Vanessa Smith
@normal_ness
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We’re all normal to ourselves. I write. Hates hustle,loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate Author of books.Spoonie
Brisbane, QLD, Australia
Joined February 2012
My trilogy is on sale for $.99 a book for the next 5 days. GLORIOUS!
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I could use your help with my fundraiser for Travis on GoFundMe. Please share, support, or donate—every small action counts.
gofundme.com
G'day my name is Karl I'm 54 and for the ;last 15 years I've been a single dad/… Karl Tilcock needs your support for Help with bathroom for disabled young man
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From a doctor’s perspective - a previously harmed and traumatised patient being extremely fearful of surgery is pathological. To patients - it’s very logical and natural. But they get to label us mentally ill because of the power dynamic - they are always superior and always
@arianek Everyone is afraid of surgery . However An irrational fear arises when the procedure is required or essential and the patient refuses it out of fear than any other cause and develops signs consistent with a panic attack
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At the heart of ME/CFS neglect is this: energy is the currency of action. To change anything, you need energy - to organize, to lobby, to shout the loudest and fight back the hardest. ME/CFS robs patients of that very currency. For many, survival alone consumes nearly
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We’re at a point where minorities are just supposed to openly accept pure hatred as a “political leaning”
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i often say please mask at shows to protect artists, but that also goes the other way around. i personally know several artists who recently performed while positive for covid. music spaces are not safe, not for the artists, not for the audience.
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Jack blue face. Animal Crossing: New Horizons. Miranda Island. https://t.co/0SyfaJQoic
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the way people talk about genAI and covid are quite synonymous—"it's here to stay so we should get used to it"—despite the compounding proof that the material impacts of both of these things are not suitable for anyone, let alone Black, poor, and disabled ppl
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Your periodic reminder that Jerry Seinfeld is an awful human being.
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Hey folks please help if you can. Joey is a tireless advocate but is suffering so much with pain and getting a diagnosis
chuffed.org
I honestly thought I would never be in this position ever again but I desperately need help.
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The level of delusion and utter lack of humility among these researchers is astonishing. The fact that they’re going to try exercise on people with any level of PEM is malpractice.
And the researchers still think exercise is an important treatment. Based on the trial registration, they're trying to see if exercise can treat exercise intolerance and PEM (even though its failed before, and the study excludes people with moderate and severe PEM). (2/3)
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The RECOVER-TLC webinar has had fantastic highlights, but this is a major, major drawback. People are so sick they haven’t been able to communicate in YEARS. Where is the recognition? Where is the urgency? Where is the help?
@NIH So far the NIH has utterly failed to acknowledge that there are people in this community who are losing the ability to EAT, who are skeletal, who can't speak or tolerate sound or light, who have tried everything and nothing's working
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This whole thing where people are too complex (which seems to be code for expensive/need 1:1 care) for care needs to be burned down.
"His Alzheimer’s will get worse, my mum will get weaker, neither of them are safe and nothing will be done until there is an emergency. And that will be too late." https://t.co/ZjF0suSxpD
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This #WorldSuicidePreventionDay, a reminder that suicide rates for those on unemployment payments decreased during the lockdowns, coinciding with increases to payment rates #NobodyDeservesPoverty
#RaiseTheRate
https://t.co/Fsl6FlMQWy
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If we had clean air in our schools, it would reduce airborne pathogens & allergens. It's not *just* about protection from Covid. It's about mitigating the risks from a whole host of serious conditions, including chicken pox, measles & whooping cough. Why wouldn't we want this?
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ppl are like "if the long covid research were true, wouldn't we notice?" and then go "damn why is everywhere understaffed, why is everyone sick all the time, why is everyone worse at driving, why are all these musicians and athletes dying, why are doctor wait times so long, why a
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It's fine if family is your everything. It's also fine if the best part of life began when someone got away from theirs.
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As a chronically ill person when I’m burnt out it’s actually more like completely charred.
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no one talks about the personality shift as you get older. where you no longer want to be impressive, you want to be rested. you want to be regulated and completely unavailable to anything that drains you
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