NF2 BioSolutions
@NF2BioSolutions
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NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis
United States
Joined August 2018
đź’™Join Us This Saturday for the Freedom Fundraiser 5K & Kids Dash! đź’™. Come out and show your support for NF2 research at the Freedom Fundraiser 5K Run/Walk and Kids Dash THIS SATURDAY in Warren, PA!. Register or donate here:
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🎥 Missed the live webinar? The recording is now available!.Learn about a groundbreaking AAV9-based gene therapy approach to treat NF2, presented by leading researchers in the field. ▶️ Watch the full recording now:.🔗
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NF2 Awareness Month Is Over, But the Fight Isn’t 💙. May is behind us, but for those living with NF2, the challenges don’t end on June 1st, and neither does our mission. 👉 Donate today:.Using Facebook: Using our webpage:
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🚨 Happening TODAY!.Our AAV9-NF2 Gene Therapy webinar is just a few hours away — and there's still time to register!. ✅ Can’t attend live? Register anyway, and we’ll send you the recording by email!.🔤 Live captioning will be available. 🔗 Register here:
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đź’™ Donate now: .Using Facebook: Using our webpage: Using PayPal: Internationally:
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Why Antibodies for NF2?.Because they’re not just treatment tools but delivery vehicles for hope. Antibodies can help deliver gene therapy directly to NF2 tumors, aiming to restore the gene function that produces the Merlin protein, the body’s natural tumor suppressor.
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Want to know how your donations are used? Here is a breakdown of what your donation can accomplish for the Yale Antibodies Project. Donate:.Facebook: Webpage: PayPal: Internationally:
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👉 Support NF2 research now:.Using Facebook: Using our webpage: Using PayPal: Internationally:
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Every day, scientists are getting closer to breakthroughs that could change lives—but only if they have the funding to keep going. In the U.S., the pace of research depends directly on donations. When funding slows down, progress slows. When we give, research accelerates.
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🔬 Your support means fewer unknowns—and more solutions. 👉 Donate or share this NF2 Day: .Using Facebook: Using our webpage: Using PayPal: Internationally:
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That’s the reality of living with NF2: a life of unknowns. Each scan brings new anxiety. Each symptom, a possible turning point. There’s no way to stop it. Not yet. But with targeted research and innovative therapies, we’re closer than ever to changing that.
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NF2 doesn’t follow a schedule. It doesn’t wait. It doesn’t warn you. One year you’re hearing fine, then one day, it’s gone. You’re walking steadily, then suddenly, your balance is off. You think it’s stable, then an MRI reveals another tumor.
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We’ve raised $63,000 to fund Dr. Zhou’s cutting-edge antibody therapy at Yale—but we’re not done yet!. Donate today: .Using Facebook: Using our webpage: Using PayPal: Internationally:
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Today, May 22nd, is NF2 Awareness Day, and we’re inviting YOU to help raise awareness. Wear blue, snap a photo, and share it on social media by tagging @nf2biosolutions. Let’s fill the timeline with faces of hope, strength, and solidarity for those living with NF2.
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NF2 Related Schwannomatosis is a rare genetic disorder that causes tumors to grow on nerves throughout the body, especially the brain and spine. It can lead to:.Hearing loss.Vision problems.Balance issues.Pain, numbness, and more. On May 22, we raise awareness and take action.
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On May 22nd, we shine a light on a rare condition that affects thousands, but is still too often misunderstood. #NF2Awareness #EndNF2
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Missed the Webinar? We were honored to host Dr. Bae-Hoon Kim, Ph.D., from PRG Science & Technology (Korea), in an insightful session on a new inhibitor drug trial for NF2 that is currently in progress. Watch the full recording now on YouTube:.đź”—
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Join us on May 29 at 3 PM ET for an in-depth look at this cutting-edge therapy, which aims to insert a healthy NF2 gene using AAV9 vectors to stop tumor growth. Register here:
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Ahead of tomorrow's webinar featuring Dr. Bae-Hoon Kim, Ph.D., from PRG Science & Technology, who will share insights on a new inhibitor drug trial for NF2 currently underway in Korea, check out the published research article behind this exciting work:.đź”—
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We’re thrilled to host Dr. Bae-Hoon Kim from PRG Science & Technology 🇰🇷 in a special webinar. Dr. Kim will share the latest on a new inhibitor drug trial for NF2 currently underway in Korea. Click here to register:
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