Cindy's FTD Journey
@monkeyami
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My mom was diagnosed with Frontotemporal Dementia when she was 56. I'm a more recent stroke survivor. #FTD #Dementia #Strokesurvivor #Stroke
Salt Lake City, UT
Joined August 2009
Rare Disease Day - Frontotemporal Dementia! https://t.co/LWaOGmUDHa A form of dementia on the rare disease list? Dementia is so common! No Way! BUT YES, Frontotemporal Dementia is a RARE DISEASE! #ShowYourStripes #RareDisease #RareDiseaseDay #EndFTD #DementiaUnder60
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Learn more about Frontotemporal Dementia from the family of Bruce Willis. #FTD #Dementia #Frontotemporal #BruceWillis
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FTD often strikes during the prime of life, typically between ages 45 and 64, when many are raising families, building careers, and planning for the future. Its impact is profound, both emotionally and financially, with an average annual cost nearly double that of Alzheimer’s.
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"I care for my 88-year-old mom due to dementia. She has been an avid knitter for many years. Recently, though, the dementia has affected many areas, including her ability to knit. She is still very content with her yarn and needles, but the outcome is different, which apparently
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June is Alzheimer’s & Brain Awareness Month! Repost to raise awareness for the more than 55 million people worldwide impacted by Alzheimer’s and other dementia. Take action at https://t.co/DoYmIZD5ll.
#ENDALZ
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My Husband Was Diagnosed With Dementia at 36. Here’s How I First Knew Something Was Wrong https://t.co/OjWetGlVXS
#elderlaw #estateplanning #guardianship #probate #elderlawyer #trust #elderlawattorney #lawyer #estateplanningattorney #attorney #estateplan
self.com
What I saw wasn’t normal behavior for anyone, let alone my brilliant, amazing spouse.
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Today Wendy Williams’ team shared that the former talk show host is living with primary progressive aphasia & frontotemporal dementia. We hope publicly sharing her diagnosis helps break down stigma and enables others facing dementia feel less alone.
today.com
Williams recently called into a radio show and said, "I'm not cognitively impaired."
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The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),”
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Attended a funeral today and heard a really touching comment about #dementia...the dementia years likened to waving someone off as they drive away, the distance increasing until you can no longer see the person, but you're still there, waving. Very poignant moment.
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"Honestly he is the gift that keeps on giving," Emma Willis told TODAY's @Hodakotb in studio, adding that as a result of her husband's diagnosis her two young daughters are learning "love, patience, resilience... so much."
today.com
"It’s really a beautiful thing amongst the sadness," Emma Willis, Bruce Willis' wife, told TODAY co-host Hoda Kotb.
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🌍 Today marks the beginning of World FTD Awareness Week – a global call to #endFTD. The theme for today is self-care. Whether you're a caregiver, someone with a genetic link to FTD, or directly impacted by it, prioritizing your well-being matters. Here's how you can join in: 1️⃣
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It is #WorldAlzheimersDay. Busy day at work. But I just want my mum. To tell me I’ve got this. She is proud of me. But she doesn’t know who I am. She couldn’t speak if she did. Thousands of daughters are feeling the same this morning. Every morning. The real face of dementia. 💔
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Jack Hanna's long goodbye: How #Alzheimers is stripping away the man the world once knew https://t.co/sd982GLwEB via @usatoday
#dementia
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A stroke can occur even if you are the caregiver! Know your risk factors (high blood pressure, diet, inactivity, diabetes, high cholesterol) and do what you can to mitigate those risks. #caregiving #strokeawarenessmonth
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May is #StrokeAwarenessMonth . This is my stroke story. I had a #stroke while I was a caregiver to my mom who had Frontotemporal #Dementia . Having a stroke and being a caregiver were super hard.
ftdjourney.blogspot.com
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My dad was only 62 when he was diagnosed with dementia https://t.co/02rxmTka8i via @MetroUK
metro.co.uk
There were some really scary times, like when he was supposed to meet Mum at Kings Cross, but got on a random train and we couldn’t find him for four hours.
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This daughter was 20 years old when her mother was diagnosed with #FTD. #Dementia #DementiaUnder60 #Frontotemporal
independent.co.uk
When you care for someone you love you make it your life to give them the care you believe they would want, and when that ends it comes as something of a shock
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She lost her 39-year-old husband to Bruce Willis's type of dementia. Here's what she wants others to know about this devastating disease.
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NEW BLOG POST! YOU DID YOUR BEST AND THAT IS ALL THAT MATTERS - GUILT DURING SORROW I had guilt right after Cindy (my mother) passed away. #guilt #grief #EndFTD #Dementia #Frontotemporal
https://t.co/K95sg9L3De
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