FMD and SCAD: What Patients Should Know" webinar with Dr Santhi Ganesh and Dr Heather Gornik, or you would like to re-watch, here's the link to the video. #FMD.#FibromuscularDysplasia.#SCADheartattack
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