NF2 BioSolutions UK & Europe
@nf2biosolution1
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Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
UK & Europe
Joined March 2021
RT @camraredisease: Shout out to our fabulous #RAREsummit25 media partners. @RareRevolutionM.@ncbrsfoundation.@CHCharityUK.@NF2BioSolutio….
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RT @NF2BioSolutions: The 7th Annual Avalon Invitational Offshore Fishing Tournament was a huge success, and we're honored to be the benefic….
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ICYMI.New funding for NF2 research from the research team at the @GJBrainResearch .Title: Understanding CD8+ T cell responses in NF2-Schwannomatosis-related vestibular schwannoma tumours.Funder: UKRI / Medical Research Council.Value: £710k.Read more here:
gjbrainresearch.org
Colleagues working across our brain tumour and inflammation themes have been award £700,000 from UK Research and Innovation (UKRI) and The Medical Research Council for their project on Understanding...
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The latest news from the lab!.
🧠 Our latest newsletter is out now!. Catch up on everything from research highlights to upcoming events and team news. 🔗
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Interested in Patient involvement using YOUR lived experience of NF2?. Great Opportunity to get involved with the Manchester Rare Conditions Centre.nterested? Find out how to apply and learn more here. ⏳ Deadline Monday 25th August.
mrcc.org.uk
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RT @vestibularveda: It’s hard to explain… unless you’ve lived it. It’s exhausting. It’s invisible. And yet—you keep going. #VeDA #Vestibu….
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Another infographic to start the knowledge this week. Thats NF2, all those tumour types.#endNF2 #NF2awareness #neurofibromatosistype2.#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
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We are delighted to congratulate @GraceGregory_ and @AdamPJones98 on receiving their PhDs at the official graduation ceremony on Thursday 10th July - officially Drs!. We extend congratulations from everyone xxxx.#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
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RT @Nf2UK: So as the eminent Prof DG Evans finally retires all we can do is wish him well in his much reserved retirement and say thank you….
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Small Molecule Inhibitors of TEAD Auto-palmitoylation Selectively Inhibit Proliferation and Tumor Growth of NF2-deficient Mesothelioma.
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Midweek knowledge!!1. Did you know tinnitus affects MANY of those with NF2. The Four Different Types of Tinnitus:. Subjective tinnitus.Somatic tinnitus.Objective tinnitus. #endNF2 #NF2awareness
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Midweek knowledge!!. Did you know it was that many? Eye problems really are very common in NF2 and yet are probably one of the most overlooked areas both pre and post treatment (no pun intended!) . Look after your eyes! They are the windows to your soul!.#endNF2 #NF2awareness
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RT @GJBrainResearch: 🚨 Our 3rd Annual Report is out! . From the new epilepsy research theme to cutting-edge clinical trials and significan….
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We are starting midweek knowledge about NF2 today, and, how it can affect us. Did you know there were so many mutations in fact there are probably many more? There is so much variability with NF2, we are all different and we are all affected differently. #endNF2 #NF2awareness
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Proud to be part of these networks and collaborative movements. #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2.#nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2prognosis #nf2research #nf2awarenessday #StrongerTogetherAgainstNF2
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Phase II study of axitinib in patients with NF2-related schwannomatosis and progressive vestibular schwannomas.
pubmed.ncbi.nlm.nih.gov
Axitinib therapy targeting VEGFR, PDGFR and c-KIT is feasible in this population and associated with volumetric and hearing responses in a subset of patients. However, convenience of oral administr...
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. Integrated proteomic and targeted Next Generation Sequencing reveal relevant heterogeneity in lower-grade meningioma and ANXA3 as a new target in NF2 mutated meningiomas.
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